Ciprofloxacin poisoning?

Posted , 73 users are following.

Hi All - I was prescribed a course of Cipro and Diclofenac (NSAID - apparently not a good idea)

and after day one I had to call my GP as I had anxiety, stomach problems and shaking - of course they said can't be the Cipro keep taking it. After 5 days I couldn't go on, so agreed I would stop - then after a couple of weeks the pain hit - severe muscle cramps, pain in joints, leg pain, headaches, neck pain, and worst of all severe anxiety, some of this has cleared up but 5 months later I'm still suffering.

I noticed there haven't been any posts on here for a while - is there anything happening in the uk to make people, Doctors etc more aware of this poison, are there any known legal actions against the makers by someone in the uk?

It seems Cipro is prescribed as a first line drug for relatively minor problems when something else would be better - to be honest I would rather have put up with the original symtoms than go through this. The worrying thing is how long will it go on for - it is very difficult to function at work when you feel this way

regards

Mike

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  • Posted

    Hi there

    Sorry to hear about your experience with ciprofloxacin. It sounds like you've had quite a severe adverse reaction to the medicine. Nausea/vomiting and diarrhoea tend to be the main side effects to watch for although muscle and joint pain can occur rarely. You are right in that the combination with diclofenac should ideally be avoid. In my experience I have not come across many patients in the community being prescribed this by GP's - there is a lot of bad publicity around the drug particularly surrounding the risk of C.diff infections in hospital, so I hardly ever see it.

    Tarun (hospital pharmacist)

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  • Posted

    Hi Mike

    First I'd like to say there are not many people on any UK forums complainting about cipro, so maybe we are the real unlucky lab rats. I have been thro hell since April 2012 and still am. I have been house bound unable to walk for 80% of the 16months. I have 20 major problems, yet I was a fit cyclist/walker.

    I was tricked into cipro because no discussion with the medic. When I spoke to 3 seperate Pharmacists, none had anything to say to help me except 'see your doctor' and 'dont read forums. Does anyone have a clue? I doubt it.

    Regards

    John

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  • Posted

    Hi Tarun/John

    Thanks for your replies, I agree, from the research I've done, mostly it seems people in the US posting stuff about Cipro - which is interesting since from what I've read, they are more careful with it over there, in fact the FDA wanted to ban Flourine based drugs and some companies voluntarily stopped making them but Bayer who make Cipro refused and I understand the legal process to get it stopped could take years!!

    Been to my GP this morning and latest diagnosis is Fibromyalgia - but guess what it appears that can be triggered by Cipro - anyway now awaiting appointment with some sort of muscle specialist.

    John, like you I was 2 x week at the Gym and 50 mile bike rides at the weekend, now all I can do is a very gentle Gym session and even that is very painful the next day.

    As a matter of interest, how long did you take it for?

    All the best

    Mike

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  • Posted

    mike

    May I begin this by redacting 'Tricked into Cipro' I chose the worng words. I should have said 'I blithely took Cipro thinking it was a type of penicillin and put my faith in the young doctor'. He said to me we'll hit it hard, well it certainly did that. I still think its difficult to beleive the damage that cipro can cause. Its no wonder Doctors disbelive their patients, no one informed would deliberately prescribe drugs to ruin people's lives like this. I think I am probably disabled for life. I took 14(750mg) tablets in one weekike could i,.

    Mike could I ask you what cipro you were prescribed and what specific effects are you enduring now. How do your family/friends feel about your situation.

    It is obvious you have aquired much knowledge on Bayer and cipro, but have you come across the stories in the Daily Mail and New York Times

    John

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  • Posted

    Hi John

    Well like you I took the Doc's advice and took the tablets, I took 12 x 500mg over 6 days before I couldn't stand the side effects anymore and called the consultants secretary and told them I wasn't taking them anymore (it was for a suspected Urinary/prostate infection)

    The initial side effects while I was taking the tablets were mainly severe anxiety, but also they seriously upset my stomach with bad stomach pains, I was also taking Diclofenac at the same time, and from what I've read you should not take NSAID's and Cipro at the same time as it makes the side effects worse (if that were possible)

    The bad bit kicked in about 2 weeks after I stopped taking them, with really bad muscle cramps in my upper body, chest. shoulders etc along with anxiety.

    The anxiety got to a point where I couldn't walk out the front door to go to work - I just froze - thats a hard one to explain to someone who hasn't experienced it. My GP put me on Lorazepam which really helped the muscle pain and anxiety - for me it worked like a dream but it's really addictive so I'm trying to come off it and change to pregabalin which is less adictive but it doesn't seem to be doing much and I still need a small 0.5 mg dose of Lorazepam to keep things under control.

