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Ciprofloxacin poisoning?

Posted , 76 users are following.

mike_7
mike_7

Hi All - I was prescribed a course of Cipro and Diclofenac (NSAID - apparently not a good idea)

and after day one I had to call my GP as I had anxiety, stomach problems and shaking - of course they said can't be the Cipro keep taking it. After 5 days I couldn't go on, so agreed I would stop - then after a couple of weeks the pain hit - severe muscle cramps, pain in joints, leg pain, headaches, neck pain, and worst of all severe anxiety, some of this has cleared up but 5 months later I'm still suffering.

I noticed there haven't been any posts on here for a while - is there anything happening in the uk to make people, Doctors etc more aware of this poison, are there any known legal actions against the makers by someone in the uk?

It seems Cipro is prescribed as a first line drug for relatively minor problems when something else would be better - to be honest I would rather have put up with the original symtoms than go through this. The worrying thing is how long will it go on for - it is very difficult to function at work when you feel this way

regards

Mike

7 likes, 266 replies

266 Replies

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  • susan80325
    susan80325 mike_7

    Posted

    Hi everyone 

    John and Mike think I may have communicated with you both previously by email/phone. I posted on COB forum,  for patients with IC , about Cipro at various points through the years since I was prescribed it in 2006 for a uti. It gave me IC a chronic pain condition of the bladder which is known to be caused when Cipro is prescribed for a uti. I wrote to Nice and MHRA no response. I am curious to know how you are doing? And whether any progress with getting it banned? My IC has been bad of late so spurred me into action about it all again! 

    best wishes 

    Susan 

    • Ploddingon
      Ploddingon susan80325

      Posted

      Hi Susan 

      I read your comments about FQs on COB and I'm going to send you a private message in a little while - my brain's not in gear yet!

      Plodding on

    • gayle2468
      gayle2468 susan80325

      Posted

      Hi Susan are you in the UK? I too wasdiagosed with ic in 2011, although my bladder looks perfectly healthy on all the tests etc, after the extreme damage done by cipro this year i asked if I had ever taken it before and yes I had in 2011!!! right before all my badder pain. I believe my ic is caused by cipro too.
    • susan80325
      susan80325 gayle2468

      Posted

      Hi Gayle 

      yes I am in uk , yorkshire 

      sorry to hear you have IC too. I am totally convinced Cipro caused my IC , I was given it in Nov 06 and overnight the uti symptoms changed to much deeper intense pain. I have had a period of remission for four years but it returned in 2012 due to early menopause 

      Be great to talk more if you would like that? Wasn't sure  how you do private messages on here? 

      Susan 

    • susan80325
      susan80325 Ploddingon

      Posted

      Hi 

      thanks for message 

      not sure how I access private messages 

      do they come through to my email? 

      Thanks 

      susan 

    • john616
      john616 susan80325

      Posted

      Susan nice to hear from you, Its 2 yrs since we spoke. I am no better in that time, so i guess that cipro is determined to ruin our lives. A uk group started 2 weeks ago to try and make changes. First word is Quinalone, the second is Toxicity, the third is Support,  and the final word is UK   If you register, they will gladly accept you because  I told the founder and plodding on about you when i joined.
    • Ploddingon
      Ploddingon susan80325

      Posted

      Hi Susan

      I sent you a private message here earlier. You should have got an email notification from the site (not from me) and you can click on 'read message' or something like that and it'll take you to the message. I think in the top right of the screen now, you should see your username here and I think 'messages' are listed or an envelope? or you can click on your name and it will take you to your profile, where it will say you have a message.

      It's not an easy site this, to navigate around!

      Good luck

      Carol

    • susan80325
      susan80325 john616

      Posted

      Hi John 

      sorry to hear you are no better , my IC symptoms have been up and down since we last spoke, but recently bad hence my renewed interest in getting Cipro banned! I wrote to the MHRA around the time we were in contact with each other, no response. So angry that you, I and so many others have been damaged by thus drug. Thanks very much for group info. I am coming up to you area next weekend will be in touch to see if we can fit in a meet up for coffee if you would like that? 

      Best wishes 

      Susan 

  • jiwa49529
    jiwa49529 mike_7

    Posted

    Beside many other terrible adverse from two weeks course of 500mg twice a day, the worst is Total Insomnia. Its already 5 months since last August. My Whole body immune system and organs deteriorating with agonizing neuronal pain everyday. There is no more point to stick around and dying with conscious seizures and brain damage. The damage as the result in here with me now. I need to escape this hell.
    • john616
      john616 jiwa49529

      Posted

      are you in the uk? There is a group where you can talk to people going thro similar probs

       

    • ana85762
      ana85762 jiwa49529

      Posted

      How are you doing now ? Would like to know if you are feeling better ,are you still having seizures ?hope you are feeling better .

    • miriam65408
      miriam65408 ana85762

      Posted

      Hi Ana, this is quite an old thread (3 years) and many of the people who posted in the early days no longer visit Patient for various reasons - I'm one of the few who still hang around here!

      Did you ask because you've been affected by Cipro or another fluoroquinolone (Levofloxacin perhaps) yourself. If you have been affected and are looking for answers and support there is another FQ thread started by the moderator here:

      https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

      If you click on this link it will take you there and you will find some useful addresses in the top post (I can't give them here).

      Which country are you from? There are support groups in many countries and several are on the well known social media site with book and face in its name.

      I hope this helps you. Write back here if you want to ask something and I'll see if I can help you.

    • anna69525
      anna69525 miriam65408

      Posted

      Hi Miriam, Thanks for the reply. I actually had a horrible reaction to one Cipro pill, resulting in an ER visit due to my eyes, and one and off again knee/ankle issues. Thanks for the link, I will follow up there and see if there is helpful info. Currently, my biggest issue is random bouts of anterior ankle pain/knee weakness (about once every 2 months) - and the worst if inflammation persisting in my eye muscles, which makes my eyes look swollen. Other than that, I am very healthy and doing well.

    • miriam65408
      miriam65408 anna69525

      Posted

      Hi Anna, I just replied to you on your other post. I see now that your took just one tablet - is this correct? If you'd never taken Cipro before this was really bad luck. As I said in the other post, I'll see if I can find anything but do look at the addresses given in the moderator's pinned post.

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