Chronic Prostatitis

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I am 36. I have chronic prostatits for 18 years, that's half my life. My experience in the disease and treatment follows:

The pain is intense and cripling. I have to be in bed all the time. Intense spasms. Symptoms move from urethra to prostate, back,ass, testicles so when you feel you finished with a symptom there starts another. I also may have difficulty urinating and some time ejaculating. This condition has remained iddle for a total of 6 years out of 18 and whenever I feel it is gone I have a really good flare up the very next day. Idle means I am not in pain but I get to wet my pants after urinating.. That is the closest I can have to normal life. My sex life is not good because I get erectile dysfunction when chronic prostatits is active. When it moves to being idle there is a tendency for restoration of erectile capacity however it is clear to me that I do not respond to visual stimuli any more . Reason for ED is venous leakage. Location of pain is as such that I frequently check both my urinary system and intestines.

Findings: High bladder neck, non typical inflammation of colon, prostate has no infection

Medical checks so far: Urethroscopy, Colonoscopy. prostate, testical, bladder, kidney ultrasounds. urine and prostate fluid cultures.

All cultures have come back negative. Bladder ultrasound shows some urine remaining after fully urinating.

Experience with medication: I have used antibiotics, a-blockers, mesalazine for my intestines and cortizone (budecole). For ED I have used Viagra and Cialis.

When I have flare ups NO medication works to control the pain. Or it may work for some weeks and then all of a suddent stop working. Medication for ED seems to be effective provided my symptoms are either gone or are not too intense. Symptoms come and go and it seems I cannot really control them.

Psychological impact: I am desperate and seriously considering suicide when I have flare ups

Social impact: No friends left. I do not have the energy to move out of bed

Fertility: Thankfully no problems whatsoever. However I am extremely worried whether my offspring will have the same problems as I do.

That's all

Got to go to the toilet again...

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  • Posted

    Hi Mate,

    Have had very similar for 25 years (I'm 45) have had all the tests and treatments you describe, and also considered ending it all especialy during bad periods. Anyway don't want to get you down. I am presently receiving treatment called cystistat on trial in some areas by the NHS.

    It is substance which is injected via a cathiter into the bladder which is supposed to stimmulate the bladder lining to heal its self. I get this done aprox once every month and have had 10 treatments. I can't speek for anyone else but it has so far it has reduced the attack frequency of my problems by 70% which is increadable, and has given me back a good chunk of life again. It might not be for you but it is certainly worth asking your GP or urologist about.

    Google it for more info its not like the rest of the herbal/ mirical cure rubish we've probabley both ordered and taken out of desparetion.

    Best of Luck

    Kevin

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  • Posted

    [quote:02fd7b19ba=\"Drake\"]I am 36. I have chronic prostatits for 18 years, that's half my life. My experience in the disease and treatment follows:

    The pain is intense and cripling. I have to be in bed all the time. Intense spasms. Symptoms move from urethra to prostate, back,ass, testicles so when you feel you finished with a symptom there starts another. I also may have difficulty urinating and some time ejaculating. This condition has remained iddle for a total of 6 years out of 18 and whenever I feel it is gone I have a really good flare up the very next day. Idle means I am not in pain but I get to wet my pants after urinating.. That is the closest I can have to normal life. My sex life is not good because I get erectile dysfunction when chronic prostatits is active. When it moves to being idle there is a tendency for restoration of erectile capacity however it is clear to me that I do not respond to visual stimuli any more . Reason for ED is venous leakage. Location of pain is as such that I frequently check both my urinary system and intestines.

    Findings: High bladder neck, non typical inflammation of colon, prostate has no infection

    Medical checks so far: Urethroscopy, Colonoscopy. prostate, testical, bladder, kidney ultrasounds. urine and prostate fluid cultures.

    All cultures have come back negative. Bladder ultrasound shows some urine remaining after fully urinating.

    Experience with medication: I have used antibiotics, a-blockers, mesalazine for my intestines and cortizone (budecole). For ED I have used Viagra and Cialis.

    When I have flare ups NO medication works to control the pain. Or it may work for some weeks and then all of a suddent stop working. Medication for ED seems to be effective provided my symptoms are either gone or are not too intense. Symptoms come and go and it seems I cannot really control them.