    The main symptoms 5 months on are pretty bad headaches all the time, they mainly feel like tension in the head but sometimes really sharp pains, severe neck and back pain and muscle cramps, pains in most joints of legs and arms.

    I've kept the details from most of the family and only my partner really knows, she is very supportive but I've had some really bad depression at times and understandably she gets very frustrated because of my negative and angry behaviour.

    I think I;ve been lucky comparatively, from what you have experienced, although I'm constantly worried things will take a turn for the worse because of what I'v read about symptoms appearing for a long time afterwards.

    Sorry, this is turning into a very long post, but yes I found the daily mail story and I actually contacted the journalist who did the piece and had a chat with her. I'm not sure I've seen the New York Times one though.

    Have you tried any of the suggested "detox" methods that are around like taking Iodine and other supplements and some other ones - I think Boron or Borax is a possible as well but I really don't know how safe or effective they might be.

    cheers

    Mike

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  • Posted

    Hi Mike

    Sorry for the delay since your last post, its due to my friend Cipro who I met 16 months ago. I had to,attempt an essential repair to my conservatory roof (my haven) which threatens to collapse leaving me completley housebound. I spent 2 hours (i.e 15 mins on 15 mins off) which left me in a wretched state much worse than I anticipated.

    It occurs to me that the knock on effects are extremely life changing in so many ways, not just pain and suffering. These do not get recorded in medical notes.

    Re your last post

    1 I too had a suspect unirary/prostrate infection and a suspect diagnosis, (ended up 50 times worse) and a very uncertain future .

    2 I have done nothing regarding De-Toxing, I was waiting to see a GP again, but 13 months have now elapsed. However I am going to try Q10 this week.

    3 I am intrigued to talk to you about the mail story and other things.

    Finally would you be willing to contact me if I set up a seperate emaill address to discuss some points in more detail.

    John

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  • Posted

    Hi John

    No problem about the delay, hope you got the roof sorted ok, I know what you mean, sitting in the conservatory sort of feels like outside and I like it even when its raining hard, I often sit in our conservatory when I get home from work and read of just do nothing for a while.

    I'd be happy to talk further about the mail story, but as you suggest, probably best done via email.

    Will be interested to hear how the Q10 goes, didn't know what it was - but just googled it!

    I'm trying someting called Muscleze from our local Revital store, the guy in there was very knowlegeable and seemed to know something about Fibromyalgia and it's symptoms, which are much the same as the side effects of Cipro. It contains lots of Viatmin B (all types) magnesium which apparently is very good and calcium and much more. I'm also taking Vitamin C supplements and a probiotic for the gut bacteria

    (of course there is a theory that Fibromyalgia could in some cases be CAUSED by drugs like Cipro - which is why it is getting more prevalent and doesn't have any known cure)

    Only been taking it for a couple of days so to early to say if it helps at all

    Let me know the email and we can communicate further

    All the best

    Mike

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    • Posted

      Hi Mike,

      I'm richard in Sheffield Uk and I'm really struggling after taking cipro for prostatitis. I can't stop my legs from shaking and I feel incessantly light headed. I had the cipro for 8 days and took 14 poisonous pill. Would you please message me to chat as I'd love to know that you're doing ok now. Cheers Richard 

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  • Posted

    Mike

    I have sent you a reply with a disposable email address but it has been stopped and is awaiting apporaval

    John

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  • Posted

    Mike

    I am new to e-mailing so I did not realise that the rules stop exchange of addresses etc. Is it ok to go back to where we left off ?

    If you agree, I would love to hear what you learned from 'taking antibicotics ruptured my tendon'. Did you get any impression of how many people suffer from cipro in t he uk each year/.

    Hope to hear from you

    John

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  • Posted

    Hi John

    I didn't realise it would stop exchange of emails either, how strange, anyway, happy to continue the discussion on here

    When I first started getting the strange symtoms, I started googling and when I found all the other people with similar stories I was getting very angry, and then having discovered the Daily Mail article during my research, I think I googled the journalists name and found their website and from there dropped and email and much to my surprise they phoned back.

    We had quite a long chat, but I don;t remember how many people had been in touch, but what was interesting was how many didn't want to be identified. Nothing specific came out of the conversation and at the time it felt good just to have a vent at someone who understood the problem.

    The problem is I feel very torn between wanting to do more about the situation, but I don't know what direction that would take, and not wanting to because it's a massive step to start on that track.

    I understand from what I've read that most of the legal actions against the manufacturers have failed anyway. I'm not even sure that would be the way to go, because it obviously works for many people and I'm sure saves many lives

    My main issue is with the consultant that prescribed them for what was a relatively minor issue, and to be honest I would rather have put up with if only I'd know what would happen.

