Clitoral/hood fusion

Yes - it's a steroid cream that I apply to the area. You should ask your doctor about it. Mine just started me on this... I'm HOPING it'll help.

I've read some things on-line about it being able to be reversed, but nothing about the clobetasol reversing it. So I thought I'd ask. I'm hoping it works for me.

😦 I'm sorry.... Ugh... I've just been diagnosed with this - and I am just beside myself. I'm trying to be positive... I seem to have caught it early and don't have horrible issues like some people that I've read their stories. So I'm thankful for that... but its still depressing.

I haven't heard of the baking soda method... but if the clob doesn't work - I may try it! 😉 Thank you!

thank you. It is frightening at first especially if we have never even heard of this before, Dont look at google images as they are worst case scenarios and you wont get like that as youve caught it early and are getting help. I was very scared three years ago but not so now, but it is daunting when things seem to disappear to nowhere. x

Yeah... I googled right away before I even HAD the biopsies to diagnose it... and I cried FOR DAYS when I realized that this is probably what I had. Google does post the worst case scenarios - that's for sure. 😕 I'm still not happy (who would be!?) about having it, but I'm glad it was caught early - and I'm hoping my treatment goes well. ❤️ Time will tell. 😃

That's good to hear... 😃 Thank you. I'm hoping it'll work!

I haven't tried anything you mentioned (meditation/grounding, etc...) I was just diagnosed a couple weeks ago. I just started the clobetasol cream. This is alllll new to me. I've been researching it as much as I can on-line. What I have found - is that everyone is different.... and some cases are very bad and some are mild. I'm praying mine stays "mild" - or goes into remission. It's not bad - thankfully.

❤️ Thank you for your reply. 😃

Debbz,

Is your vulvar skin sore? And, do you have a pattern of white as in stripes or is it in blotches? I realize this is very personal so don't answer if you don't want to. My white patches went away in 1 month but then the area got sore and still is and that's what nobody can seem to figure out. Three different diagnoses but nothing really helps except nsaids and/or liquor 😃 One doc said "Stop sitting" Yeah right, like how do I go to work? Spend some time outdoors everyday and if yours does not hurt, count your blessings. Write back. I do care.

Hmmm... I don't have stripes, but the skin around the clitoris area has turned white... I'd say it's more patchy than stripes. My vulvar skin isn't sore.

I hope you can get rid of that soreness. 😦 UGH!

My vulvar skin is sore not as sore as before diagnosis as the clob and Yes moisturiser has helped but also have ulceration at the fourchette area which looks like massive pappillae but got told its L S. They dont go even with clob on it. Stupid advice like dont sit down the drs give is silly. I got told by a very overweight gynao to stop cycling. I cycle as heart disease is in the family and keep fit that way, I chuckled inside as she had no idea you can buy cut away ladies cycle seats and she commented sat there when she should be providing an example.

Am glad you are not as sore (I understand you to say you were sore earlier) and that you have found a way to continue doing what you like. Yes, a silly comment: "don't sit down," really? And, see, you have to ask yourself, why can't you sit down? I had a doc tell me that as well. She said you have pelvic floor problems but then doc no 5 said I do not. Who does one believe? I investigated the "sitting" issue and it seems that pressure on this area excites certain nerves....Need to do more research.....Stay tuned Maybe I'll figure out a break through.

No... mine doesn't look like that. Hope they can figure it out when you get checked out.

Sorry I forgot I get terrible burning just like a match inside. I read somewhere on here it is the L S being active.