Chronic pain

Posted , 6 users are following.

Hi - My name is Sophie.

I have suffered from chronic pain for just over 3.5 years and it is really getting on my nerves now!

I am only 14 and I have been in pain every day since it started.

Doctors are calling it Mal-tracked Patella fermerals, severs, and Chronic pain.

I find it really difficult to do much movement and so my weight has gone up and I am in need of excersizes which I am able to do. 

PLEASE help.x

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  • Posted

    Miss Selvin, look into Stem Cell Therapy. Look up and research all your options just like you researched this forum. I had it done 2 months ago. It is a very good option for you. EV
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    • Posted

      Dear knewneeh,

      Can you please give me some information on your stem cell experience. I have chondromalacia patella and this is something I have been considering. Where did you have it done?

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    • Posted

      Hello and yes certainly I can share my experience. I had it done in New Jersey, USA. On June 10 2016. It took about four hours with a break in between to set the next procedure. It cost me $7100.00. Included the initial consultation, procedure, injections and IV. All follow up also. Very little pain in procedure. No therapy afterwards or scars, pain medication or insertion of a foreign object in your body. There is a 90% success rate for all SCT that is orthopedic in nature. It requires a three month re coup. The USA is probably the last country to use stem cells to cure the body. It's been successfully used for the last five years in Asia.

      Hope this helps. EV

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  • Posted

    Hi Sophie. Have you seen a physio? You might be better off going to see one as they can advice you on what exercise you can and can't do. As you could end up doing yourself more damage if you just jump in and don't get any professional advice. I have had chedonic pain for nearly 20yrs so I feel your pain. Hope this helps.

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  • Posted

    I truly hope that you have some adult help or can seek someone out who can help you. You are so young n shouldn't have to go thru this alone. Hopefully u can start with a doctor who is a specialist in chronic pain, from what I know exercise is always a good solution to helping pain, as long it is done properly, scour the Internet for help ( not scams).  I use meditation to help with my pain, however it needs real concentration. Please, seek professional help, I hate hearing your in so much pain for so many years.  Healing prayers blowing your way..... ??????

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  • Posted

    Sending peace and love to you....... I'm so proud of your ability to communicate your needs and reach out for help.  You are older than your years.  Most of us with these terrible knee problems can relate to the time we first started to realize that something was wrong. On your own, without professional help which is sometimes hard to get, even for we older folk who seek it, you will face the frustrations of which you speak. Gaining weight is what we all have experienced when we are not as mobile as we would like to be. But at your age, I know it is even harder to realize and try to work with. You might try water movements on your own, but even there, you will not want to twist your knee the wrong way while suspended when you don't really feel the pain and then get out of the pool to discover you may moved that mal tracked knee in a way that is now hurting even more. Of course, I am just old, and not a doctor nor have medical training, but I have your patella problem along with more bone spurs and a particularlly bad rare disease as well. As I look back on my history, I can remember thinking that I ignored it all for a long time. Fortunately, you are smart enough to get out there and ask questions and I hope computer search all you can to keep informed.  Answers will come and I hope that you can have at least one good session with a physical therapist so that you can write down the exercises and repeat them confidently at home.  In getting your problem diagnosed, you must have encountered some kind of ortho guy. Did that person offer any solution to your problem?   Or were you just left hanging as many of us were in our experiences. "Where there is a will, there is a way!"  Be assertive and pro-active and continues to seek answers from your adult community. Haviing been a teacher for 43 years, it comes to mind that if your adult community is not supportive, perhaps a teacher-mentor can step up and seek help for you.  We are all in different countries and ortho help is quite different, but the driving force of getting help is the patient, himself/herself.  Once again I compliment you on your attempt to reach out and ask. Chronic pain can be relieved with various salves and ointments temporarily and certain pills called NSAIDS etc.  We usually don't  like to see young people having to resort to constant relief from them, so you see, you do need professional advice before trying them on your own. Do not compare yourself to any other young person who seems to be so active and content.  All people have problems to bear, some seen, some unseen, some solvable and some not so solvable. Your young friends are not you.  You, my dear, are something very SPECIAL !!

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    • Posted

      Thank you so so much. You made me tear up a bit x No one really seems to understand other than people who have been through it themselves. I hope you feel better x
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    • Posted

      I don't know if you feel the same but I sometimes feel like people are fobbing me of. I've been past from pillar to post.Over the years I have had one consultant look at my leg after one op and say "what butcher did that",which as you can imagine made me feel wonderful (not). I totally agree with what you say that people don't understand how we feel. Dealing with chronic pain on a daily basis is so debilitating and depressing. It's so nice to talk to people who are in the same situation as myself. I have my husband son and friends to talk to but they can't fully understand how I feel.

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    • Posted

      Have been told it won't get better only worse over time (if that's at all possible). Have been told it's a case now of managing my pain with drugs.If during my search and chats in these forums I find anything new he's willing to try for me. Which I will be doing more research into stem cell therapy that someone else had mentioned on here as he had had it done recently. I'm hoping it can be done on our nhs.

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