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Colonoscopy report please help me understanding the results

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tazz1985
tazz1985

Hi Folks!  Just a quick history of mine: i have been suffering from persistent abdominal pain (burning type of pain) for the past two to three years and since then i have had frequent bowel moments (usually take Imodium once or twice a week to hold my BMs).I have been to numerous GI specialists and almost all of them diagnosed me with IBS-D . I have undergone numerous tests in the past four to 5 months i.e Stool Occult blood( Normal) Celiac disease test (Normal), H.pylori test (Normal),stool culture MacConkey agar ( Normal), CT scan abdomen and Pelvis with contrast (Normal) , Thyroid Profile test (Normal) ,FreeT4(Normal) and numerous other tests which came back normal.. I recently had a colonoscopy.. The GI doctor found nothing while doing the procedure but my biopsy report came back as " MILD CHRONIC INFLAMMATION OF THE TERMINAL ILEUM". I will see my G.I doctor after a week .What does my biopsy result mean? Is it conclusive of IBD?  please give me your opinion. And secondly i am just fed of this persistent pain in my abdomen and loose stools (been on numerous antibiotics as well and some of them usually did make my condition even worst). Thanks

0 likes, 29 replies

29 Replies

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  • sheila70301
    sheila70301 tazz1985

    Posted

    Ask for a cal protein test.
    • tazz1985
      tazz1985 sheila70301

      Posted

      Thanks for your reply. so you think that my biposy report isn't suffice for the diagnosis of IBD?

       

    • sheila70301
      sheila70301 tazz1985

      Posted

      I am not a medic and don't know but that was how the surgeon confirmed my diagnosis.  The calpractin feachel test confirmed his thoughts.
    • tazz1985
      tazz1985 sheila70301

      Posted

      Hi Sheila. so finally i went to see my GI she saw all the reports and said it is nothing serious as all of your reports are fine.. and also said that it is a MILD chronic inflammation of Terminal ileum so nothing serious and i have told her that i am just fed up of all this.. i.e almost persistent abdomen pain and discomfort and frequent bowel moments, don't like relying on imodium she said it is a gut motility disorder and try to not put your self in stress  and the medicine she prescribed me is rifaximin 550 mg once a  day for indefinite time ( i may take it on alternate day if i am feeling ok) i asked her it is an antibiotic how could i take it every day forever she said it is a non-absorbed antibiotic so don't worry about it and second medicine she gave me is folic acid one tablet once a day for 15 days and one antispasmodic three times a day for 15 days... I came  back to my home in a low mood. so today i thought i should undergo the calprotectin test mentioned by you on self basis. so i have given my stool sample for calprotectin test. The results will be ready by tomorrow ( will update you about my results). I don't know where to go... especially when you know that there is something painful going on inside me and the doctors told you it's nothing serious, its all in your head and bla bla... anyways take care and will update you about my results tomorrow.
  • Alfielefoo
    Alfielefoo tazz1985

    Posted

    Wait for your results,

    other things can cause this too, such as NSAIDs.

    i know it's hard waiting.

    when will you get your results? X

    • tazz1985
      tazz1985 Alfielefoo

      Posted

      Thanks for your reply....I have got the result of colonoscopy with me and i have mentioned the results on my main post
    • Alfielefoo
      Alfielefoo tazz1985

      Posted

      Sorry i meant results via GI.

      they should be able to tell you what was on the slides, rather than just inflammation.

      As someone else has said, noone here can diagnose you.

      Sorry that youre having a rough time.xx

  • jason35976
    jason35976 tazz1985

    Posted

    Hi

    Had chron's colitis (IBD) for last 13 years everytime I have had a flare up they have put me on steroids to control the flare and just recently oromorph for the pain. Have been on pentasa since first started also calceos tablets, it sounds like ibd especially with the pain and loose stools. Good luck with your G.I I have just moved from my previous G.I to a new one at another hospital and they seem better than what my previous team were.

    good luck 

    • tazz1985
      tazz1985 jason35976

      Posted

      Thanks for your reply. i will update you after visiting my G.I specialist.
  • Bong1968
    Bong1968 tazz1985

    Posted

    Sorry to hear that you're having such a rough time. I doubt very much if anyone is going to be able to give you a diagnosis on this site. You'd be better off waiting for your Doctor to confirm what is wrong else you'll find yourself researching stuff on the Internet for one ailment and you my have something completely different.