    Psychological impact: I am desperate and seriously considering suicide when I have flare ups

    Social impact: No friends left. I do not have the energy to move out of bed

    Fertility: Thankfully no problems whatsoever. However I am extremely worried whether my offspring will have the same problems as I do.

    That's all

    Got to go to the toilet again...[/quote:02fd7b19ba]

    I have suffered with prostatitis for some years - especially bad two and half years ago around the time my wife died, (so I think stress can have a big influence). I had unrelenting pelvic pain which referred to my genitals and legs. No pain killers helped. I was eventually prescribed Lymecycline - this helped, but I believe that long term use caused (or maybe exacerbated latent) reflux throat problems, (so I stopped it). Meanwhile I tried Saw Palmetto and Quercetin. This combination got things under control. A few months ago I tried stopping Saw Palmetto - the symptoms returned within a week. More recently I had to change from 600 mg capsules of Quercetin to 2 x 250 mg because H & B stopped selling the 600 mg version. Within a few days my symptoms - having been absent for months - reappeared. Luckily, I have found an alternative source of Quercetin (650 mg capsules) and these have put me right again within 5 days. This all shows what a fine balance it can be. I would recommend anyone with chronic prostatitis to try 320 mg Saw Palmetto with 650 mg Quercetin daily - possibly needing to persist for 4 - 6 weeks before seeing the benefit.

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  • Posted

    sad when you saythat you have pain in your ass is it like a burning torn sensation do you have nasty pins and needles sensation in penis and testicle area doyour testicles ache i ask this as i have developed these symptoms in the last six weeks and am at my wits end .iam booked in for a colonoscopy but will not bother if these are the symptoms of prostatitis[b:65c9a77ea2][/b:65c9a77ea2]
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  • Posted

    I do this thing where I tighten all my abdomen muscles around bladder and prostrate I hold it until everything jams up. Takes several hours but then the prostate pain goes away and I'm left with some tolerable pain from my muscles being jammed up. Don't know how long I can get away with this, but the relief from the intense pain iss immediate 
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    • Posted

      Hey Floyd.  My name is Mark and I have had Chronic Non-Bacterial Prostititis for about 2 years.  Bactrim for me controlled the pain, but my doctor finally said he would not prescribe them any longer.  Now I have this debilitating pain that is just increasing as the last of the effectiveness of the Bactrim is coming to an end. 

      You can probably guess at the desperation and finding others seems to be the only avenue of hope because I read about different methods people try to get a handle on it.  I chose you only because you're the most recent discussion and would like to know the truth about what I'm headed for since my doctor is really cold-eyed now.

      Have you discovered anything? 

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    • Posted

      Mark, don't take any more antibiotics for a non-bacterial condition. Antibiotics can act as anti-inflammatories too. Google "antibiotics are anti-inflammatory agents in chronic prostatitis". Goof luck
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  • Posted

    Hi, I've just seen your post. I now consider myself fortunate that my episode of prostatitis lasted just 5 months. Mine was probably the post-op result of surgery for an enlarged prostate. After lots of internet searching I realised that treatment was hit and miss, with no guarantees from clinicians about a cure. However, there's lots of non medical advice for its' management and I tried them all. I made lots of lifestyle changes in an attempt to determine if anything I did was making recovery impossible or slowing it down. I've posted my observations on this site. I still follow the principles I noted that were (at the very least) not making my symptoms worse. Have you been prescribed Amitriptyline?  It's essential for use in the treatment of depression but apparently has a potential side effect of suppressing neural pain. It didn't work for me but my GP told me that it had for other patients. I hope you have respite soon. Best wishes, Inquisitive
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  • Posted

    See my post on this group. You sound very similar to me. My GP thinks its my pelvic floor and the other muscles in that area.  He has me on a small dose of Diazapam to relax the muscles and it seems to be working. If you google 'diazapam and prostatitis' you'll get a lot of information. 

    As your Urologist or GP to consider the cause not the symptoms. Good luck. 

