Chronic fatigue but not sure what it is..

Posted , 7 users are following.

I will try to keep this short. Three years ago my fatigue started and is still here. Brain fog too. I have visited so many doctors these years and they tested me for autoimmune disorders, celiac and other things and noone knows what is wrong with me. At the beginning I was vitamin d deficient but that was fixed the first year. For three years now either I wake up exhausted or I have energy only for the first couple of hours. I also have cold urticaria and oral allergies in some foods (I didn't have either before my fatigue started. Has anyone experienced anything similar? or has anyone any idea what it might be? I exercise regularly and eat as healthy as possible. any input would be greatly appreciated.

0 likes, 22 replies

Report

22 Replies

Next
  • Posted

    have you looked into Lyme and tick borne infections? Find an LLMD near you

    Report Reply
    • Posted

      Hi Alex, There is a very high false negative rate only an LLMD will understand. With LYME etc. the sooner you start antibiotics, the better . Google LLMD. The average doctor doesn't understand this

      Report Reply
    • Posted

      not everything is lyme ,and advising someone to take antibiotics or ANY kind of medication without knowing their health background is EXTREMELY DANGEROUS specially over the net. I wonder why and how you are so sure he "has" lyme when the test already came back negative. does anyone ever look at side effects from medication. I feel sorry for ppl struggling with symptoms thinking their I'll. with all the respect I hope not to offend anyone 😃

      Report Reply
  • Posted

    Hi Alex,

    Do you remember a trigger to your fatigue?

    Beverley

    Report Reply
    • Posted

      The day it started it was the last day of being sick with what seemed to be the flu, although I had more fever than I usually have when I have the flu. I was shivering and aching in my entire body. I woke up the next day exhausted, which I thought was normal for the situation. Flu was gone but the fatigue never left.

      Report Reply
    • Posted

      i had a cold two weeks before i got sick which is thought to have triggered it for me. but six months prior to that i had been doing a very stressful job which apparently left me more suceptable to getting ME

      Report Reply
    • Posted

      Hi Alex,

      Cfs/me needs a trigger and it seems yours was the flu? If you Google the ME association there is a list of causes and symptoms and any virus can trigger post viral syndrome which then leads onto ME. My own trigger was a car crash and just like you I woke up afterwards exhausted. Doctors, psychotherapist and physiotherapist all telling me that was expected. 18 months later was when I started to wonder if this were something else and all clear blood tests came back.

      I have had people ask me about Lymes (my reply is that I would have been really unlucky to have been bitten by a tick and have the crash!) a liver disorder that has cfs/me symptoms, vitamin d deficiency etc. I know my trigger but would just like to get to recovery. Lots of people do.

      Beverley

      Report Reply
    • Posted

      Jan, I have been doing a stressful job that I quit two months prior to getting sick. I worked for many hours with no days off and with too much stress and very strict bosses. It seemed weird to me to be honest, that of all the pressure I didn't get sick while I was working but two months later

      Report Reply
    • Posted

      Thank you for your concern. I am in the same situation as I was, no improvement, my days are either bad or really bad. I take a lot of vitamin supplements that my doctors suggested and although it's been months since I started still no sign of improvement. To be honest I have lost all hope that I will ever feel better.

      Report Reply
    • Posted

      Plz dont loose hope , I am also in same situation since 1 year

      how is your hunger ( true hunger from abdomen ? not just feeling to eat)

      how many hrs sleep in daytime do you need?

      do you feel restless and whole body heavy and stiff especially when fatigue?

      do you have IBS after viral infection ?

      did you have weight loss at start of CFS ?

      Are you able to work for some hrs ?

      Report Reply

Join this discussion or start a new one?

New discussion Reply

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up