    I have had Crohns since the 1980s. I now have a temporary Ileostomy which produces what is fondly called 'high output'. This means that my guts have more or less turned into a liquidiser - due to the fact that the contents don't pass through the colon where water is absorbed. I have been prescribed Loperamide (Immodium). You can safely take up to six doses a day but, from experience, don't think you'll ever need to. Immodium also make a product called Immodium Instants which dissolve on your tongue and work very quickly.

    I can't agree with Pauls' solution of taking CoCodamol. This is a codeine based drug and although it's good for banging you up (as it's a Morphine derivative) it's only supposed to be for short term use. Any Pharmacist or Doctor will confirm this and it's because it's highly addictive.

    So - my advice is to hang on in there until you get a professionals diagnosis.

    all the best!

    • tazz1985
      tazz1985 Bong1968

      Posted

      Thanks a lot for your reply. Yes i do agree with you that i should wait for the professional diagnosis until i saw my doctor... But the point is that sometimes it just irritates me a lot to take imodium and sometimes even imodium seems to be in effective... All of this has vad affected my daily life routine.. imagine what to be done when you are doing your job...  and i have started avoiding any gatherings, events, lunch etc. anyways i will update you after seeing my G.I specialist.
  • Bong1968
    Bong1968 tazz1985

    Posted

    Yup it can be frustrating! 

    I work in a warehouse that is a million square feet with toilets situated at each end. This job also includes some pretty heavy lifting which can strain things.

    When I'm having a particularly watery day the Ileostomy bag fills up at alarming speed and I find myself walking to and fro from the loos constantly. It's also embarrassing to have what looks like a ballon under your polo shirt too!

    I'm always on edge as when these bags leak it's really not a pretty sight and you don't even get a warning like you do when you have 'normal plumbing'. The first sign of trouble is usually a feeling of wetness or something running down the inside of your clothes. Naturally this usually happens when you are trying to enjoy a meal in a posh restaurant or a night out with friends. Happy days!

    Another suggestion that may help would be to eat foods that bulk things up such as mashed potatoes, rice and jelly. These were all recommended to me in the past and helped.

    Anyway, rather than ramble on and bore you to tears, I look forward to your update and will keep my fingers crossed that you get something from your Doctor that will help. 

     

  • sheila51371
    sheila51371 tazz1985

    Posted

    Hi, I have read your letter and feel really sorry that you have had such a bad time of this.They have told you that you have inflammation of the illeum which I can tell you is extremely painful. I think there is every possibility that you have Crohns disease  which is enormously difficult to diagnose. I see you had a reply from Paul who obviously feels as I do that it will turn out to be Crohns. You reported feeling a burning sensation in your stomach. Well if you imagine an ulcer in your mouth the diagnosis they have give you from the colonoscopy would be at least 100 times worse than one little ulcer in your mouth. Does this make sense to you? then you have to remember that your motions are very acidic to your insides and what Paul said to you about Co-codamol will help to settle and minimise the times you go to the loo. I take a sachet of Questran, known as Cholostyramine which coates the bowel before you eat.  You will not help your general state by worrying about a diagnosis. Believe me if it was cancer they would know almost right away. I have a feeling that you are worrying about this..

    Crohns disease or Ulcerative Collitis is really bad enough. I have had the complaint for over 50 years, and no one can tell you why or how you got it. My own feeling is that some of us are born with allergic reactions to a number of things which brings about the ailments you are suffering from. You will get asked many, many times if you smoke. In my case I have never smoked, but they say this because they think your nerves are bad, and you will sort this by smoking. You are worrying because they can't give you a direct answer. I think you are reading Mild Chronic Inflammation of the Terminal Ileum as being something you are going to die from. NO the terminal ileum is the end of the small bowel, before it goes into the larger bowel. Please try to stop yourself going down this line, it will make matters much worse.