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  • Posted

    Hello, after reading your story mine is of a similar caliber.  I am 40 years old and fell ill over two years ago.  It started with left kidney pain which lasted weeks and I was treated for a kidney infection.  For weeks I had this pain which led to severe headaches (they were that bad I was wearing my sunglasses at night as the light made my headaches worse).  Then came testicle pain and my feet swelling up.  I also had urination problems and pain. and most nights I would try to go for a wee and end up falling asleep on the toilet.  Sexual problems are also present, I could not climax at all and sometimes when I had the pain attacks erections were difficult.  I am very severly depressed and have tried commiting suicide once by cutting my wrist.  When you get a flare up the pain is unbearable and morphine only takes the edge of it.  The condition has cost me my job and my wife has divorced me.

    It took the medical prfessionals 1 1/2 years to make a diagnosis on my condition.  My current medication is pregabalin 150mg three times a day, anti-depressants, tablets for my urination and high blood pressure tablets.  For my pain I have a morphine patch, liquid morphine, codeine or tramadol.  At the moment I have left leg numbness and my left arm feels like it has been scoulded, this is also the same for my leg when the numbness wears off.  Due to the depression I am putting weight on.

    My life outlook is very poor.  I do not feel as if I could start another relationship as its not fair on the other partner.  At 40 this disease is a life sentence, all I need to know is when will it end?  My life not the disease.

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  • Posted

    I have had recurrent prostatitis for the last 12 years (36 this year). It started in 2003 when I contracted chlamydia from a sex worker in Thailand. The chlamydia was hard to treat, I took multiples doses of doxycyline, erythromycin, rocephin before being cured but somehow, it turned complicated and became prostatitis. Perineum pain, pelvic pain, painful ejaculation and pain after urine. The worst is the perineum pain, stinging sharp and burning pain. Like some of you guys, I comtemplated suicide too. The pain would come back almost everytime after sex and each episode would last for months, after bouts of antibiotics and painkillers. I was in and out of the STD clinic, was referred to the public hospital, undertook ultrasound, NAAT, swab, MRI, DRE and the results were always negative.

    The worse attack was probably in 2005, when the pain came back suddenly during heavy lifting of weights. It took me 6 months to recover after cocktail of antibiotics and painkillers.

    Finally in 2011, I visited another Urologist who suggested semen culture. The culture came back with Strep B in prostate and I was precribed Amoxiclav for 14 days. The pain subsided very slowly but I was eventually symptom-free for 2 years. But symptoms returned a few times from 2013 onwards. The first time it returned, I took another semen culture test, which came back negative and I was given painkillers for 14 days and the pain went away. 6 months later, it returned and I was given Urispas - a type of muscle relaxant and the pain went away again.

    I notice that prostatitis is somehow associated with heavy lifting while on a full bladder, the backflow of urine into the prostate/epidermis causes inflammation that becomes very hard to subside. In May this year, after rigorous training for 5 years, my symptoms suddenly returned. It started with a high fever and cough and after recovery, my left epidermis began to sting and the pain esclated to my scrotum. I took a course of Amoxiclav again for 14 days but the pain didn't go away so I went back to my Urologist who gave me painkillers and again the pain didn't subside. During my next visit, I was prescibed alpha-blockers Hytrin (Doxacine). Didn't help much either.

    I have scoured the internet and it seems alot of the information given are recycled from the main websites - mayo, webmd, maryland. But talk about non-bacterial prostatitis and nobody has a clue. Many of those holistic websites and forum look suspicious to me with people claiming to be cured by ridiculous methods like not using toothpast with Triclosan, learning karate, or stuffing garlic in the rectum.

    Right now, I am experimenting with Quercetin + Bromelian 1000mg daily, Vitamin C 1000mg daily, saw palmetto 320mg daily, magnesium glycinate 500mg at night before bedtime. I am also taking Oil of oregano (hailed as a elixir for almost everything - anitibiotic, antifungal, immune booster) with Echinacea Goldenseal to boose my immune system and eradicate Candida Albicans (in case the prostatitis is caused by fungus) In whatever case, the pain has waxed and waned since I started Quercetin. The saw palmetto improved urine flow but didn't remove the pain. I am not sure if oil of oregano is effective in treating fungal prostatitis but it has certainly cured me of flu and cough.

     

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    • Posted

      My symptoms have improved over the last few days, after consuming Quercetin + Bromelain together with saw palmetto daily. For the first 3 days, I took 1500 mg of Quercetin + Bromelain daily and now I am taking 1000mg daily together with saw palmetto 320mg and Vitamin C 1000mg. 

