Ciprofloxacin poisoning?

Posted , 76 users are following.

Hi All - I was prescribed a course of Cipro and Diclofenac (NSAID - apparently not a good idea)

and after day one I had to call my GP as I had anxiety, stomach problems and shaking - of course they said can't be the Cipro keep taking it. After 5 days I couldn't go on, so agreed I would stop - then after a couple of weeks the pain hit - severe muscle cramps, pain in joints, leg pain, headaches, neck pain, and worst of all severe anxiety, some of this has cleared up but 5 months later I'm still suffering.

I noticed there haven't been any posts on here for a while - is there anything happening in the uk to make people, Doctors etc more aware of this poison, are there any known legal actions against the makers by someone in the uk?

It seems Cipro is prescribed as a first line drug for relatively minor problems when something else would be better - to be honest I would rather have put up with the original symtoms than go through this. The worrying thing is how long will it go on for - it is very difficult to function at work when you feel this way

regards

Mike

7 likes, 266 replies

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  • Posted

    Hi Deborah

    Thank you for logging on to the forum. I am dismayed but not surprised concerning your Dad's plight. You have my backing and I am prepared to spread the word any way I can

    kind regards

    John

  • Posted

    I do not live in the UK - I live in USA - this is my tenth anniversary from cipro and levaquin poison - perhaps is is because I had so much of it in the first place that has caused such a lasting effect but it has been 10 long painful scary years for me and continues on - I have yet to find a doctor that will give any consideration to the source of all of my health issues. I feel as if I am dying a slow punishing death. I live in my bed more than out of it. I was a runner running 6 miles a day and very healthy before Cipro. I had a urinary tract infection in 2003 and was given Cipro - I immediately had high blood pressure, severe heart palpitations and pain in my legs. I went back to the doctor and he gave me more - I became too ill to take care of myself and had someone to drive me to the doctor he gave me a prescription for Levaquin and steroids - needless to say I had around 70 pills of cipro and levaquin and steroids combined in a 6 month period. I essentially died because I haven't been able to live a normal life since. I have a damaged heart valve - unexplained carpal tunnel that continues to return even after surgery. My eyes were effected - I had the horrible relentless rash on my arms for 6 weeks - the doctors wouldn't help much and tried to convince me that it was all in my mind. I sold my horse farm and moved thinking it may be environmental. The day I moved my ex husband moved me and the bed first - I couldn't do anything. When I suggested to my doctor that it may be the medicine he dropped me as a patient after a 20 year relationship. All I can do is adjust to new pain and new issues and pray that the next cycle of relapse isn't going to be the one that gives me cancer. I wish I could get some help before it is too late. I would love to have the freedom to live again. Another odd thing that happened - I lost nearly two inches of my height during the first year at the age of 37. I am dealing with pain in the right side of my body now and can hardly get any sleep at night - my left eye is so tender and painful - the bottom of right foot hurts too bad to exercise and has been this way for nearly 8 months. There are mass tort law suits here and I plan to mail my packet in today. I believe these medications were not properly analyzed before putting them n the market - I believe doctors were lied to by sales reps as well as pharmacists. I wish someone would blow the whistle that knows and has evidence that these medications were dispensed primarily for profit only.
  • Posted

    Hello All- I have been on line for days now searching for information on Cipro, trying to understand how the doctors murdered my father. He took 1 Cipro after a Cystoscopy exam "just in case" there could be an infection. He developed severe stomach cramps within 1 1/2 hours after taking the one pill....the pain was intermittent for 2 days.....finally on the 2nd day he went to the emergency room......doc there waived my mother away when she tried to show him the script bottle....said he was having a diverticultis attack ( never had this problem before)....said the Cipro had nothing to do with it.....he was admitted to the hospital and was given 3 bags of IV Cipro.....on the 2nd day he wanted to die the pain was so horrific....he was given something stronger than morphine......the doctors would not listen to my mother regarding the Cipro.....both my mother and I questioned the drug.....every doctor was evasive....long and short of it, his kidneys were not functioning well on the 5th day and also had high liver enzymes, as well as a colon that was not functioning. He was alert on the 6th day, still tested, as the MRI from the day before failed to reveal a source of an infection.....his white cell count was up to 34 on day 5.....he ended up going into shock mid-aftenoon, and by 9 PM he died......

