Clumsyness is getting worse with the twitches!

Ingrid I suffered exactly the same issues as you earn I still worked but I the end was medically retired xxx I miss my job so much and my work colleagues. My kids are all grown up bar my youngest but he's 17 and very independent. I feel like Ido t have a place in the world right now  😥😞

Does anyone else suffer from complete exhaustion and lack of interest in just about everything with Fibro...I hate this, and I'm coping with it as well as I can...I can just raise my arm and the pain is terrible....I think out of all of it, exhaustion is the worst...I will have to take my Lyrica asap....some of the side effects of that are weight gain, swelling, kidney problems, etc...You just can't seem to win with Fibro....

Yes to that too, Victoria; I think that is what many of us feel.....I really miss my work too, and for the same reasons........it is just not the extra income that is really the issue, it is the "outside contact"....the work colleagues and also the feeling of "being uselful to society".......I always wanted to work untill 55, and then even part-time........but when this is taken from us, this is where the depressed feelings arise.............what are we supposed to do?   my husband/kids/others say "do some voluntary work"....but that's not the point....if we were physically  able, we would still be at our Beloved jobs/careers, in the work we loved/knew/enjoyed.............that's my input for today.............Bron

I have and almost all Fibro sufferers get Chronic Fatigue Syndrome too..

I just dropped of to sleep even whilst having a bible study once, this was before I was properly diagnosed with Fibro..it's just sooo exhaustive at times..at first the specialist though it as all CFS until he tested me with the  points later on...not so bad now..30yrs down the track..but I guess you learn what will bring it on...be blessed carole...have a lovely day..:-) xxxx

Yes to what Christine says Carol; ALL of us suffer from the CFS as well as the Fibro......some even feel that the CFS comes first, and then the Fibro follows on, but to me I Think it was the other  way around.....I didn't feel the Sheer Exhaustion while I was still working (and existing on 5 hours sleep a day, between raising young children and working shift work); but the CFS came on after I had my hysterectomy and what appeared Like Glandular Fever, following this.....I Just did not seem to get over the surgery.....always just wanted to Nap, and then docs became concerned as I was worse than when they discharged me from the stay in hospital following surgery......did many tests (including a Complete Body Scan to make sure that they hadn't missed something), but nothing showed up....so this then became something else to deal with...the Chronic Exhaustion, but am going to reiterate that since starting my Thyroxin, I can last a Lot longer now, than this time 6 months ago.....hence my suggestions that we that suffer from CFS should all trial Thyroxin for a few months (even a low dose), and see if we improve at all regarding the fatigue?????   eg, today I have gone ALL day, including an hour's drive each way to visit hubby in hospital, and not tired, but the Fibro pain is there (my TMJ is playing up from doing too much talking, and arms are sore, even though I did not do the driving)........after awhile, as others say, we Learn to pace ourselves and we know what we can and can't do, and when to and not to................​love these faces as they really tell you guys/gals how/what I mean...........Bron

Hi Ingird, I'm sorry you are going through it at work. I had to leave my job in the end as I couldn't cope with the backlash for my mistakes. They didn't care about my illness and in the end after a period of sickness I resigned my post. I am now on ESA and in the support group which means I am deemed unfit for work and. I don't have to go on job interviews to get my benefit.  It's not a massive amount of money but it use about covers the part time hours i was doing at work.  Why don't you have some time off and she how you feel.? Xxxx hugs