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I am 36. I have chronic prostatits for 18 years, that's half my life. My experience in the disease and treatment follows:
The pain is intense and cripling. I have to be in bed all the time. Intense spasms. Symptoms move from urethra to prostate, back,ass, testicles so when you feel you finished with a symptom there starts another. I also may have difficulty urinating and some time ejaculating. This condition has remained iddle for a total of 6 years out of 18 and whenever I feel it is gone I have a really good flare up the very next day. Idle means I am not in pain but I get to wet my pants after urinating.. That is the closest I can have to normal life. My sex life is not good because I get erectile dysfunction when chronic prostatits is active. When it moves to being idle there is a tendency for restoration of erectile capacity however it is clear to me that I do not respond to visual stimuli any more . Reason for ED is venous leakage. Location of pain is as such that I frequently check both my urinary system and intestines.
Findings: High bladder neck, non typical inflammation of colon, prostate has no infection
Medical checks so far: Urethroscopy, Colonoscopy. prostate, testical, bladder, kidney ultrasounds. urine and prostate fluid cultures.
All cultures have come back negative. Bladder ultrasound shows some urine remaining after fully urinating.
Experience with medication: I have used antibiotics, a-blockers, mesalazine for my intestines and cortizone (budecole). For ED I have used Viagra and Cialis.
When I have flare ups NO medication works to control the pain. Or it may work for some weeks and then all of a suddent stop working. Medication for ED seems to be effective provided my symptoms are either gone or are not too intense. Symptoms come and go and it seems I cannot really control them.
Psychological impact: I am desperate and seriously considering suicide when I have flare ups
Social impact: No friends left. I do not have the energy to move out of bed
Fertility: Thankfully no problems whatsoever. However I am extremely worried whether my offspring will have the same problems as I do.
Got to go to the toilet again...
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