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Chronic Hyperventilation syndrome

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matt93825
matt93825

Hi, I'm a 29 year old male and for about 8 or 9 years now I've had what the doctors have told me is "anxiety" but myself doesn't feel anxious and have come across chronic hyperventilation syndrome. I feel as if this is what I have. Over the years I've had 3 ecg test a asthma test and a oxygen level test and all come back normal also had ambulances to the the house as felt was having heart attack an would die. My day consists of waking up and everysinle breathe I take I think about I just cannot forget about it. I constantly feel short of breath get chest pains. But most off all I yawn hundreds if not thousands of times a day just to get a breath and one yawn to get breathe can last 15 p 20 seconds then feel dizzy as stopped all oxygen getting to my brain. Best why I describe it to my family is my breathing is like a car that is running out of petrol and needs more to carry on. My breath feels like my body is empty so I need more and I have to yawn to get this breath. I fear it's life threatening and it's so scary. I used to play football 4 times a week now I don't do nothing no excersises at all as I will run n think damn what about my breathing then would start to yawn n the cycle continues. It's not just certain times its every second of every day I have to yawn to get a satisfying breath and I just want to live normal. Can anyone help or tell me what they think could be or anything. Sorry it's such a long message just so fed up of feeling this way all day every day and my only rest bite is when I'm asleep. Hope to hear some replies.

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  • borderriever
    borderriever matt93825

    Posted

    Matt

    To stop Hypoventilation breath into a paper bag, or brown paper bag, you can also use a grease paper bag. DO NOT USE A POLYTHENE BAG

    Put the bag over nose and mouth and breath into the bag, this recycles the used air and stops the hypoventilation. When you are ok breath normal without the bag

    BOB

  • shiva1985
    shiva1985 matt93825

    Posted

    did you ever get relief, ive been suffereing with the exact same thing you have for the past 18 months. I monitor my breathing and Its like my breathing is not automatic. I yawn a lot and I have done ecgs and blood tests that come back normal. I feel so stressed by the situation I am constantly worried about this breathing problem. ive forgotten what is like to be normal
  • shiva1985
    shiva1985 matt93825

    Posted

    Hi good day, i am interested to know if you ever found a solution to your problem, as i have been having the same problem for the past 2 years. I am constantly out of breath during the day 24/7
  • austin11
    austin11 matt93825

    Posted

    Been to the Mayo Clinic rodchester campus. Emergency department 7 times. 3 specialists where I live. Anxiety is an ugly b***h. And I understand where you are coming from and finally found someone who knew what we were going through. The top medication for resetting this http://www.oatext.com/The-beneficial-effects-of-oral-amitriptyline-in-anxiety-induced-hyperventilation-syndrome-a-case-series.php. That is what I found and what they put me on currently. Hoping you are already better. 

  • sarah43910
    sarah43910 matt93825

    Edited

    Bump this post - I’ve been suffering from this for years! I’ve had 4 EKGs, 3 chest X-rays, a CT scan of my lungs, and recently had an echo done. Now I’m getting a pulmonary function test done. My O2 stats are 98-98% yet I feel dizzy and lightheaded and my chest muscles are tight and sore and have been for years! It almost feels like I’ve been exercising my pecs nonstop.

    Only thing that seems to help is a low dose Ativan. Anyone have any suggestions?

    • austin11
      austin11 sarah43910

      Posted

      The only thing that worked was amitriptyline within one month I was 90% better they recommended a benzo  to me as well let me assure you when you stop it it’s going to make you feel unbelievably worse. That was what the emergency room originally gave me it was Ativan and Valium and I stopped them cold turkey it’s horrific. The reason I recommended amitriptyline is after spending 50k and having every test done for heart lung brain. The Mayo Clinic the leading authority for every hospital in the world said... and I quote yeah that won’t work but this will... lo and behold they showed me the study and within a month voila. To others searching here’s the info http://www.oatext.com/The-beneficial-effects-of-oral-amitriptyline-in-anxiety-induced-hyperventilation-syndrome-a-case-series.php

    • mark21119
      mark21119 austin11

      Posted

      Hi

      I have exactly the same problem for last month. I was on amitripiline for a year for migraines but only 10mg but now have this I have spoken to doctor and it’s upped to 25mg. Only been on it for 6 days so hoping it sorts this problem out. What dose are you on and has it sorted everything out for you now? You said you was 90% better? Mark

    • austin11
      austin11 mark21119

      Posted

      Hey brother so sorry to be so long in responding and yes after a couple months I tapered to 30mg in dosage and it started to fade now I’m tapering off the amitriptyline 2.5 mg every month till I’m off the doc said I can go even slower if I want. I promise it gets so much better!
    • Albilva
      Albilva austin11

      Posted

      Hello. My name is Alberes. I'm from Brazil. I saw your report on the forum and identified myself immediately. Are you still using Amitriptyline? How have the results been? I was excited to start the treatment soon and get rid of the notorious symptoms. Awaiting return. Big hug.

