Chronic fatigue but not sure what it is..
Posted , 7 users are following.
I will try to keep this short. Three years ago my fatigue started and is still here. Brain fog too. I have visited so many doctors these years and they tested me for autoimmune disorders, celiac and other things and noone knows what is wrong with me. At the beginning I was vitamin d deficient but that was fixed the first year. For three years now either I wake up exhausted or I have energy only for the first couple of hours. I also have cold urticaria and oral allergies in some foods (I didn't have either before my fatigue started. Has anyone experienced anything similar? or has anyone any idea what it might be? I exercise regularly and eat as healthy as possible. any input would be greatly appreciated.
0 likes, 26 replies
ana85762 alex36271
Posted
were you taking any meds any antibiotics before you started to have these symptoms ??
alex36271 ana85762
Posted
I had been taking depakote as a mood stabilizer for years. After the first year with fatigue I stopped taking them to see if it would make a difference. It didn't...
jan96753 alex36271
Posted
hi there , im sorry that youve felt so rough for that long now. it sounds like you have chronic fatigue syndrome or ME! THIS IS THE DIAGNOSIS, i have ME , this is the disease or disorder . its the cause you are looking for i suspect , well maybe you wont find that . i have alot of people say to me , oh so they dont know what it is yet that you have and i have to say yes the do know its called ME.
it had taken me a while to come to terms with this diagnosis, but the sooner you do you can go into healing mode and self care, its an important step to make I feel in the road to recovery. acceptance doesnt mean you are not fighting for you health but if you have a diagnosis the you are much better able to treat it. hope this makes sense and of course this is just my opinion.
sending many blessings and wishing you good health. Jan
alex36271 jan96753
Posted
Thank you for your response. I have thought about chronic fatigue syndrome and I think it might be it too, but I am hesitant to settle in that thought because I have read that you need to rule out everything else first and that sounds like a lot. Also, where I live doctors are not really accepting CFS as a real disease. They prefer telling me that it is in my head (some of them already have)
jan96753 alex36271
Posted
oh thats rough if your doctors dont even recognise, where do you live ? Im in NZ and although we are short of specialists here my GP is very good m i think if you have had for more than six months and you have seen many doctors and had all the usual mainstream tests to rule out cancers , MS adn blood born diseases or deficiencies im pretty sure that youd fit the criteria for cfs. im no doctor but there are lots of guidelines online. all the best
alex36271 jan96753
Posted
I live in Greece and we don't have the best medical care here. I will try to find a pathologist who is familiar with cfs. At least he/she will know what to rule out and how to diagnose it. Thank you for taking the time to reply
DiannaO alex36271
Posted
I agree that it sounds like CFS/ ME. I have been recovering for 4 years now. It can be a long road.