    One interesting development though, went to see this rheumatologist last week, and he was the first doc I've seen who acknowledged the possible effects of Cipro - his words when I mentioned that I'd been on them were "Oh, Cipro that's an interesting one", turns out he had been prescribed them, but being in the business, he'd read about the effects and decided not to take them, but he admited that they can certainly mess with your head.- Thats a start because no one else believes that or at least they are not owning up.

    All the best

    Mike

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  • Posted

    Hi There

    I am from UK and living in Scotland. I was prescribed Cipro at the end of last year for 3 weeks (twice a day)and then again for a further 6 weeks in March / April this year. I was prescribed this drug for suspected prostatitus however this drugs appeas to have solved nothing and at the time of taking them I had a constant pain in my upper abdominal pain (where it felt like there was a war going on inside!!) and constipation,. Nonetheless I followed the doctors advice and finished both prescribed doses, however, months later the constipation has disappeared but I still have a constant adbominal pain and gas with bloating in the upper abdomen radiating through to my back.

    I have had numerous scans, tests and exploratory procedures carried out but none of the doctors can provide any splution or assistance. My gaestroenterologist last week basically said there is nothing further he can do for me and suggested i revert back to my GP.

    Not sure if anyone else has experienced anything similar but thought I d share this just in case.....

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    • Posted

      Good evening,

      So I was in the medical field for 20 years and ended up needing to take cipro for 30 days at 2 pills a day and they were 500mg. I was healthy and had no issues (besides prostate issue) so I started it on Monday. By Friday I had severe constant pain behind my eyes that would not go away and I felt sick to my stomach. This started in April of 2016. It's now March of 2017. I am still sick to my stomach from day to day. Eye pain has slowly gotten better but stools have been inconsistent and at times the same complaints as you. I had X-rays and labs drawn for 7 months. Every month I went for new labs and it was every test you could think along with a colonoscopy and endoscopy. Everything came back normal. That's a good thing. Everything was consistent. I had even went to the ER twice and an IV helped a lot. So fast forward a year later and the symptoms are lingering around and just won't go away so for me and my history in the medical field leads me to believe this is temporary or permanent nerve damage. My pcp thinks I am fine. My gastro doc says it could be from cipro but both my scopes for my age were really healthy and zero signs of anything but I know I am not 100%. I am at best 95% and some days I can dip down to high 80s. I am hoping some day it will just go away but just today I felt sick to my stomach after 5 days of feeling ok. This is almost a year after finishing the cipro. Only thing I changed in my diet was sunflower seeds and a turkey sandwich this week. So for whatever reason my stomach has a sensitivity to seeds and turkey. Same think happened a few weeks ago with the same food. So now I honestly should have never taken cipro. All the side effects hit starting 5 days later but my prostate got better. Also had a psa tests done and those were normal. I have a year follow up with my gastro doc in a week and at this point I am just living with this nerve damage as there really isn't anything they can do and they never really figured out what I was sick with. It was the cipro side effects.

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    • Posted

      Hi Chris,  you're quite right, it was the Cipro!  Did you see the FDA announcement last July about strengthening the warnings for Cipro and all the FQs and also restricting their use for certain infections as the risk of permanent damage outweighs the benefits?  You'll easily find it if you have a search.

      Are you in the US?  There are many more help and support groups than here in the UK but I can't give you links here.  If you go to this discussion

      http://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

      you'll find useful links including one to Floxy Hope which gives excellent info, references, articles and recovery stories.  One article says how Cipro can damage your gut for at least a year (or maybe more in your case as you took plenty!) so you need to help your gut with good probiotics, healthy food (no junk) etc.  Just about everyone who's affected has loads of tests done and they all come back clear so the doctors say you're fine - which you clearly are not!  Never take Ibuprofen or any other NSAID, or any steroids - they can make it a whole lot worse and kick off symptoms you didn't know you had. 

      Go to Floxy Hope and have a good look round on there.  Good luck!

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    • Posted

      I did look around there. Thanks! I will say that sleeping helps or just lying down. Every morning when I wake up I feel 100% fine and about 10 mins after I get up I get all the symptoms again. It gets so old. So when can you start taking Motrin again? Never or when this hopefully all goes away? I live in the US. Cipro was used as it was the best course of treatment for what I had. I am allergic to all cillins so I couldn't take any of them even if I wanted to. I knew it was Cipro once everything came back normal. I saw everything and the scopes. I used to read these to patients. So now it's been 11 months of slowly getting better. One last thing. I was flown off a cruise ship for being ill. Folks that have this condition don't ever go on a cruise ship. It makes it 10Xs worse but I went on advice from a doctor to clear my head and it was maybe just what I needed. Wrong. The doctor on the ship thought I had colitis and I was flown out of Cabo back to California and right into the ER. I lost 15 pounds in 48 hours. I wasn't seasick at all. I was so dehydrated. I would take a sip of water and in 30 mins I was in the bathroom. Sleeping didn't help or laying down. ER doc started me on Brat diet and said I needed rest. It worked. Labwork all normal again. I remember the ER doc saying I shouldn't worry as I have no signs of any cancer or any illness. I sad then you need to find a medication that cures cipro use. Lol. Anyway thanks again for your reply.