  • Cantbreath2254
    Cantbreath2254 matt93825

    Posted

    Hey man I'm not sure if I've got the exact same condition as you but what u r describing is spot on with what I'm feeling. I've been short of breath all year it has stopped me dead in my tracks it is every day and every second of everyday I've been to the ER probably ten times this year. And specialist I've had EKGs blood test x-rays CT scans urine test pulmonary function test Spirometry test I've been to a ENT had s scope down my throat and I've seen a allergist as well I cannot find out what is causing the problem. I've wrote death letters to my family because I'm just convinced I'm gonna die soon it's been going on a year now I cannot exercise anymore I cannot function period I used to have alot of anxiety and panic attacks before this started but now it's became constant I've been tested for lung problems blood clots u name it I am I'm fear for my life

    • austin11
      austin11 Cantbreath2254

      Posted

      I used to lay in my bed telling my father my girlfriend I’m dying. That’s it I’m just dying I felt as if every breath was gonna be my last it felt as if I was choking to death the only peace I felt was sleeping because it meant Maybe I wouldn’t wake up to this nightmare. It gets better with the amitriptyline it took almost 3-4 months but it slowly slowly fades back away. You’ll catch yourself feeling better and better the amitriptyline is hard to get used to for the first 4-6 weeks but if you can struggle through their is lights on the other side. And yes I had the same crazy thoughts but it does go away mine occurred on October 13th 2017 and it’s finally fading now after 8 hospital visits 20 different meds and supplements a trip to the pulmonary and critical care department at the Mayo Clinic. It gets better It’s slow and it f*****g sucks so unbelievably bad but it does go away. Talk to your doctor about the amitriptyline show him the article please.
    • austin11
      austin11 Cantbreath2254

      Posted

      The other thing was it always felt no matter how much I was breathing I could never get a deep breath.
    • paul20587
      paul20587 austin11

      Posted

      will lexapro not work this? been on it weeks and no relief.

    • austin11
      austin11 paul20587

      Posted

      didn't work for me did both lexparo and zoloft wasn't till amitriptyline till i experienced relief its both an anti cholinergic - anti muscarinic which relaxes the lungs and muscle. my Dr is now checking me for Babesia and Mycoplasma and started me on Azithromycin per Dr hahn's asthma relief plan. Experiencing a ton of relief after starting this protocol. I had no idea that both mycoplasma and Babesia can cause life changing air hunger they litterally eat the oxygen inside your red blood cells

    • austin11
      austin11 paul20587

      Posted

      as the symptoms only got better. but would not resolve completely. both those illnesses are the most likely cause of air hunger

    • paul20587
      paul20587 austin11

      Posted

      interesting. seems like your doctors think outside the box, lucky! i do have a naturopath who gave me colloidal silver, ive seen online this kills these bacteria too. i will try and ask my doctor about testing for them though. idk if cardio doc will believe it though. what doctor ran this test for you to look for them?

    • mark21119
      mark21119 austin11

      Posted

      hi is this whats been agreed then that has caused your air hungar . how do you test for this

    • austin11
      austin11 mark21119

      Posted

      a pcr and igg/igm test for all of the above as well as a western blot and elisa test to rule out lyme disease babesia is the hardest to test for out of the groups. but if you type in babesia....or mycoplasma and air hunger on google the results are actually saddening a lot of people have this and have spent years wasted instead of treating the root cause.

    • paul20587
      paul20587 austin11

      Posted

      were you positive for any of these tests ever or did they assume you have it even though the titers arent raised or positive? ive heard they can be negative even though you have it. also how long will you be on antibiotic?

    • alma30132
      alma30132 austin11

      Edited

      Hi,

      Im having the same exact symtoms. please can someone who was succesful with this medication help me.

      please, at this point i feel like there is no help for me.

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