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My wife was diagnosed with LS a little over a year ago at the age of 27. Her first symptoms were severe itching and pain in her genital region. As with many sufferers, this caused trouble with daily life at home & work and much trouble sleeping. After months of various visits to several different OBGYN's, dermatologists, natural paths, alternative med docs, etc. and through a combination of the Clobetasol steroid cream, lifestyle changes (i.e., wearing lose fitting clothes, periodically moisturizing throughout the day with essential oils, etc.) we had success in the LS symptoms subsiding allowing a return to "normality". She was able to sleep, to occasionally wear tighter pants, and enjoy love making with no pain. A month ago the symptoms came back with a vengeance and she was in more discomfort than ever. The OBGYN gave us another prescription for Clobetasol as well as one for Hydroxyzine to help with the severe itching. In addition, we also started various "natural home remedies" outlined here and other sites including daily probiotics, supplementing with magnesium and turmeric, taking manuka daily honey, soaking in warm baths of borax & baking soda, eliminating gluten and refined sugars from our diet, etc. Yesterday, during her follow up visit, her OBGYN said that the LS is worse than it was 4 weeks ago. Clobetasol does not seem to be working for her. The OBGYN is recommending testosterone ointment which we have huge reservations about. We are desperate for something that truly works. Our hope is that it is early on in the disease to treat her and manage it for our lifetimes till there is a cure. Please help with recommendations and any helpful guidance. We are willing to go to any specialist in the world for help.
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