Chronic Prostatitis

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I am 36. I have chronic prostatits for 18 years, that's half my life. My experience in the disease and treatment follows:

The pain is intense and cripling. I have to be in bed all the time. Intense spasms. Symptoms move from urethra to prostate, back,ass, testicles so when you feel you finished with a symptom there starts another. I also may have difficulty urinating and some time ejaculating. This condition has remained iddle for a total of 6 years out of 18 and whenever I feel it is gone I have a really good flare up the very next day. Idle means I am not in pain but I get to wet my pants after urinating.. That is the closest I can have to normal life. My sex life is not good because I get erectile dysfunction when chronic prostatits is active. When it moves to being idle there is a tendency for restoration of erectile capacity however it is clear to me that I do not respond to visual stimuli any more . Reason for ED is venous leakage. Location of pain is as such that I frequently check both my urinary system and intestines.

Findings: High bladder neck, non typical inflammation of colon, prostate has no infection

Medical checks so far: Urethroscopy, Colonoscopy. prostate, testical, bladder, kidney ultrasounds. urine and prostate fluid cultures.

All cultures have come back negative. Bladder ultrasound shows some urine remaining after fully urinating.

Experience with medication: I have used antibiotics, a-blockers, mesalazine for my intestines and cortizone (budecole). For ED I have used Viagra and Cialis.

When I have flare ups NO medication works to control the pain. Or it may work for some weeks and then all of a suddent stop working. Medication for ED seems to be effective provided my symptoms are either gone or are not too intense. Symptoms come and go and it seems I cannot really control them.

Psychological impact: I am desperate and seriously considering suicide when I have flare ups

Social impact: No friends left. I do not have the energy to move out of bed

Fertility: Thankfully no problems whatsoever. However I am extremely worried whether my offspring will have the same problems as I do.

That's all

Got to go to the toilet again...

5 likes, 52 replies

52 Replies

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  • Posted

    sorry to know that. do you have your prosdtatitis cured? if you don't i think you should try some home remedies such as massage and so on.they are helpful.
  • Posted

    hi i totally understand i am now going throw what what you said where do we go from here one battle after another
  • Posted

    I'm so sorry for you. I went (and am still going through) very much what you are going through.  My prostatitis started when I was 28 and I'm still fighting it today at 48.  

    I did have some brief periods of rest. After a year on Bactrim, the pain went away.  I thought I had beaten it, but it came back a few years later.  This time I haven't found an antibiotic to help, and I've been on TONS.

    One thing that really helped me with pain and kept me sane was tramadol.  I was on oxycontin and  they kept raising the dosage with no appreciable results.  My doctors were beginning to think I was a junkie when a urologist mentioned that tramadol worked very well for that region of the body. It's still a controlled substance, and yes you can become addicted, but it was literally a lifesaver.  It worked like an on/off switch that would completely take all the pain away for 4-5 hours. Also the doctors are much less hung up on giving out tramadol vs. stronger opiates.

    Hang in there. 

    Good Luck

    • Posted

      Hello.

      The is may sound strange. Butl with your prostatitis. .especially if you had tingling and pain in penis...did you experience your penis shrinking .especially in flaccid state?

      Michael

  • Posted

    Hey Guys, thought I should come back to give updates to my condition. Long story short, I have had epididymitis/prostatitis since 2004. It was very very difficult to treat. In 2011, I finally went to see a specialist who did a semen culture test and they found strep B in the semen and I was given Co-amoxiclav for 14 days. I was trouble-free for 2-3 years but in between, the pain would come back suddenly but subside after a course of painkillers [naproxen/diclofenac]. I also had to get up several times to the toilet. Each time I relapsed, I went back to my specialist and underwent another semen culture test, each time the result was negative.

    Since last year April, the pain came back with a vengeance and has not subsided. I went back to my specialist who did a semen culture test again and again the results were negative. I was really helpless. In between, I took 2 courses of Co-amoxiclav and 1 course of doxycycline plus 2 courses of ibuprofen, as well as all those natural antibiotics out there that claim to kill off whatever infection that tests could not find. I also did the magnesium treatment 2x but the pain persisted.

