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Colonoscopy report please help me understanding the results

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tazz1985
tazz1985

Hi Folks!  Just a quick history of mine: i have been suffering from persistent abdominal pain (burning type of pain) for the past two to three years and since then i have had frequent bowel moments (usually take Imodium once or twice a week to hold my BMs).I have been to numerous GI specialists and almost all of them diagnosed me with IBS-D . I have undergone numerous tests in the past four to 5 months i.e Stool Occult blood( Normal) Celiac disease test (Normal), H.pylori test (Normal),stool culture MacConkey agar ( Normal), CT scan abdomen and Pelvis with contrast (Normal) , Thyroid Profile test (Normal) ,FreeT4(Normal) and numerous other tests which came back normal.. I recently had a colonoscopy.. The GI doctor found nothing while doing the procedure but my biopsy report came back as " MILD CHRONIC INFLAMMATION OF THE TERMINAL ILEUM". I will see my G.I doctor after a week .What does my biopsy result mean? Is it conclusive of IBD?  please give me your opinion. And secondly i am just fed of this persistent pain in my abdomen and loose stools (been on numerous antibiotics as well and some of them usually did make my condition even worst). Thanks

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  • sheila51371
    sheila51371 tazz1985

    Posted

    Hi Tazz. At the moment you will not appreciate that the diagnosis was good. I think the problem is that because you were in so much pain and discomfort that you cannot believe that it isn't something to worry about.  I agree with Bong, try and give it at least two weeks before you feel that it isn't working.  Do think about the Co-codamol.   It helped me and I wouldn't be able to cope without it. I think Bong reported that it gave him weird dreams, but like all tablets they need time to see if it works for you. If your cal protein test is ok, take it as a gift that is good and then  persuade yourself to give the new tablets a chance.  Fingers crossed for you. Sheila
    • Alfielefoo
      Alfielefoo sheila51371

      Posted

      I echo both Sheila and bongs posts.

      maybe try some relaxation exercises , give it a go. Our mental worry does affect our physical pain.

      the non absorbed meds will work locally to treat your inflammation.

      ive had a couple of courses of antibiotics and shots of antispasmodics, and they did help.

      hope you feel better soon.

    • tazz1985
      tazz1985 sheila51371

      Posted

      Thanks Sheila. Yes the need of the hour is to give the new medications a time to see if they actually work or not.
    • tazz1985
      tazz1985 sheila51371

      Posted

      Hi sheila51371. I just got my Calprotectin test report and it says:      31ug/ g st and the normal range is less than  50ug/ g st. So my question is..... is it possible to have IBD while having normal calprotectin test and biopsy says Mild chronic inflammation of terminal ileum or this test concludes that i don't suffer from IBD in fect i am suffering for IBS..??? Kindly provide me with your opinion. Thanks
    • sheila51371
      sheila51371 tazz1985

      Posted

      Hi Tazz1985.  Only you will know exactly how you feel, and at a guess I am sure that you are definitely suffering from a bowel complaint. The only problem you have is that it is not fitting a normal diagnosis. Like I said to you before it is something you have to live with, but not one of us would doubt the discomfort and problems you are experiencing and suffering from. Own it and be thankful that it is nothing worse. I have been told that it would be good to take the little pots of "live" yoghurt

      They cost about £3. and help to mend your insides especially when you have a delicate digestive system. Good luck   

  • tazz1985
    tazz1985

    Posted

    Hi ALL.  just an update: I just got my Calprotectin test report and it says:      31ug/ g st and the normal range is less than  50ug/ g st. So my question is..... is it possible to have IBD while having normal calprotectin test and biopsy says Mild chronic inflammation of terminal ileum or this test concludes that i don't suffer from IBD in fect i am suffering for IBS..??? Kindly provide me with your opinion. Thanks
    • Alfielefoo
      Alfielefoo tazz1985

      Posted

      Hi tazz

      the calc test is another diagnostic tool used in crohns.

      your levels indicate that your not passing the cells associated with active inflammation currently.

      i believe that there is a small margin of error, however, all your tests indicate normal, except mild inflammation on biopsy.

      if you research terminal ilieitus, there are many many causes of inflammation, and Crohn's disease is but one.

      do you or have you taken brufen or NSAIDs? 

      For now, I'd try to accept what the doc has told you.

      im sure you will continue to be monitored?

      crohns medications aren't a miracle cure either as many others on here will tell you.

      im not a doctor, but as I've been told, thing usually show in stool and blood, and damage on cts and mris.

      i have had symptoms for 26 years, however, they came and went with periods of well being. I'd really rather NOT know, and awaiting a resection.

      having a name for it, hasn't helped me deal with it.

      i sense your anxiety in what you write, and I feel this is playing a part too.

      i may be wrong.

       

  • sheila70301
    sheila70301 tazz1985

    Posted

    Hi to alfielefoo

    i had a resection on the 2nd Dcember and felt s much better.  The dreaded rubbish feeling has gone.  I have a few setbacks since then but I hope once I get rid of this cold I will be back on course.  I have had to have antibiotics which I resisted for the first fortnight but wasn't getting any better.  My calpractin level is 505 ug.  I don't know how that figures because at last my Crp is normal.  biggrin  this is the first time for 5 plus years.

    • Alfielefoo
      Alfielefoo sheila70301

      Posted

      Thanks sheila!

      Im hoping it will be ok! Can you eat more stuff since having the op?

      X

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