Posted , 5 users are following.
Hi everyone , I was diagnosed with Chiari malformation type 1 2 years ago I'm 36 and attend the queen Elizabeth hospital in Glasgow , I suffer terrible headaches and dizziness the list could go on , I went for fluid pressure monitoring last year not had any decompression surgery yet i go back to see neurologist in June and go for Mri scans . Feel like every time I go I tell them about how I'm feeling and how much pain I'm in they are not listening I and very worried about my condition and just want to know how down one else copes with it everyday and what's there check up plan with neurologist
0 likes, 22 replies
ellie01466 yvonne06468
Posted
yvonne06468 ellie01466
Posted
Not sure is to do with malformation when j read about it, it says it can be but neurosurgeon says it's not but he was rushing me the last time o saw him because he was running late , I have a little girl at 4 and most of the time is only me and her and I'm so scared that something happens to me and I'm myself 🙁. I wish they would tell me what the plan is there sending me to a nurse this time it's not even my neurologist who is seeing me in June. feel like there not bothering with me and I feel terrible very day
b2wc97455 yvonne06468
Posted
ellie01466 b2wc97455
Posted
yvonne06468 b2wc97455
Posted
helen11122 yvonne06468
Posted
b2wc97455 yvonne06468
Posted
yvonne06468 helen11122
Posted
Blocked couldn't hear a thing for about an hour after the plane landed was scary . I'm going to salou in June so hoping I have no issues neurologist had says last time was ok to fly so if there isn't any major changes in my Mri scan should be ok this time I would just like them to make a plan of what happening with me like is it 12 month check up or 6 month I don't want to be left too long as I'm terrified of it progressing , the headaches are terrible everyday neck pain where the malformation is , nobody in my family understand what it's like so hard to find someone to talk to who can see where I'm coming from .
yvonne06468 b2wc97455
Posted
b2wc97455 yvonne06468
Posted
helen11122 yvonne06468
Posted
yvonne06468 helen11122
Posted
helen11122 yvonne06468
Posted
yvonne06468 helen11122
Posted
helen11122 yvonne06468
Posted
Join this discussion or start a new one?
New discussion Reply