    Finally.. Guys listen carefully, I did deep googling, studied medical journals, and finally I suspected, the infection could be caused by Yeast. I switched hospitals, was referred to a urologist who disbelieved my suspicions. That fellow is a clueless dude. I insisted for 2 semen cultures to be done, 1 for bacteria and 1 for fungus and I insisted that they wait 5 days before confirming the results. 2 doctors displayed disbelief and made stupid remarks "You need 5 days? the standard duration is 48 hours, which is sufficient to grow the bacteria" and No, I insisted 5 days.

    So.. they found yeast in the semen finally. If I hadn't insisted for 5 days incubation of the test, likely they were going to tell me "oh, there's nothing wrong with you, we found nothing" Instead, the 3rd doctor who attended to me said "hmm this is rare, I am not an expert in this field, I gotta transfer you to the Infectious disease department". The 3rd doctor didn't even know what medication to prescribe me or how many days dosage.

    I tell you guys, don't give in to the theory of no bacteria until you have tried a semen culture for yeast and bacteria. Insist for 5 days. All the medical guys all there who say fungus is rare, its because they never test for it and when they do, they don't culture it long enough. The 48 hours regimen is not sufficient to culture such elusive bacteria/yeast.

    I demanded to speak the to their senior management for explanation and they slotted me for the earliest appointment with the Infectious disease clinic.

    I will come back to update later.

    • Posted

      Hi, Thanks for your very interesting addition above. Did you get treated for the yeast infection? Has it cured your Prostatitis? I have had, what I am told is Chronic Prostatitis, for the last 6 years. They cannot find any Bacteria and I am thinking that it may well be a Yeast infection. Please let me know, Kind regards Rob
    • Posted

      Its so interesting to see that many of us, that have the condition, work ourselfs so hard trougth the medicals system to get a correct diagnosis and prescription.

      But dont know how you did for the lab to grow it for 5 days im sure that if i try that, it will be refused by the lab, anyway in my case they manage to find it whitin the 48/h but they didnt do a MIC antibiogram  ( !"#@)so im shooting blind whit the prescription.

      Still curious about what happended whit you, and what the infectologst do.

  • Posted

    Hi  DO you have any further updates?  My story is similar to yours
  • Posted

    A little off topic but hoping for information....

    I took tamsulin and finistre for 6 months.  I stopped because I was not seeing any reduction in the number of times I get up at night and also I had begun having discomfort in my prostate area throughout the day.   

    Anybody else have this discomfort?

    Also, now if I get up from a sleeping position, I cant start urinating.  I must sit down, begin, then stand up.   It seems like something inside me is shifting around.  Anyone else experience this?

  • Posted

    Im 35 now and have had this since 26.   I find that my symptoms always include a jelly like secretion after urination first.  Then quckly i start to get burning.

    Currently, Im wrestling with burning anus and penis and urination which is freakin terrible.  In addition, this pain is starting to move into my thighs and the back of my legs.     I swear my feet are burning too.

    Hot baths temporarily help.   I run A LOT and foam roll and stretch a ton.    I just started on Saw Palmetto, and Im going to get some magnesium today as I've heard that works very well for some folk.

    Antibods are a joke.  I had them when I first got this issue and they might as well have been placebos. 

    I've dont pelvic pt in the past and idk if it helped much but i'm going to start again.  

    Can anyone lend any success stories with magnesium and/or pelvic PT?

    I feel like our condition needs to be taken much more seriously than it is.

  • Posted

    I am 16 and I think I have the same problem for about 5 years now,but it's been start acting up more frequently lately,does anyone know if this disease causes infertility cause I checked my semen and it looked yellowish???? ....

    please help

    • Posted

      I've read it doesn't impact fertility. Yellow baby batter could be a side effect of the issue or nothing at all.

      Not much is known about this stuff but so far there hasn't really been proof of prostatitis causing infertility

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