Cognitive behavior therapy
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I was just officially diagnosed with fibromyalgia three days ago, although I believe I've had it for quite a while. My rheumatologist told me that there are no medications that help fibromyalgia. He told me that I have to take control of fibromyalgia or it will take control of me. I was told to start cognitive behavior therapy to help with dealing with my pain. He told me that most people with this condition have had an abusive childhood (but not all people) which would explain why I have this chronic illness now! I'm curious to know if anybody has tried this kind of therapy and it has helped? How many of you have had an abusive past (if you're willing to share)? Thank you in advance :-)
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TeresaJS Livefreetoday5
Posted
I do believe fibromyalgia is co-related with trauma but not only childohhod trauma. It can be revived childhood trauma or adult trauma.
As for meds: you doctor doesn't know what he's saying: for eg. ask him about LDN.
Soon fibromyalgia will leave rheumatology scope. Although it's the body that hurts it has a lot more to do with neurology and endocrinology.
Sleep well. Teresa.
lisa52101 Livefreetoday5
Posted
My husband and I were also held up during our work at gun and knife point, thankfully neither of us was physically hurt. So the point I'm making is that any of these things and a few other major events in my life could well have triggered my fibro. I have seen a couple of really good therapists and one pretty poor one.
For me cbt helped me come to terms with the events that plagued me. So if you find a therapist that you feel you can work with, then go for it. I'm all for trying most things to see what works and what doesn't
Good luck
Casper4081 Livefreetoday5
Posted
My first instinct is to tell you to find a new doctor. I've had fibromyalgia for at least 20 years and did not have a traumatic event to bring it on. I believe mine started when I took antibiotics for a year to ward off urinary tract infections that I kept getting. They totally depleted all my good bacteria and I developed a host of problems that I still have today. I believe some meds help but it is a crap shoot to find which ones will work for you. Some will help with various symptoms but will not relieve all your pain. Some relief is better than no relief in my opinion. What works for one does not always work for others so a good doctor will be willing to work with you to find the right medication or combo of medications. My doctor is always open to holistic options as well as traditional meds and has a wonderful listening ear to try to develop a new plan when one doesn't work. I'm very sensitive to meds and have had some trouble with side effects so don't be afraid to try something new if what you are currently on isn't working after a couple of months. If your doctor isn't willing to try medications, I would run for the hills and get a new doctor. Just my opinion. Good luck on your journey.
TeresaJS Casper4081
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Maggers Livefreetoday5
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Sounds much like my consultant on diagnosis day.She wrote "fibromyalgia" on a piece of paper and told me to go research it myself as she did not treat it and would discharge me back to my GP. Her only advice "Positive mental attitude otherwise you will never get out of bed."
On the drugs front - I can't cope with the side effects so use supplements, diet, hypnotherapy, epsom salt baths, exercise and a good dose of humour to see me through. Without the folks on here I think I would have gone under!
TeresaJS Maggers
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They say long hugs increase oxytocin that in turn lowers stress hormones and promotes wellbeing.
Maggers TeresaJS
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Bee70 Livefreetoday5
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I recommend all to give this therapy a try. It doesn't take the pains away but does bring mindfulness in your daily routine.
I believe not just people with illnesses but ALL should have these therapies as part of their lives. The world would be better place for us all.
Give it a try, NO meds are needed. Just your positive attitude to life.
x
loxie Livefreetoday5
Posted
I have seen various GPs at my group practice and gone through a whole list of tests and possible diagnoses, some convinced its definitely not fibro, one of which mentioned it but on subsequent appointment had appeared to move away from fibro. I've now been referred to a neurologist re the issues with 'brain fog'. I went for a first acupuncture consultation and treatment over the past weekend and the acupuncturist mentioned she had been reading up on fibro, as she needs to treat people with this syndrome differently. She said one eminent professional had run a series of tests on fibro patients and found that they commonly had excess lactic acid being produced. Apparently they had restricted blood flow/oxygen to the nerves/muscles and the lactic acid was being produced as a result, which then caused the pain. She also said that she's noted that of her patients, those with fibro symptoms tend to be overheated - she noted that my tongue was very red which denoted my body temperature was too high. She's recommended I cut caffeine from my diet (ie cut out my beloved coffee), dont smoke and do gentle but aerobic exercise to increase the blood oxygen levels. Obviously too early to tell if this will help but worth a try.
Maggers loxie
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I had to cut out caffeine too. I made it easy for myself and avoided headaches from withdrawal by mixing caffeine free coffee with the normal one on a ratio of 20% caffeine free to normal then increased until just caffeine free over a couple of weeks. May be worth trying. Can't say I miss the caffeine. Also I have gone refined sugar free and gluten free too and it helps.
Maggers loxie
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loxie Maggers
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Maggers loxie
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TeresaJS loxie
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TeresaJS Maggers
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loxie TeresaJS
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