    I have spoken to 2 attorneys, (I live in NJ and my father died in Pennsylvania)....both attorneys say that there is no way to prove that Cipro killed my father......plus he was 85 years old and if he didn't die of Cipro poisoning, he would have died of something else. His death certificate reads "Sepsis" as the cause of death....he had complete organ failure, which we were told about at 5 PM on the day he died....we were never told he had Sepsis.....#2 cause of death is listed as Diverticulitis, which he never had a problem with, nor have I ever heard of anyone dying from this.

    Can anyone shed light on this? how can the hospitals and doctors get away from murdering a healthy 85 year old????? Everything I read about Cipro fits the profile of my father's illness.....needless to say, my mother cannot accept my father's passing.....it makes no sense and no doctor wants to talk about it. I did pick up his 500+ page medical report from the hospital, and am in the beginning stages of reading the report. Thanks for taking the time to read this post. Perhaps this post can help and possibly save someone's life. Al's daughter.

    • Posted

      Saw your post and wanted to say yhat I too ended up septic and on life support after cipro.  So sorry about your father. Would like to discuss with you.
  • Posted

    It is possible - I am not sure if it can be proven - this scares me - I am thinking about putting a tattoo on my body saying "NO FLUOROQUINOLONES" just to be on the safe side. I am terrified that they may give this to me again. I am sure it will be the end for sure. I know that when I was given Cipro my heart went crazy - a healthy heart but it was the nervous system that was regulating my problems which makes it hard for doctors to save a healthy heart when they have no idea what is going on. Unless you have an autopsy I can't imagine how you can prove it. Perhaps you should ask a pharmacist
  • Posted

    Terri69940 - I have actually heard of someone who did exactly that - had a tatoo refusing these drugs... In memory of Dad, I believe that the only way to have this proven as a cause of 'illness' is to have a post mortem where they are looking for that exclusively, but the likelihood of that happening is virtually '0' I would think, unless you are very rich. In memory of Dad, I am also so sorry to read your post . A very sad outcome of something that was probably totally avoidable if the Dr's and healthcare workers were made more aware of these terrible consequences of these drugs. I will send you a PM with a petition link and a site with lots of info..
  • Posted

    Thank you so very much for your response......I just signed the petition and hopefully it will help.....my mother did make a complaint to her health care insurance, which in turn is makiing a complaint against the hospital. It is not about making a law suit and receiving $$$$, as nothing can bring my father back. My mission is to be heard in memory of my father, Al. I am signing and posting his plight wherever I come across a site that will allow my blog.

    I am not finished, as I will be writing to the president of the hospital after I read thru all of my Dad's medical records....can you imagine 523 pages for a 6 day hospital stay? 108 pages of lab tests alone? and on the 6th day he expired.....he should still be here with my mother and I. No doctor wanted to discuss Cipro.....what is going on?

    This is for you, Dad.....please know that we are trying for justice in your name. One day I will give your name to the world, but right now I need to keep all names private.

    Katie Diane

  • Posted

    Hi

    I just wanted to run something passed you all.

    I'm in the uk, 30 years old male. I was incorrectly prescriped cipro 500 tablets recently. Despite my hesitation to continue taking after first tablet I was encouraged to keep going as the doctor knows best. I managed 5 tablets in total as i was so worried about feeling sick and having headache. I don't like tsking tablets at best of times. I stopped taking them in saturday but ive developed pind and needles in my feet and shooting pains I my left leg.

    Ive seen another gp today who said that I shouldn't have been given them and just sent for an ultrasound as there was no infection. I'm so worried now about what the next 12 months hold for me. The doc and pharmacist just said to give it a few days for whatever id still in my system to come out. However upon reading the internet the damage could already have been done??

