Chronic nausea for 15 years, still no answers!

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Hi all.

I'm posting this in the hope that someone can relate and offer some sort of help or advice as this has gone on far too long!

I'm a 25 year old female and I've had spells of almost constant nausea since I was around 10 years old. When I was younger it got to the point where I would just not eat (not helpful!) for fear of being sick, as I've grown up I've almost accepted that feeling sick is a part of my life now and I try to carry on/eat as normal unless I have a particularly bad "flare up". However I really shouldn't have to live like this!

When I first complained of it my parents took me to the doctors numerous times and at a very young age, after complaining the nauseous feeling was at the back of my throat, I was told I had reflux and given lansaprozole. When it didn't work whatsoever my dose was doubled until my mother actually complained that I was being given such a high dosage at a young age!

After this I just tried to put up with it. My final year at high school I was mostly off school feeling unwell! I struggled through but by the time I got to university I was fed up. I went back to the docs and this time was diagnosed with IBS and prescribed mebeverine. The most this did for me was reduce the gas and bloating that came with my upset stomachs but after a month of taking it it actually gave me nausea EVERY single day til I stopped it!

In recent years after finally realising how much this has been ruling my life, along with realising how bad my symptoms can get - nausea, upset stomach, dizziness, fatigue, headaches etc and sometimes feeling sick to the point of thinking I'm going to be physically sick, only to burp! I've finally gone to the docs several more times.

I've tried domperidone which helped a little but I was eventually taken off it as I still felt unwell, I tried omeprazole (mostly to please docs as they still insist its reflux) and was recently given erythromycin which I never took after a consultant was horrified I'd been prescribed it in the first place.

I've had a endoscopy which revealed I have a hiatus hernia (my dad has one too so must be hereditary) however I very very rarely get heartburn or any kind of reflux and my symptoms are not related! It also revealed an inflamed stomach lining but nothing else. I've also had a stomach emptying test which came back normal, I've been tested for helicobacter pylori NUMEROUS times over the 15 years and most recently I've had an ultrasound scan of my liver and gallbladder. I was referred to a consultant in the past few months who believes my symptoms are not stomach related, hence liver etc tests! I'm still awaiting blood testsbut no word yet. Im meant to get referred to a G.I but again no word yet.

The most recent tests have been over a span of one year so it's a terribly slow process! I have infact just been told my next appointment with the consult is 7 months from now which is frankly ridiculous. Hence I've come here!

I would greatly appreciate any help with this as its starting to take over my life! I've had years with no nausea at all but this has been over a year now with almost constant nausea. I've also been tested for celiac disease which came back negative, I've bizarrely never had stools tested despite upset stomachs and I've tried a lacto-free diet for two weeks which made no difference! I additionally tried to eat 100% healthily/no processed foods etc for two weeks which equally made no difference, still chronic nausea and fatigue!

Any suggestions on what this could be would be massively appreciated!

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    Reading this in 2023. have you found an answer?? im struggling with the same nausea thats been persistant for a year and a half. i just recently heard about SIBO and how a lot of GI docs dont believe in it but it's really gaining momentum and can causes persistant nausea...its a simple breath test! also would recommend getting your stool tested for hidden parasites.

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