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Clumsyness is getting worse with the twitches!

Posted , 6 users are following.

victoria21810
victoria21810

Hello everyone my name is Vikki and I'm 44 years old and was diagnosed with Fibro neatly three years ago now. I also have chronic back issues and have had two surgeries on it. 

im so worried because the twitching and jerking is getting much worse as is my general clumsiness. I feel like a small child sometimes with the stupid stuff I do.  Should I talk to my GP or is it a case of put up and shut up.  I'm so fed up guys........

0 likes, 22 replies

22 Replies

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  • carole28488
    carole28488 victoria21810

    Posted

    Hello, victoria:  I'm 67 yrs. old, and I have Fibro, too.  I was diagnosed three years ago, after taking a terrible fall onto concrete.  I cannot believe how many symptoms I have from Fibro.....I hurt all the time, plus I've had a terrible spinal problem most all my life.  The only thing that makes my pain go away for more than a whole day is Lyrica.  I can't take one every day, due to some of the side effects...I go from feeling 67 to 27 in a matter of 30 minutes...It takes the pain away, and somehow that terrible exhaustion turns to energy.  You might ask your doctor if Lyrica is right for you...My utter tiredness and inability to concentrate are two of my worst symptoms, not to mention the never ending pain....I hope this helps...keep in touch....xxx
    • victoria21810
      victoria21810 carole28488

      Posted

      Hi Carole. I'm on morphine patches for the back pain and also 300mg of lyrica twice a day every day.  I also have fluoxetine for depression,zone very pungent gel rub for my ankles and top up with zapain. All this just about keeps me moving.  Xxxx 
    • victoria21810
      victoria21810 carole28488

      Posted

      Sorry Carole I haven't been able to access for a little while but  all sorted again now.... Fibro fog makes me forget all my passwords lol.  Unfortunately I do take lyrica and it does help with pain but I don't feel 40 years younger I'm afraid.   It makes me sleepy in fact.   I haven't found anything that gives me any amount of energy not even my vitamin tablets. It all gets very frustrating . Hope all is well with you. Xxxxx
  • christine26761
    christine26761 victoria21810

    Posted

    There are soooo many varued symptoms to this Fibro, we don't get them all...but every new I gave fever git I get it checked with the doctor..always...sounds like it might be a medication reaction or something too..I've had Fibro for over 30 years now..I haven't heard of that symtom..but that may mean absolutely nothing at all..please try not stress it's horrid for Fibro sufferers..stress really makes you worse...I would put my mind at ease and get it checked out. be blessed victoria. Have a lovely  day..:-( xxxx
  • bronwyn97278
    bronwyn97278 victoria21810

    Posted

    Hi Victoria; from the way that you speak, I'm feeling that you have had this before, but not as bad?   Do you take any meds for your Fibro, and if so how much and of what?  I have, too, been there, but it comes and goes; and yes, sometimes are worse than other times (have broken so many things)......as you feel that it is getting worse, then perhaps a talk with your GP/primary carer, may help............perhaps changing one of your meds, increase in one, or even add another............I really feel that my valium stops this twitchiing, but also know that many doctors don't like to prescribe it, but if you talk re this, there maybe something along the same lines that may decrease the twitches, and then not take if they disappear for a while???............am thinking of you, as it's not nice and making us feel stupid/clumsy as you say.............wink​Bron
    • victoria21810
      victoria21810 bronwyn97278

      Posted

      Hi Bronwyn, see shove comment for my list of meds. I hate taking anything. Have seen GP today and she's going to do some more blood tests. So... Watch this space xxxx. 
    • victoria21810
      victoria21810

      Posted

      By the way thanks guys for making me feel welcome by answering my blog xxx made my day xxxx
    • bronwyn97278
      bronwyn97278 victoria21810

      Posted

      Morning Victoria; yes I agree with "taking meds"...it gets to the staage that you wonder how many more???......I would be very glad if they actually came up with something that covers ALL symptoms and then just take the one....maybe the younger sufferers may be lucky enough to still be able to be here to get to trial "The" drug..................an xx to you too.......Bron
    • victoria21810
      victoria21810 bronwyn97278

      Posted

      Hi Bronwyn I take a Lyrica, zapain, a fentynal patch, an anti acid, and fluoxetine.  Xx
  • christine26761
    christine26761 victoria21810

    Posted

    To the moderator;

    WHY ON EARTH HAVE YOU MODERATED MY BLOG TO VICTORIA21810. THERE IS NOTHING IN IT THAT WARRANTS IT TO BE MODERATED????? Just don't understand??? :-(

    • Emis_Moderator
      Emis_Moderator christine26761

      Posted

      Hi Christine,

      It is because there is an issue where some innocent posts get caught up in the moderation process. The problem is if a space is not left between sentences the software to "catch" links thinks the text is a link. In your post it was out.be - the .be is an internet domain so it is treated as a link as shown here. We are aware of this problem and are going to improve the software. I edited the space into your post and approved it so it is now on the discussion.

      Regards,

      Alan

    • christine26761
      christine26761 Emis_Moderator

      Posted

      Thank your for this reply, I really appreciate this blog, I must be careful to check my posts now for these things.,:-) xx be blessed..have a lovely day... 
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