      There is still left pelvic pain along the testicle nerves but its bearable. I believe Quercetin + bromelain and saw plametto works to eliminate the inflammation and the Vitamin C heals the damage. 

       

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    • Posted

      I am both saddened and at the same time relieved to se others suffering with analogous symptoms.Over year and a half..first horrible rectal pain including big anal. fissures then burning pain in left testicle scrotum and penis...stabbing pain in back and pubic area..then mich worse pain in left scrotum. ..horrendous pain when I ejaculated where I should have gone to ER..Many tests and a few apathetic Urologists who could care less if there is pain and sex is an impossibility. .if their tests show nothing conclusive.I believe it is a viral infection myself...current Urology ifs initially treating it as enlarged prostate. However symptoms are very infection like .Using many herbs mentioned above. Best wishes to all on healing!
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    • Posted

      I'm curious if a semen culture would show anything that a blood work would not? So many of my symptoms coincide with Chlamydia and other infections...I tested for common STDS earlier in year and they came up negative. However earlier in my life I was extremely promiscuous w out using rubbers. ..so I am worried. ..it has been year and a half. ..that I may have caught something lying dormant that was triggered by stress.as it it I take much echinachia along with other herbs mentioned by other posters.
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    • Posted

      Yes a semen culture defenitly shows results that you will not get with a blood test!

      Blood or urine test won't show nothing!

      Tip: don't let any doctor fool you, by telling you a urine test will show the same results as a semen test because the urine goes throu the prostate. Its not true!

      If you can get a culture of the prostatic fluid ( fluid without the semen) its even better.

      So not masturbating, but after prostatic massage they can catch a couple of drops of prostate fluid coming out of your penis, these need to be tested! I am sure they will find something there that they haven't found before.

      After that, they test wich antbiotics it is not resistant to and you can start your treatment. ☺

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    • Posted

      Thank you for your reply.It is hard to get a Urologist to take the time They are in such a rush. .and unless the Urine sample shows something. .they are wanting to get on to their next patient.
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    • Posted

      Yes. When urine test doesnt show nothing they quick take a decision it is a chronic desease in stat of a bacterial infection.

      Wich is wrong!

      Just because they are incapable of doing the right test to really find the bacteria causing all the harm...

      Don't be easy on the doctors its your life they are talking about...

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    • Posted

      Thank you. I already took 20 days of Cipro.if it was bacterial don't you think that would have worked?.However the penis shrinkage due to this ongoing illness has me so depressed.seems like an infection ..but maybe vciral.really started entering penis from scrotum... (seminal cords) 4 months ago with tingling first. .then deeper pain.It's now been 1 and 1/2 years without any diagnosis.or real help. On my 5th urologist(first 2 of 3 said it was neurological. .neurologist said it was not...Had to go to ER last week..first time in 20 Years. .for horrible pain in peins...ER doc said prostate felt enlarged and boggy only on left side. .which is where symptoms primarily are..thanks again
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    • Posted

      Well I am having mini celebration. I hsd not had nthryroid checked since 6/15..and it was borderline low at that point. GP did test and it was extremely low...up in.dosage and will see endroconolgist soon...already penis has gotten fuller in flaccid state.That is one issue cause has been discovered for.may take many months for full recovery. Now to cure prostate and or infection.
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    • Posted

      No cypro doesn't help. The doctor prescript me cypro for 60days and it didn't help!

      Cypro will only help for urine infections, or infection from urethra, penis, testicles...

      From the moment the infection get into your prostate, cypro will not help anymore, because of the simple fact that cypro can't penetrate into prostate wich is a muscle that is very hard for medicines to penetrate.

      So if you discover your prostatis within the first week and you treat it rightaway with cypro for at least 30days, you have a chance to succeed BUT from the moment it is there for more than 1month it is impossible to treat it with oralmedicines, you can only threat it with direct injections in the prostate.

      SO: you need to get the same antibiotics you have been given oral, have them injected in the prostate: it can be cypro or ceftriaxone, azetromicine.... there are a couple they can choose from...

      I have had prostatitis for 2,5 years...

      Don't loose hope, there is a solution!!!

