Chronic Prostatitis

Yes there are. Your urologist should refer you to one. If not, get a new urologist. Also tell the urologist to consider a prostate inflammation NOT caused by a bacteria or a virus. Sometimes prostates just get inflammed, for example, by a procedure such as a PAE, or Urolift. The solution is simple. You take an antiinflamatory such as Ibuprofen. BUT DO NOT DO THIS WITHOUT MEDICAL SUPERVISION. IBUPROFEN CAN BE SEVERELY HARMFUL TO YOUR KIDNEYS.

Neal

I wonder if when they do the TURP if the prostatic fossa is injured in any way. Also the bladder neck muscle, this is eliminated when a turp is done. I wonder if these could be major causes for sufferers !!!

Hello Neal. I am just curious have you heard of the PAE procedure causing inflamation before?

Reason I ask is I had the procedure back on Jan 26th, 0f this year. I had a bad allergic reaction to what they think was the beads used to block the arteries. But ever since I have had prostate pain, and pain after ejaculation.It is almost like a spasm.

I have been on 4 different  antibiotics including an injectible. And have also done 2 prednisone packs. With very little relief.The last culture of the prostate fluid 3 weeks ago showed almost no infection.

I finished the last of another 3 week round of antibiotics tonight for that.

I had an MRI with contrast of the prostate 2 weeks ago, which showed inflamation.

The Doc that done my PAE would like for me to come back and see a urologist that he works with, but its not clear if there is anything that can be done.I am not sure about that considering it is an 8-9 hour drive.

Apparently once the beads are implanted, they are permanent. If they are what is still causing the inflamation, the only remedy is to completly remove the prostate.

Just really wondering if anybody else has ran across this problem, and if so if there is any solution other than the most drastic.

Thanks 

Hi Joe,

Yes, I heard about the PAE being one possible cause of inflammation from the doctor who did my PAE. He is supervising me on a course of Ibuprofen, and it seems to be helping a great deal. My symptoms were frequent urination, and getting up at night to do that, and some difficulty emptying my bladder at night unless I waited around a few minutes to urinate 2-3 times. All that is getting better now. Please DO NOT DO THIS WITHOUT MEDICAL SUPERVISION. It can cost you a kidney or two unless done properly. That said, it sounds like whatever the cause, you have an inflammed prostate, and supervised Ibuprofen would help. I would look for a urologist closer to home to help.

Neal

Also, Joe, the beads themselves are not likely the problem, just doing a procedure can be a problem. Your body thinks that the procedure is a threat and starts an inflammatory process. Have you ever sprained an ankle or something and seen that part of your body swell up? The swelling is a sign of inflammation, but there's no bacteria or vitus involved. Then the body sees the initial swelling, and causes more inflammation, etc. etc.

Neal

Yes I understand that but I had a really bad reaction to something during the procedure and broke out in hives from the neck down, and still have several spots on my torso that will not clear up. Thats why the Doc thought I might still be having a reaction of some type to the beads, since everything else that was used would have long simce sleared my system.

Has the dye used in the imaging been considered?

Neal

Yes that was the.first thing we thought of. But the same type was used the first day for the CT scan and had no reaction. The reaction started within an hour of the procedure. Also the reaction seems to still continue.

Allergic reactions can be cumulative. I am not a physician, but I agree that it is unusual that the reaction would continue this long. What do the doctors say? It sounds like you also should be talking to an allergist.

Frankly, Joe, I disagree. There is obviously something wrong, and it must be successfully addressed. I don't know where you are, but you must take the bull by the horns and scream bloody murder until that happens.

There must be other experts in your area, and if there aren't, then go somewhere else where there ARE competent doctors you can see. Your health, and your quality of life are your most important assets.

I live in Florida. I needed a penile implant, so I did the research, and found that the most competent person in the country to do that is in New York City, so I went there and had him put one in. I needed a PAE, and ended up at UNC for the same reason.

I am not rich, but health and quality of life are more important to me, particularly at this stage of life, I am 74, than a new car, or a great vacation. Please reconsider your wait and see approach and keep plugging away, doing your research, and dealing with the incompetent doctors until you find one who knows what the hell they are doing, and resolves your issues. I know it's a pain in the ass, (or prostate) to do this, but to do otherwise is to curl up and wait to die.

Neal

Thanks Neal, and I know you are 100 percent correct. I also went to UNC so Im fairly sure we had the same Doc. And I certainly have faith in him, but I dont think he has ever had anything like this happen before either. He did tell me had filed a report with the FDA about the abnormal reaction to the beads. Not that that helps me any tho.

When I suggested finding a local urologist willing to treat me, he asked me to come back there to see a colleague that was familiar with the PAE procedure. I am fairly sure he thinks if I go to a local urologist they are gonna tell me I made a mistake having the procedure done, and now I need the prostate removed. i swear you try to do something to improve yourself and it back fires lol.

Thanks for listening

I also hear you, Joe. It's a terrible thing to have procedure done and have it backfire on you. I had a procedure done on me and I have been paying for the last six years with depression. I don't know if there is a light at the end of the tunnel, only GOD does!!!

I hear you Steven,it is depressing to be sure.But we gotta keep trying..