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  3. Polymyalgia Rheumatica and GCA

CHARITY LAUNCH WEEK

Posted , 4 users are following.

MrsO-UK_Surrey
MrsO-UK_Surrey

Hi Mrs K

Just wanted to say lots of best wishes to you and the wonderful team of PMR Fighters for your trip to London this week for the launch of the PMR/GCA Charity. Don't wear yourself out on the 10th as I'm looking forward to meeting you and seeing you fresh as a daisy on the 11th!

I'm also looking forward to meeting up with everyone else who can make it.

[b:4ba86988ce]NEFRET[/b:4ba86988ce] Do hope you have recovered from your black eye by Thursday - I'm also hoping that I recover from the burst blood vessel in my eye otherwise we are going to look a right pair together!

Lots of love to everyone.

MrsO

0 likes, 18 replies

18 Replies

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  • mrs_k
    mrs_k

    Posted

    If only the Daily Mail article had got the medical facts right.

    I have posted in the comment section on line and pointed out sharply, that mis-information on symptoms of GCA is just not on.

    The best bit is that the new Charities website address is in that article.

    gr.............

    Although some will say, better incorrect and publicity than correct and no publicity. :roll:

  • BettyE
    BettyE

    Posted

    Have just tried to read the comments. They are \"currently unavailable\". Let's hope that this means corrections are pending.
  • BettyE
    BettyE

    Posted

    Comments ARE now available and Mrs. K's corrections re the GCA symptoms certainly sorted the DM. Well done!

    I do wonder about the categorical rubbishing of the diagnosis for the young woman in her thirties by a Dr Ali in the USA. He should read this forum to discover how very little is set in stone regarding PMR/ GCA. Perhaps she does have something else but perhaps her GP was open minded enough to look at the patient and not just the book. There I go again with my fierce judgements. Noapologies this time. BettyE

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