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    • Posted

      Hi!! I was so glad that I found this post. Well. I had symtpoms of bladder infection or uti, so I called my urologist about a week ago. I left her a message saying that I think I am having an uti again, so her MA called me back with prescription sent to my pharmacist. The medication was cipro 500 mg twice a day for 7days. I took one yesterday and another one today, and I got this side effects right after the second pill. I have joint pains in my hand. I got up in the middle of the night because of this pain!! I am going to call my gp and ask them if I need to keep taking it. I am not even sure if it was uti that causes lain in he first place since she did not do any urin test!! I cannot trust doctors anymore! I am also worrying about getting antibiotic resistance because of this cipro! I heard that I can get antibiotic resistance if I stop taking it or the medication is misued/ overused!!! And one of my good friend who is a pharmacist told me that cipro is reserved for more serious infectio and it should not be used like that!! Hope this joint pain goes away if I stop taking med!
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    • Posted

      Hi, I just replied to your post in another thread so please take a look for it.  You're wise not to trust doctors, especially about Cipro and the other FQs!  Had you taken Cipro before this?  It's shocking that doctors will hand out this drug without even doing a simple urine test.  Your pharmacist friend is absolutley right.

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    • Posted

      Hi there I had exactly same. I took myself to A and E and was mega freaked out at how bad the abdominal pains were. It's nearly 6 days since I took my last cipro and I can't stop my legs from shaking. The stomach cramps and abdominal pain has nearly gone but the feeling I'm left with is dizziness and like I've had 10 double espressos one after the other. 

      I'd really be grateful if you would reply and share how you're doing now. Cheers richard 

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    • Posted

      Hi Eks,

      I was curious how you are, and how you are feeling after Cipro.  I had only one pill of Cipro, and had painful legs and vision disturbances.  Have you symptoms improved at all?  I am hoping that 1 or 2 pills of Cipro would indicate a temporary effect or just the effects from magnesium depletion, and not serious side effects.

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    • Posted

      Hi Anna,

      You say that you hope taking one or two pills of Cipro would indicate a temporary effect - it may or may not.  Only time will tell!  Some people are very ill after just one pill and others can take many, many courses before they have any problems.  Hopefully you stopped soon enough and your painful legs and vision disturbance will soon go. The reaction to spicy food may indicate your gut is struggling, especially if you are normally ok with spicy food,  and you should maybe take some probiotics (capsules or just live yoghurt is good).  The Cipro will kill off all your friendly gut flora so you need to help them get established again. Oh, just re-read your post and it was spicy food not a UTI!  OK!

      If you had these reactions to just a couple of pills you should maybe make sure you are NEVER given Cipro or any other fluoroquinolone again.  Your next time may not be so good.  Take care.

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    • Posted

      Hey Anna, how are you feeling now?? Thankfully, I do not have any symptoms I mentioned above anymore! I think I suffered about 2weeks and all those joint pains were gone!! So I hope your symtpoms go away soon!! 
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    • Posted

      Eks, thanks for your reply.  I am actually doing better, sometimes my eyes feel tired or knees/ankles achy, but I know I am improving.  I think I dodged a bullet by having only one pill. The one pill still caused weeks of hell/fear, and an emergency room visit. I am taking high grade Thiamine for mitochondria repair, 800 mg of Magnesium Glycinate, and some D3 to assist my recovery. Someone else I spoke with had only one pill, and they lost their short term memory, sense of time, and suffered neurological issues for many months.  I truly hope this hateful medication is removed from pharmacies, and only considered in hospital settings, and only after full disclosure of potential severe side effects to the patient.  I am very glad to hear you are doing better!  X   
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    • Posted

      I don't know which countries you and Anna are from but if you can, please do report your experiences with Cipro to your health authority.  In every country they have a scheme for doing this.  If more people reported their problems then it might become easier for action to be taken against these drugs.

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    • Posted

      I took  two times  CIPRO   10 days 20 tablet,

      After 20 days   again 10 days 20 tablet.  About a week I stopped taking this.

      But now I am continuously shaking, body burning, fear. Now I am in  health now.  I am diabetic too Feeling too stressed

      Is there any way to get rid off? How a doctor could prescribe this?

      I am always praying for recovery?

       

      Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

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