CKD and pregnancy??

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Hi All,

I am a 30 year old female and was diagnosed with CKD 5 years ago. I have been very stable due to a combination of diet and ramipiril (for proteinuria). Creatinin is about 220 and blood pressure is perfect. I am otherwise healthy and I am a healthy weight. My neprologist has always been unsure as to whether I should get pregnant and my feeling is that she is opposed to it. I went to an obstetrician who said I should try and get pregnant now. Since speaking to the obstetrician I came off the Ramipiril to see how my kidneys would function on their own. It turns out that the protein levels in my urine rose quite high (they were approx. 1 on Ramipiril and are now approx. 4). Since then my nephrologist has said that she couldn't recommend that I try to get pregnant. I am devastated and I feel like there is very little information out there for me to make an informed choice. My doctor doen't seem to have any other female patients in my predicament. My chice at this stage is stay off the Ramipiril and requrie a transplant within the next 18 months or go back on it and not require a transplant for an unknown duration. This second prospect is obviously the safer choice longterm but the unknown is so frustrating and I wish to be a mother above anything else. I was just wondering whether anyone else has been/ is in a similar position?

Thank you!

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  • Posted

    I am only 23 (so I know there is plenty of time for children) but I feel your pain. I have talked to many of my doctors about if I got pregnant and one told me the same thing one of your doctors said (get pregnant now would be the best option if I was going to do it) and all my others said it wouldn’t be a good decision and also it could cause many issues for me and the baby. It’s very frustrating having no control over your body, especially when you’re wanting to carry a child. Others always act like it’s not a huge deal when I’ve brought it up wanting to talk but it hurts and weighs on you a lot. I just want you to know someone else out in the world understand your pain and frustration and I feel for you. I’ve heard post transplant is the safest way to begin trying to get pregnant (a year or more after successful transplant) but the fact of not knowing when that transplant will come or dialysis is very frustrating and makes you want to rush the process and not stay on meds to drag it out cause it makes you feel like a ticking time bomb so I completely understand. I often want to stop my meds to hurry the process along and get it over with, cause it’s seems never ending. Just wanted to give my opinion and let you know you’re not alone in this, hope it helps ??

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  • Posted

    Hello Aoife, I had my son 7 years ago and didnt know I had ckd, I got pre-eclampcia and I had to have an emergancy c-section 5 weeks early and they told me I had kidney failure, I have also been advised not to get pregnant again, I have known women on dialysis to have successful pregnancies BUT its the risk of pre-eclampcia with ckd in pregnancies its so dangerous, your drs need to keep a close eye on you at all times hun xxx
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  • Posted

    Hi Aoife! I'm only after coming across this chat.. I know you had wrote it a few years ago but I am curious did you ever have a baby? I am 29 years old with a kidney function of about 18%. I had a baby almost 2 years ago when my kidney function was 30% dropped to 17% after I had my baby.  I was told to get pregnant at that time and I'm so glad I took the risk, wouldn't change it for the world! I defo had a positive attitude the whole way throughout my pregnancy and I think that helps. 

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  • Posted

    Hi I've just come across this thread.

    I have polycystics kidneys currently on around 30% function left. My doctor told me to start trying for a baby which I am now pregnant half way through. Worried about getting the pre-eclampsia too early as the doctors have advised I will definitely get it. Is there anything you guys done to help prevent the protein in the system which causes the pre-eclampsia ?

    Thanks 

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    • Posted

      Hi, 

      My kidneys were working 30% before I got pregnant but I never got pre eclampsia I was lucky enough! But I can't say I done anything in particular to prevent it. I was started at 37 weeks plus 5 days.  Wish you all the best in the rest of your pregnancy x

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    • Posted

      I read online that drinking green tea with honey can reduce creatinine if you drink it maybe 3 times a day- I'm trying that now. For protein I read to boil parsley and drink it as a tea- tryingbthis also. In the past I've consulted a Chinese naturopath who gave me herbal medication and that did help for a bit- thinking of trying this again and acupuncturist. 

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    • Posted

      I drink green tea everyday. But try drinking corn silk tea. That helps lower creatinine levels a bit.
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  • Posted

    Hi all 

    Came across this as I was researching about ckd and pregnancy. It's so good to see others out there succeeding! I have only one kidney only born with one and my other kidney only works about 30%. I was told there would be a lot of risks associated with pregnancy but that doesn't stop me from wanting to go ahead. I'm 30 years old, nurse working part time- spots of protein in my urine, creatinine of 160-180 depending on the stress levels, no issues with bp- have had this issue for 15 years! My current specialist is very pessimistic and as much as I understand the risks she talks about I think I want to at least try ad have my own child even if it stuffs up my kidney- because what is life about if not happiness and babies bring so much joy! My husband and I are currently trying so fingers and toes crossed and praying to god that we get the wish of a child granted. Doctors may say many things but a positive mind and the support of your loved ones is all you need. Never be discouraged! I will never give up hope or stop trying even if it gets me to dialysis because I would end up there one day anyway! 

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    • Posted

      Hey , this was so similar to my situation. Still on 30% function and my doctor told me to get pregnant now instead of waiting until after the transplant. I am 17 weeks pregnant now and everything is going smoothly at the moment but will definitely get pre-eclampsia which I'm really worried about.

      Positive thinking and you will be fine. That's what I've been doing 

      Xx

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    • Posted

      When my kidneys were working 30% I was told now was the time! I was on the same way of thinking, you would do anything to be a mother! I felt my kidneys were going to fail at some point and even after I had my baby they dropped to 17%, I'm still on the lines of thinking that if I get a doner (in the process of testing) I will try again for another even if it means dialysis and have a transplant after as discussed with consulant. To be honest I can't wait to get a transplant so I can feel normal again and get on with my life! 

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    • Posted

      Glad to hear things are going smoothly! Did you find getting pregnant hard? We have only been trying for 1-2 months but I think my stress and anxiety levels of trying to get pregnant aren't helping! Hope you don't mind me asking- what was your creatinine pre pregnancy? You will be ok- just have faith! 

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    • Posted

      Happy to hear the good news! I hope you don't mind me asking- what was your creatinine pre pregnancy? I think sometimes doctors can be trying to get the worst case scenario across but positivity is best! Did u find some things helped you to get pregnant? Trying st the moment and think that my mind is just racing too much and impacting my hormone levels 😔 

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    • Posted

      I'm so happy to hear you went ahead. How was your baby afterwards did you have any problems? I think if you have your mind stuck on what you want you can make it happen 😊

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    • Posted

      Baby was perfect after, and I also had a normal delivery! He's now a healthy 2 year old. And I generally felt well afterwards which was great.. Defo, without a doubt! When I was told it might not be possible to carry a baby with my function of kidneys, I thought there's noway I'm not going to be a mummy! Lol.. positive attitude makes all the difference! 

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    • Posted

      My kidney doctor told me to try asap which we did but nothing was happening for months which was stressing me out, she sent me to a kidney pre-pregnancy clinic where I met with kidney and maternity professors and they said If it doesn't happen soon then they will refer me for ivf. It literally happened a month later. I do yoga and I'm sure that helps especially when your stressed

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