CKD and pregnancy??

I am only 23 (so I know there is plenty of time for children) but I feel your pain. I have talked to many of my doctors about if I got pregnant and one told me the same thing one of your doctors said (get pregnant now would be the best option if I was going to do it) and all my others said it wouldn’t be a good decision and also it could cause many issues for me and the baby. It’s very frustrating having no control over your body, especially when you’re wanting to carry a child. Others always act like it’s not a huge deal when I’ve brought it up wanting to talk but it hurts and weighs on you a lot. I just want you to know someone else out in the world understand your pain and frustration and I feel for you. I’ve heard post transplant is the safest way to begin trying to get pregnant (a year or more after successful transplant) but the fact of not knowing when that transplant will come or dialysis is very frustrating and makes you want to rush the process and not stay on meds to drag it out cause it makes you feel like a ticking time bomb so I completely understand. I often want to stop my meds to hurry the process along and get it over with, cause it’s seems never ending. Just wanted to give my opinion and let you know you’re not alone in this, hope it helps ??

Hello Aoife, I had my son 7 years ago and didnt know I had ckd, I got pre-eclampcia and I had to have an emergancy c-section 5 weeks early and they told me I had kidney failure, I have also been advised not to get pregnant again, I have known women on dialysis to have successful pregnancies BUT its the risk of pre-eclampcia with ckd in pregnancies its so dangerous, your drs need to keep a close eye on you at all times hun xxx

Hi Aoife! I'm only after coming across this chat.. I know you had wrote it a few years ago but I am curious did you ever have a baby? I am 29 years old with a kidney function of about 18%. I had a baby almost 2 years ago when my kidney function was 30% dropped to 17% after I had my baby.  I was told to get pregnant at that time and I'm so glad I took the risk, wouldn't change it for the world! I defo had a positive attitude the whole way throughout my pregnancy and I think that helps. 

Hi I've just come across this thread.

I have polycystics kidneys currently on around 30% function left. My doctor told me to start trying for a baby which I am now pregnant half way through. Worried about getting the pre-eclampsia too early as the doctors have advised I will definitely get it. Is there anything you guys done to help prevent the protein in the system which causes the pre-eclampsia ?

Thanks 

Hi all 

Came across this as I was researching about ckd and pregnancy. It's so good to see others out there succeeding! I have only one kidney only born with one and my other kidney only works about 30%. I was told there would be a lot of risks associated with pregnancy but that doesn't stop me from wanting to go ahead. I'm 30 years old, nurse working part time- spots of protein in my urine, creatinine of 160-180 depending on the stress levels, no issues with bp- have had this issue for 15 years! My current specialist is very pessimistic and as much as I understand the risks she talks about I think I want to at least try ad have my own child even if it stuffs up my kidney- because what is life about if not happiness and babies bring so much joy! My husband and I are currently trying so fingers and toes crossed and praying to god that we get the wish of a child granted. Doctors may say many things but a positive mind and the support of your loved ones is all you need. Never be discouraged! I will never give up hope or stop trying even if it gets me to dialysis because I would end up there one day anyway!