CKD and pregnancy??

Hi All,

I am a 30 year old female and was diagnosed with CKD 5 years ago. I have been very stable due to a combination of diet and ramipiril (for proteinuria). Creatinin is about 220 and blood pressure is perfect. I am otherwise healthy and I am a healthy weight. My neprologist has always been unsure as to whether I should get pregnant and my feeling is that she is opposed to it. I went to an obstetrician who said I should try and get pregnant now. Since speaking to the obstetrician I came off the Ramipiril to see how my kidneys would function on their own. It turns out that the protein levels in my urine rose quite high (they were approx. 1 on Ramipiril and are now approx. 4). Since then my nephrologist has said that she couldn't recommend that I try to get pregnant. I am devastated and I feel like there is very little information out there for me to make an informed choice. My doctor doen't seem to have any other female patients in my predicament. My chice at this stage is stay off the Ramipiril and requrie a transplant within the next 18 months or go back on it and not require a transplant for an unknown duration. This second prospect is obviously the safer choice longterm but the unknown is so frustrating and I wish to be a mother above anything else. I was just wondering whether anyone else has been/ is in a similar position?

Thank you!

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