Clitoral/hood fusion
Posted , 9 users are following.
i was just diagnosed with LS and my clitoris is fused to the hood.... my doctor said the clobetasol use will "unfuse" it.... has anyone had luck with that??
0 likes, 22 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
×
Notes on Clitoral/hood fusion
Guest Debbz1989
Posted
Debbz,
Everybody's is so different, I don't know what to say. Itch is one symptom but so can pain be a symptom. After hearing from so many women and reading so many articles and seeing 5 gyns, it seems a biopsy is 90% accurate for a diagnosis. Yet, I am afraid to have it because I will be even more debilitated than now. Forgive me, but have you had a biopsy and , I assume, it showed LS? I am convinced the cause is something systemic. Have you tried the baking soda? I need to try that. What are you using for symptom relief? I am using some coconut oil and A & D cream (which helps and is from Dollar Tree, made in US) . Ibuprofen helps very little.
May I ask how old are you? I am 63 going on 35. It is hard to realize that we don't have total control over any aspect of our lives, especially health. I have had a couple of other issues, gall stones, kidney stones, and adhesions requiring surgery from the gall bladder surgery, and teeth pulled, BUT THIS HAS BEEN THE WORST! I can't sit without pain. There are millions of women with these type of problems and, while that doesn't help our individual pains and trauma, it does mean that there are more and more doctors and new research and that can only mean more info and more possibility of treatments by a range of providers, western, eastern, holistic and so on. Keep reading, seeking help and don't give up. Try to adopt a new perspective: it could be worse. My best friend just had an emergency quadruple bypass at 59. While he was in the OR, somebody did n't watch a blood machine and too little blood got up to his brain and he had a stroke. Now in rehab. Class A hospital, too. He can still speak and control most of his body but cannot walk. Nice man too. This is a journey and we are not promised an easy ride. I understand hard.
caroline96176 Guest
Posted
I couldn't agree more with this response. I realise that I am one of the lucky ones: my symptoms are not as severe as some I have seen on this forum and I was diagnosed when I was 68. My diagnosis explained not only the insane itch but lots of other things that were weird and sore. I was alarmed when I realised that this thing had a frightening name I had never heard before, but I also realised that my GP and dermatologist were there if I needed them. i started putting my condition into perspective. Before I retired, I was a support worker and saw raw courage from people who were either born with physical or mental illnesses or disabilities, or who had developed them in their lives and they just got on with it. It took me a while but I decided to try it, and I think it is the best solution. I will end with the story of my friend who was born 60 years ago and at 6 months, contracted German measles. She was then profoundly deaf and her life was extremely difficult. For the last 20 years, her eyesight has diminished, and she is now registered deaf/blind! I am as determined to get on with things as she is. I take each day as it comes and make the best of it, just like her. Please go to your GP when you feel overwhelmed and I wish you well for the future.
Debbz1989 Guest
Posted
Hi Dr N - I was recently diagnosed by biopsy results. I went in for a vulvoscopy or vulvaroscopy.. not sure what it's called exactly. While I was there - my doctor took four biopsies. I'm not going to lie - it wasn't comfortable. 😦 And - the recovery from those biopsies sucked. 😦 BUT - I'm glad I did it and found out what I have, so I can treat it. The sutures/soreness took exactly a month to go away. The first two weeks after the biopsies were the worst, but it got better. You can do it. 😃
I have not tried the baking soda because I just started the Clobetasol cream treatment. I'm going to do that until I meet up with my doctor in a few months to see how it's going. The itch for me is pretty minimal - and I'm not in pain (thankfully.) So right now - I'm praying this Clobetasol works and gets this under control and it doesn't get worst.
I'm 47 years old... and with everything I read - this is usually something that post-menopausal women get. Well I'm not post menopausal. So I'm frustrated. But - I'm very thankful I didn't get this in my younger years. And I keep reminding myself it could be soooo much worse. It's been mentally and emotionally challenging, but I'm working on it. You said you're 63 going on 35... and i can totally relate to that. I don't feel 47 (and I don't act it. LOL!) 😃
Hang in there....
sarb73328 Debbz1989
Posted
I have just discovered same thing and have been using Betnovate for 3 years but recently lessened my usage because all seemed calm. I will use it more again now. I did have some unfusing of minora when i first started using steroid, so perhaps there is hope. Let me know how you get on and i will you. Like your doctor my Gp believes steroid can help unfuse.
Debbz1989 sarb73328
Posted
Good to know! I'm hoping it works! (fingers crossed!) 😃 Good luck - and yes - keep me posted and I'll do the same.
Thanks for the info!