Chronic migraine for 4 years
Posted , 7 users are following.
Hy, this is my 1st post so I'm kinda nervous. Anyway I've had a migraine for 4 years and they only get worse, I've lied saying I dont have a migraine but I wanted to cry asking them to save me but I dont do that. My migraine is in my eyes then goes around like a wide headband. Then pain starts pulsing then turns into a dull pin stabbing the "headband" area.
I also just got out of the hospital from a horrible migraine, the Dr's said "I dont know what else we can do for you. Sorry" They couldnt even help... I'm 15 so thank you.
yona~
3 likes, 21 replies
Ginny_Weasley yona-
Posted
Yona,
I'm so sorry you have been going through this for so long. Have you seen a neurologist about your headache? It is important to get checked out to make sure something else isn't going on too. It sounds like you are in need of both a preventative medication and a rescue medicine. If you are already on those without any relief then there are options but your doctor will have to be on board. I was once in a state of constant pain and it seemed like nothing would break the pain cycle. There are medications that can be administered via infusion like in the hospital that are not the narcotic pain killers that get the doctors treating you like a drug addict. My doctor phones the ER and requests a DHE infusion with Reglan and Magnesium. Not all hospitals stock DHE so they should ask. It helped me so much I was able to leave without my sunglasses. (I wear them constantly)
I hope that you find some relief soon. I have received my fist round of botox treatment about two months ago and can already begin to tell a difference in my pain levels. Still daily, but less intense, a big improvement!
yona- Ginny_Weasley
Posted
Jennilee83,
My rescue meds only make it worse, prevention meds just got changed and isn't working. DHE was given to me and helped but my veins couldnt handle it and they said from the start if it damages too much we're taking you off. They sent me off with 4 shots of botox 2 in front, 2 in back. I have an appt with a neurologist soon.
Thanks for your help!! (I also wear sunglasses all the time ^w^)
yona~
StevenRose yona-
Posted
Firstly, there is ALWAYS something that can be done to help headaches, there are lots different meds to try and the first port of call is usually triptans, so if you havent tried them see your dr to ask about them. Then you need a preventative so talk to your dr about verapamil and pregabalin.
Next its ok to be nervous, its the same for everybody when they do something new like talk on a forum.
So, dont worry, you will find something to help your headaches.
Let us know how you get on.
Good luck and best wishes
yona- StevenRose
Posted
yona~
dawn80570 yona-
Posted
yona- dawn80570
Posted
Thank you I'll try talking to my Dr.
yona~
StevenRose yona-
Posted
its also a newer varient to gabapentin.
Please let us know how you get on Yona.
Best wishes and take care
yona- StevenRose
Posted
thanks for the detailed info! I'll update soon
yona~
franca_1712 yona-
Posted
You poor thing. My daughter is 12 and is in her 3rd month of non stop migraines so i can only imagine what you're going through.
Our doctor requested blood tests. These have come back as miss 12 being severely anaemic so her iron levels are in single digits instead of double and triple digits. Iron tablets were prescribed and we were told she'd need an iron infusion. Living in Australia, these aren't done to under the age of 14. By mistake, I came across a private paediatrician who had his colleague perform one within days. Migraines are now 8 and 9/10 instead of the average 15-17/10. (I ask miss 12 every morning where her pain is at) and very, very slowly declining.
She will be having more blood tests in a couple of weeks to see how iron levels are going as well as to test for coeliac disease.
Apparently migraines in children can be caused by anaemia. Coeliac disease is gluten intolerance and would usually upset stomachs, however in children, migraines can be the outcome.
I know I've rambled on but maybe go to your doctor and request a blood test and start eliminating.
I wish you all the very best x
yona- franca_1712
Posted
I'll ask my Mum about this. This was really helpful!!! thank you
yona~
patricia_82161 yona-
Posted
Be well and hang in there.
Keep us posted.
Patricia
yona- patricia_82161
Posted
Im doing all of the listed thing and have an appt with my neru in 2 weeks. I'll try watching more foods i eat, and working out more. Thanks for your help
yona~
dawn80570 yona-
Posted
yona- dawn80570
Posted
I just started gabapentin and am working up to 900mg a day. i hate taking meds so im not to excited nut this gave me a bit of hope. Thank you
yona~
dawn80570 yona-
Posted
yona- dawn80570
Posted
Ok I'll do that. Thank you
yona~
dawn80570 yona-
Posted