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Club Zero

Posted , 9 users are following.

RD_Swede
RD_Swede

As the initiator of Club Zero in the Northeast forum, I think that we should formally say that we have a Club Zero on this forum for those who have reached 0 Pred and that  pmr and/or GCA has gone into remission.

The last one I have seen that wanted to join Club Zero is John, and I welcome you to this club. We hope that you will continue posting so other members can see that it is possible to come to 0. I myself have been free from pred since December 2008 and I haven´t had any flares. I keep on posting as I think that those who are struggling to reduce are happy to see that there is a possibility to come to 0. At last I want to caution that from 5 mg and below, you have to take it easy so you don´t have a flare. If you do have it at such a low dosis, it will probably take longer for you to get to 0 than if you followed the DSNS method all the time. Good luck to all and we expect you in Club Zero.

4 likes, 8 replies

8 Replies

  • Oregonjohn-UK
    Oregonjohn-UK RD_Swede

    Posted

    Thank you, Ragar?  I agree it's a great encouragement when others get to zero and it can be done!

  • liz12234
    liz12234 RD_Swede

    Posted

    Hi, Lovely to hear from you. I am on the DSNS method since 10mg now at 4 1/2 -5mg  will i be lucky have no flares, i do hope so i know its not a race to come off it but i cant help still wanting to! then i can join your club.
    • RD_Swede
      RD_Swede liz12234

      Posted

      You have the right attitute it seems. Just do not race. You are at such a low dosis that it should not bother you. My problem att 5 mg was the fatigue so I stayed a year att 5 mg and then continued what later become the DSNS method. Good luck
  • dolores41118
    dolores41118 RD_Swede

    Posted

    Reached zero last December after six years on Pred. Plenty of ups and downs along the way. It was very interesting to read on this site a couple of days ago about the sun 

    having an adverse affect on someone with PMR.  I certainly experienced this myself on a few holidays. The fatigue was dreadful at times. Still would experience some stiffness and loss of muscle strength. Can cope with this though. Anyway so delighted Onwards and upwards now.

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