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    • Posted

      Cannot the cause of prostatitis be. a VIRAL infection as opposed to a bacterial one? I was not convinced of my current Urologist s guess that scrotal, penile and pelvic pain on left side was related to prostatitis until I went to Er and there dr.noticed boggy inflames prostate only on LEFT side of prostrate. I am taking supplements that are antiviral now...mn addition to herbs shown to help prostatitis. Thanks

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    • Posted

      90% of prostatitis is due to bacterial infection, most common is after having a STD in the past that was not treated properly can cause you prostatitis in the future...

      How ever when you already have prostatitis, your prostate is weak SO a virus can do you harm... BUT for people who has never had prostatitis, people who has a healthy prostate will not be affected by virus...

      So: you are only sensetive to virus after already having a bacterial prostatitis.

      FIRST THING to do is to TREAT the BACTERIAL infection...

      Herbs, massage, sit in hot water, drink lots of water will HELP to relieve pain but will NEVER HEAL you...

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    • Posted

      I must add /mention this..m the role of prayer whichever religion one may be in. I'd like to point out the day before I went to ER..I prayed fervently for healing or to remove blocks to healing ..as past 4 months in additon to pain my penis had been.shrinking at alarming rate..I was horrified. Well the next morning round 3 am I woke up with my penis in horrible pain that would not go away.decided to bite financial bullet and go to ER..where Doc noticed boggy inflammation only of side of prostate where symptoms were..and pain greatly subsided when he checked prostate (which to me proved prostate connection..I was not convinced before really ).However more importantly ER visit prompted me to call my GP not seen since July..whose nurse and GP cited I had not had thyroid checked since June and it was borderline low then.as I wrote before on site it tested Last week extremely low

      .and dosage of levothyroxine increased .I've noticed difference already. Penis pain reduced to level before.I fully believe prayers initiated the great penis pain etc.If.not for that i would.have never suspected connection as I was focused on other causes related to pain. Just thought..I'd throw that out there.Do not give up hope for relief..I mean as my penis kept shrinking with the greater and greater ED...I had actually contacted Dr's who perform penile implants.

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    • Posted

      Thanks for this info. One question as I am new to realizing many of my symptoms related to prostate at all.When you had your prostate infection. ..did it cause penis pain...in addition to pelvic pain?

      Thanks again.

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    • Posted

      I see... you are new at this...

      Prostatitis is the mean source of all your symptoms!

      I had: burning sensation from the urethra to the top of my penis; lots of urgency ( having to urinate every 15min); heavy pelvic pain; sensation like I had a tenis ball in my ass...

      I know people who has also lower back pain, swollen bladder, heavy testicle pain and lower abdomen pain...

      I lost lots of time in research of pelvic pain disorder. Then when I started the treatment I quickly felt that nothing changed, even started to get worse.

      Doctors push you in the wrong directions ONLY because they suck at testing, with all their test showing to be negative...

      I can't recomend you any treatment as I dont know what bacteria you problably have...

      Dont think about treatment, FIRST concentrate on going through proper testing...

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    • Posted

      I have been vaccinated for both types of Hepatitis already..mentioned to Africa previously. However I could not take the month off required..takes a long stay there from what I've read

      The cystoscopy I had last week horribly irritated all the pain and symptoms unfortunately. Everything you say rings very true.I'm gonna push my present urologist to.he said he would. To test prostate fluid...I wish there was a place in USA that did something as complex. Though thereally are a couple drs. Who put antibiotics directly into prostate in Usa.

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    • Posted

      Just wanted to add some info that may be usefull for everyone, for prostatitis, the first thing is to have a correct diagnosis, so that way your uros dont put you in the non bacterial type and just prescribe pain killers.

      For that, i consider that you should have a semen culture as a most important examen (in my case the urine culture was negattive and the semen culture was possitive for the bacteria). ist important that the semen culture its backed up whit the MIC antibiogram, my lab didnt do that and know i have a prescription of an antibiotic that seems to be helping but its like shooting blind. Its important to repeat the culture 15 days from the end of the medication to see if the bacteria was killed or if it created resistance. Another issue that i consider important its to manage stress and depression for that i woudnt suggest psychiatric medications as they have side effects, (im just recovering from some of them that cause me terrible nightmares and other issues when you try to left these medications). Im just replacing them whit homepotahy and acpuncture sessions, these last is was worked the best.

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