    When you see your Gastric person, ask for a direct answer and get them to draw a picture of where and what is happening to you. I have learned to be very straight with my Doctors.and they appreciate it, because they can then speak to you without being handcuffed by trying to find the right words. 

    Good luck and persuade yourself to be pro-active. Take charge of your own complaint. Sheila

    • tazz1985
      tazz1985 sheila51371

      Posted

      Thanks alot for your detailed reply. i feel that i am not alone suffering from all this , there are others to who still feel and face the same as me. Luckily I got an appointment with my GI today and i would definitely ask him about my problem and proper diagnosis and also which medications should i take to abate this illness. Cares
  • tazz1985
    tazz1985

    Posted

    hi ALL! so finally i went to see my GI yesterday she saw all the reports and said it is nothing serious as all of your reports are fine.. and also said that it is a MILD chronic inflammation of Terminal ileum so nothing serious and i have told her that i am just fed up of all this.. i.e almost persistent abdomen pain and discomfort and frequent bowel moments, don't like relying on imodium she said it is a gut motility disorder and try to not put your self in stress  and the medicine she prescribed me is rifaximin 550 mg once a  day for indefinite time ( i may take it on alternate day if i am feeling ok) i asked her it is an antibiotic how could i take it every day forever she said it is a non-absorbed antibiotic so don't worry about it and second medicine she gave me is folic acid one tablet once a day for 15 days and one antispasmodic three times a day for 15 days... I came  back to my home in a low mood. so today i thought i should undergo the calprotectin test mentioned by you on self basis. so i have given my stool sample for calprotectin test. The results will be ready by tomorrow ( will update you about my results). I don't know where to go... especially when you know that there is something painful going on inside me and the doctors told you it's nothing serious, its all in your head and bla bla...  :X
    • Bong1968
      Bong1968 tazz1985

      Posted

      My understanding of your post is that your GI has given you a long term antibiotic to treat the diahorrea, an anti spasmodic drug to stop the painful stomach spasms and folic acid (sometimes used to treat nausea?).

      OK, so she may be wrong but why don't you just give her the benefit of doubt for a month or two to see if these medications actually work?

      The more you wind yourself up about it the worse your symptoms will get. Stress and stomach issues don't go together. Trust me - I've been there. We all know you are not imagining it - the pain and discomfort is real but I truly believe if she says it it's nothing serious please don't convince yourself that it is.

      Maybe keeping a food diary for a while might show certain foods that make things worse? Things like sugar and gluten can aggravate a sore stomach..

      My experience is that no drugs work the same way for each individual and it's usually a case of trial and error to find something that suits.

      So please relax and have a good Bank Holiday weekend.

      We're all rooting for you! X

       

    • tazz1985
      tazz1985 Bong1968

      Posted

      Thanks a lot Bong1968 for your reply. I agree with you that I should give these medicines a time to see if they actually work may be a month or month and a half time. Secondly you are talking about the medicine if I am not mistaken it's a mixture of paracetamol and codeine phosphate???. Well let me see if the given medications work or not. If they don't actually work. Then on my next visit to her I may ask her for the medicine you told me.once again thanks
    • Bong1968
      Bong1968 tazz1985

      Posted

      Hi Tazz1985

      I think it was Sheila51371 who recommended the CoCodamol. I would only use that as a last resort. Personally I prefer to take just Codeine as I don't see the benefit of taking a Codeine and Paracetamol combined tablet if I don't need the Paracetamol.. It can always be taken separately if required.

      As I've said before I don't like to take it regulary myself as it can be addictive but, having said that, it is well known for bunging you up and I do have a monthly prescription of it due the the high output due to my Ileostomy.

      I am so glad to hear that you're going to give the prescribed meds a go. I really hope that you will be pleasantly suprised

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