Chronic fatigue struggling with so many different conditions

Hi thanks for your response I have had it for about 2 years I am intrested in your point on the acid reflux how do I know if I have to low acid ?I am taking the medication esmaprazole to not much affect 60 mg.

I do have problems with anger at a lot of aspects of this ,it seems like a syndrome of things that ultimately makes you fatigue I have learnt to pace myself that helps.

Your right about helping yourself you have to listen to what the body is telling you I have bad side effects so very apprehensive of what I take .

Thanks

You need to search the net for the topic of too little acid -we cannot post links here. They can tell you how to test with bicarbonate after you have eaten protein.

For many it is also a good idea to eat 'stoneage', which I see as simply not prefabricated food of any kind.

 

Ok I appreciate the infowill have a look many thanks my diet is very clean Still have trouble.

Hi Russ,

There are so many different bits to this condition. It affects the physical, mental, social, emotional even the spiritual (I mean however one sees that) Each part having Its own issues. Our view of who we were before.were you the 'bread winner' as it were? How does that affect how you feel now? I'm a single mum and not being able to be 'mum' is huge. Not being able to work impacts too. Letting the anger, frustration, sadness go-isn't easy. Not feeling heard or understood, doesn't help. I get sick of hearing myself ask for help in the house to see it the same the next day and the next. So all ready exhausted, the pattern continues. This condition is so tough to accept as we all on here want our life back I'm certain!

Again, I hope the holistic doctor helps, let us know.

B

Thanks I understand completley what your saying I have give up telling people why I am not working now I find my self getting more infuriated when the usual responses come back oh I get tired are you suffering with anxiety.

I am starting to learn that it is a total waste of time to educate people with this as I have to tell my own gp about the condition i have felt better since I have met other people who suffers let you know how I go thanks

Hi Russ,

It Is hard With people's responses. Often its finding what works with them like-I feel drunk all the time, or like when you have flu, like walking through treacle. Or give them facts like 250,000 people have It etc.and for some it seems pointless. If we were in a wheel chair, had pots on both arms and legs, then people can see it and then believe it? Because we don't we have to battle to be heard. Does It make you feel you have more understanding for others who don't have functioning as well? I feel somehow kinder In someways although sometimes old ladies hold doors for me now! More understanding is needed I feel.

B

It's a very difficult condition to put up with it's going to take me a while To accept I was very active before this it started gradual with me after first infection i just carried on it must be hard being a single mum I am single and find it hard as what seemed like my future of meeting someone starting a family has some what changed,, not working paying bills there's more to this than just the actual condition itself definatley going to continue with the the groups I have been going to talk about things it helps me i know some people are worse off and it makes you realise things I took for granted before this maybe it's happened for a reason thanks

It takes alot of getting used to and you have to adapt so much. I hope that you are one of "the the lucky ones" who gets some significant improvement. I have a friend who is going out with someone who had this for ten years but got better. He cycles and works now so there Is hope even If you have it several years. Its hard to know why we have It and others don't and how some people can manage to work, I know I can't and I loved my job , so Its quite a blow not doing something I enjoy. Hope,rest,patience seems the key, and being kind to ourselves.

B

Kind words I acceptance is a big word in this I have and still am going through the process if something else could be causing it even tho I have had bloods done over the course of the year I think and mentally my brain is just going all the time thanks for your advice take care keep you posted on things good to hear that people improve

You too

I have to give this post you so much credit I am new to the forum I havnt searched on anything before now my denial I have m.e all I want to say is thankyou for positivity and such wise words. Has made my day thankyou

Hi I am glad the post has helped you in some way the forums are really helpful it might be worth to see if there are any support groups in your area may help you to speak to others I am still asking questions a lot about m e there is a lot to take in no worries

Hi yes there isn't anything in my area so far and online have to pay for membership is this worth doing? I just thought that some support would be free ideas on a way forward?

Hi yes the free forums are great I have gained lots of information on a lot of aspects to this condition and other conditions I have so just ask away I can't comment on the group you mentioned I have just joined a local support group which I paid 10 £for year so I can meet up with people to chat it helps some people