Clobetasol Not Working... Need Help Please!

Posted , 15 users are following.

My wife was diagnosed with LS a little over a year ago at the age of 27.  Her first symptoms were severe itching and pain in her genital region.  As with many sufferers, this caused trouble with daily life at home & work and much trouble sleeping.  After months of various visits to several different OBGYN's, dermatologists, natural paths, alternative med docs, etc. and through a combination of the Clobetasol steroid cream, lifestyle changes (i.e., wearing lose fitting clothes, periodically moisturizing throughout the day with essential oils, etc.) we had success in the LS symptoms subsiding allowing a return to "normality".  She was able to sleep, to occasionally wear tighter pants, and enjoy love making with no pain.  A month ago the symptoms came back with a vengeance and she was in more discomfort than ever.  The OBGYN gave us another prescription for Clobetasol as well as one for Hydroxyzine to help with the severe itching.  In addition, we also started various "natural home remedies" outlined here and other sites including daily probiotics, supplementing with magnesium and turmeric, taking manuka daily honey, soaking in warm baths of borax & baking soda, eliminating gluten and refined sugars from our diet, etc.   Yesterday, during her follow up visit, her OBGYN said that the LS is worse than it was 4 weeks ago.  Clobetasol does not seem to be working for her.  The OBGYN is recommending testosterone ointment which we have huge reservations about.  We are desperate for something that truly works.  Our hope is that it is early on in the disease to treat her and manage it for our lifetimes till there is a cure.  Please help with recommendations and any helpful guidance.  We are willing to go to any specialist in the world for help. 

1 like, 25 replies

25 Replies

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  • Posted

    Hi, Candida and Lichen Sclerosus often go hand in hand, which is probably why your wifes problems have not abated and got worse.  It is insidious and I believe the main cause of many conditions afflicted in the body such as thrush and many more. The fungus can present itself in the Vjay, mouth and throat and sometimes women are unaware of how deeply 'infected' they have become.  

    I have had Systemic Candidia and it was very hard to get rid of.  For anyone that is struggling with Lichen Sclerosus and suspects thrush I would definitely recommend taking a course of Diflucan tablets, followed my oral Nystatin.

    Also, Lichen Sclerous mimics other conditions.  It is therefore important to make sure that thrush is definitely the problem and not something else, as during a Lichen Sclerous flare up sometimes women will see a pure white liquid (which resembles milk) and this is definitely indicative of Lichen Sclerous and not thrush..... which I believe is why doctors often misdiagnose women.

  • Posted

    I am another borax convert. I have a tube of steroid to hand for emergencies but have only used it for a week in more than a year. The relief was instant. Do research and make sure that you are using Borax and not Boric Acid or Borax Subsititue which are different chemicals altogether. Also start with a weak solution, some people have had reactions to stronger solutions, more is NOT better. Rather start with a weak solution and apply it more often.

    Good luck to your wife, and bless you for trying to help her. This is a wonderful forum and very supportive for what can be a very isolating condition. Do encourage her to come on here and 'chat' too it helps so much to have other people to talk to who are going through the same thing.

    • Posted

      Thank you for the encouragement.  We are starting the Borax protocol today and will report how she does with it.  Hopeful...
  • Posted

    Hello, I am curious- did the Doctors check her Thyroid? I just read the 2 problems go together and ironically I have both.  Never was told about them being related- underactive Thyroid and LS.
    • Posted

      She had blood work done several times and they did do a test for thyroid which all came out okay.  We started the Borax protocol a week ago today... see below for update...
  • Posted

    Hi all... We started the Borax protocol a week ago today.  This being the dilluted soluton you ingest.  I began it along with my wife.  We both have had some difficulty with "detox" reactions (nausea, stomach ache, etc.) to it and I had to stop but she is responding well!  Will report more after this second week.  Thank you for the community of support and information.   

    • Posted

      I only apply it to skin, I don't ingest it. PLEASE be careful. I can't advise you on taking it this way. I think the majority of us here only apply it topically and when we talk about having good results, this is the protocol we are referring to.

    • Posted

      I'm desperate to try borax but can't get it

  • Posted

    NTKT- I have LS and most of the time it is ok.  I think it helps by soaking in a tub and using the ointment during flare ups.  Now when showering paying extra attention with cleanleness.  The skin seems to be more fragile.  I read somewhere that stress can cause flare ups.  I feel this is correct as I often have a flare up AFTER a major stress.  Life is full of stresses - at least for me- but you just have to try to cope with things- and often times a book and a nice warm bath can come to the rescue!
  • Posted

    Hi all... I wanted to provide you with an update: The borax protocol seems to have really worked well and during her follow up appointment at the OBGYN the doc sees no signs of LS!  She has also stopped using Clobetasol al together.  However, she is still battling itchiness and some painful discomfort... OBGYN confirmed it to be a yeast infection!  Her thoughts were the infection was due possibly to my wife stopping BC and her body trying to "regulate" its pH.  While it is good news about the LS remissing, it is strange that she is experiencing a yeast infection granted the use of borax and diet geared towards eliminating candida?  A visit to a chinese medicine practioner (who also specializes in womens health) yesterday was very positive as she was much more sensative than western medicine doctors regarding her symptoms.  Her take was that her LS diagnosis may be incorrect altogether!  The immediate goal is to get rid of the yeast infection which we are doing through a combination of western and chinese med approaches - Fluconazole and herbal remedies.  Any thoughts on association, or lack thereof, between LS and yeast infections?

       

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