    Im a regular runner 30-40 miles a week and petrified this could screw me up. I also have a wife and two small children so petrified for them too.

    Am I over analysing everything? Some reassurance would be good as I'm so scared.

    I also don't knw whether to put in a complaint about this gp! He shpuld have known better!

    • Posted

      Hello my name is chris and I'm in the same boat you were a year ago.  Did you get better and how long did it take. I'm 30 and usually active dinner. I also have two young kids 
    • Posted

      Hi, I have the same issues right now. After taking 2 days of 1000mgs of levoflaxcin I am left with pain in my leg like cramp and the arches of my feet are tight and painful. My stomach is ruined and I m still getting dizzy. It's only been 30hours since I last took it so really hoping it clears from my system. This stuff is poison!

    • Posted

      Hi Claire,

      I'm sorry to see you've been given Levofloxacin. Most posts on this thread are from over a year ago, but if you read through it you may find some help and advice. For your stomach I would suggest you try and eat some natural Greek yoghurt, little and often to try and replace you natural flora which the levo will have stripped out.  The Greek is high fat and the toxins are fat soluble so hopefully it will also help flush out any residual poison that might still be in your gut. 

      Unforunately, most of the toxins will have spread into your cells around your body (like in your legs and feet), so will be harder to do anything about.  The main thing is not to overdo any exercise as it can make your muscles worse. Go to this thread here on this site

      https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

      it was started by the moderator so that people can easily find useful addresses and information.  There is a new UK website plus US sites and groups.

      Hope this helps!

    • Posted

      Start to take magnesium straight away. FQS like Levofloxacin leach magnesium out of the tissues. I read a post once from a woman who had turned her floxing round by taking big doses of calcium as well. This might work as the patient insert tells you not to take calcium or magnesium supplements ato the same time as the drug as that will stop it from working properly. If your symptoms continue or get worse or new ones appear ,do not panic ,most people do get better from floxing though with different time scales. Visit floxiehope website. There is lots of good advice there and positive stories of people who have recovered. I have been floxed more than once in my life. I recovered before and am making progress since the latest floxing.
    • Posted

      Hi Claire,  I'm writing to ask if you're doing OK. I always worry when people stop posting after saying how ill they feel!

      I see Madge recommended taking magnesium, which is a good idea as it helps 'escort' the toxins out of the cells - albeit slowly.  It can upset your tummy in high doses.  You can also get magnesium oil in a spray which you apply directly to the painful areas of your legs and feet (and it goes straight in, thus not affecting your gut).

  • Posted

    Hi Billa58896. Cipro, and all the other names that it trades under is probably the most commonly used antibiotic for respiratory problems and urine infections amongst many others. Despite the problems my father has suffered from taking it, I myself have also (not knowing about it then) taken it in the past, without any side effects. You are not over 60, I assume you do not take steroids and are generally a fit young man. If I were you I would forget you ever took them and get on with your life. The pins and needles may be connected but you will have to wait and see. Rest them for now and see what happens. Worrying about 'what might' happen, the ifs', buts' and maybe' is possibly only going to bring on psychosomatic symptoms and you will put every single twinge or strange occurrence down to Cipro. In the whole scheme of things, in my opinion, you are very unlikely to have a problem with these drugs and if you are one of the unfortunate people who do have adverse side effects then you will know soon enough. But don't spoil your time worrying about something which is unlikely to happen. Personally, now with the knowledge I have, I would never take them again, but if, accidentally I was given them unknowingly this would also be my attitude towards it. As for complaining about your GP - don't waste your energy, they are a closed shop and it would take you a lifetime of mortgages to prove anything about anything.... Hope this helps smile PS - Also stop googling!! Sometimes a little knowledge only makes things worse.
  • Posted

    John616, Mike7 and in memoryofdad - sent you a PM smile Every little helps

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