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I'm 34 years old and I have been having fainting spells and bad migraines since I was a baby. The doctors thought it was epilepsy. At the age of 13 I started my symptoms again fainting bad migraine chest pains. Now I have back pain,neck pain, tingling on my shoulders arms and legs. I get a heavy feeling on my shoulders. My tongue gets tingling, sometimes I choke on water. I get this sick feeling all the time, my stomach hurts daily, I feel weak, night sweats, inability to get enough sleep. I have been to many cardiologist because I have a PFO and I thought it was heart related and I guess it wasn't. My new cardiologist was suspicious about the overall symptoms and referred me to a neurologist. They thought it was seizures and started me on topomax and ordered and MRI with contrast and that's when I got the diagnosis of Chiari Malformation. To be honest I have been so depressed since knowing this I don't want to live in pain I have been trying to find a doctor to finally believe that something was wrong and I did but not what I wanted to hear. I just want to live a normal life without feeling sick. Not sure if I need surgery but with all my symptoms I'm pretty sure I'm going to need it. I have 5 kids and it worries me that I won't be able to care for them. Any advise for a mother who was diagnosed with Chiari Malformation?
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