coming off venlafaxine?

Posted , 115 users are following.

I have been taking venlafaxine for over 7 years and can admit that it saved my life a few times in the early stages. I have tried to come off them numerous times,during the past 3 years but have failed every time. The gp honestly dosent know how to help, cut down slowly, miss every other dose...I've tried everything. The side effects of withdrawal are horrendous...shaking, sweating, panic attacks, sickness, violent outbursts, suicidal thoughts. Ive read all the horror stories and truly feel sorry for anyone who has ever taken ven. I'm desperate to quit them but it seems impossible. Any advice would be much appreciated!

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  • Posted

    Thanks ken. I'm going to have to give it one final try, soon I think. Just need to be brave!
  • Posted

    Evening, I have never been on a forum before, but have found tonight that they hold alot of valuable information that I only wish my doctor had for me. I have been on venlafaxine for 6 months. I always struggled with drink, resulting to smoking cigarettes but this was totally excelled on the tablets. I recently saw my gp to tell him I was coming off of the venlafaxine because I'm biting my nails down to nothing, not eating, and overly smoking and drinking, infact they are making me compulsive with everything, like an anthetimin almost. He was useless. Why don't doctors warn us about the power of this drug when they easily prescribe it? I decided last week to wean myself off and tonight I'm going through torture. Brain zaps, insomnia etc. please help with any advice. Thank you
  • Posted

    Hi there. I'm so sorry you are having problems too and I totally agree that we should be warned of these horrible withdrawals. I wish we could somehow warn everyone against starting ven as its harder to give up than illegal drugs I bet! I still haven't managed to quit sad hopefully soon eh! Good luck with yours & please don't hesitate to seek help should the withdrawals become unbearable.
  • Posted

    Thank you Talulabelle. That's so wierd, that's the name of my youngest niece. Day 4, the worst day yet. Crying alot, head throbs and throbbing all over really. Headaches. I've found caffeine is making it worse so I'm reducing that now. I WON'T give in this time, those tablets are evil. Just getting through every withdrawal symptom thinking about how glad I am that this drug is leaving my system. Kind of looking forward to feeling like me again. I think I've forgotten what that feels like. My dreams and sweats last night were awful so I'm dreading bed time tonight. I am just throwing myself into working to keep my mind off this. Please keep in touch. Thank you for replying
  • Posted

    Oh gosh Vicky that sounds awful! Your so brave & you've done really well to get this far so keep at it smile have you tried asking for diazepam? Just for a week or so to help at night time maybe? I remember how awful it us from previous attempts - like having a bee buzzing in my head! I can't wait to feel 'normal' one day too...Ive been numb for 7 years or more so can't wait for that! Good luck xx
  • Posted

    Hello fellow ven users. I have been on ven only a short time (8 months) after being on citalopram for 3 months. The cit didn't really work, far too many side effect. But the ven did seem to work! sort of. Was on 150mg a day, split into 2 doses. Whilst my mood improved, my weight balloned, and felt nauseous most of the time, and if I didn't need to get out of bed! I didn't. I also found that I stopped caring! about house work, how much money I was spending, how I looked! also cared less and less for family and friends!!!!

    Anyway, about a month ago I realised I was forgetting to take more and more of the tablets. So cut down to just one a day. I felt fine on this dose, but then stated to forget to take just the one a day! having missed 3 days, I took one, felt more nauseous than ever, so decided to stop them completely. That was five days ago. Have felt down, cried, panicked, had brain zaps, vertigo but am not going to take them again. Oh yeah, sleep is now becoming rare, and nightmarish dreams wake me up if I do sleep... Oh well, but I am not going back to the drugs..... Good luck to you all, we will all get better and leave the drugs behind x

    • Posted

      Hi Mushroom,

      It's having the exact same effect on me as it did you.

      I've cut down by 75mg. I'm now on 150mg SR daily.

      I'm still having most of the effects, such as not caring how much I spend it eat. Struggling with eating junk etc, but I'm now making an effort to see friends and take my kids out places, which I couldn't do before. Getting out of bed and off the sofa was near to impossible for me.

      I'm relieved I'm not the only one suffering these horrid effects.

  • Posted

    Hi mushroom. Well done for quitting and you've done brilliantly! Keep it up smile may join you one day in quitting, just need to time it right!
  • Posted

    Hi ya, had I planned it, it would never have happened.... have been on loads of websites this afternoon, not the ones that tell you what might happen, but studies and reports about what did happen to peeps!

    On top off what I thought was withdrawal symptoms.... I now know the crappie bits that I have dealt with during the last few weeks (diarrhoea, flu like symptoms, total exhaustion, not liking anyone, eating rubbish food, then none at all! total loss of personality, confusion, severe headaches with shooting pains) sorry, but this is what I was experiencing, due to missed or late tablets!!!! I so did not connect the drugs with it... but now I have stopped, and checked it out..... I now know and would maybe not have done it with this knowledge...

    On the up side, I hope I'm over the worse bits, and the fact that I have carried on and stayed at work.... maybe I have control of the depression...

    When I was on the tabs, and feeling better, I did not understand the posts about how evil this drug is... I do understand now, but also want to add, its not an addiction, from my point of view, its an easier option as no one wants to feel as ruff as I have, and maybe I should have done it properly, slowly...... but an interesting thing did come up on the sites I looked at... a single or one or two prozac tabs (they are very slow half life SSRI's) removed all withdrawal symptoms from some individuals! interesting thought.

    Good luck, and never give up smile x

  • Posted

    ps: I meant never give up on trying to be well without drugs, and thankyou, you words and hope give me strength x
  • Posted

    Oh bless you, I know you meant don't give up on giving up smile I've tried so many times and have experienced all the symptoms you mention, just never been strong enough too see it through. I feel strong now thanks to many people like yourself, and I'm hopeful that one day soon I will be able to make it off these drugs! Thanks & good luck to you too smile x
  • Posted

    I am so glad I found forums like these. I started taken Venlafaxine in October last year and it really didn't seem to be doing anything but then in January finally saw a consultant psychiatrist who increased the dose. It wasn't until I got to 225mg XL OD that I started to feel slightly better but my scores hadn't improved much on those questionnaires they make you do so it was decided that the dose should be increased to 300mg daily, as 150mg twice a day as increasing from 150mg to 225mg of the XL made me feel really. Anyway the increase was a disaster for me, after 5 days I started to suffer badly from those very rare side effects quoted on the leaflet. At first not needing to sleep at all was great (before I had trouble getting out of bed) but I was basically 'high' all the time, in the end I started had a panic attack at work it had been over a year since I had one, severe sweating, heat intolerance so if it was warm I would feel very faint, tremors, palpitations, racing heart and I nearly collapsed when trying to climb the ladders to put things in my loft. Turns out my blood pressure had become really high too so I had to come of venalfaxine cold turkey! At the time I thought oh the withdrawal can't be that bad, the leaflet doesn't suggest that it will be and the consultant didn't seem phased at all by the prospect of me stopping 300mg daily abruptly.

    I started Lofepramine the next day which was supposed to prevent/ lessen any withdrawal and serve as my next antidepressant (I have tried cit, sertraline before with no luck) and the psychiatrist gave me some diazepam to help calm me down as I was supposed to be on bed rest because of the effects on my heart, kind of impossible when you are so hyper!

    Anyway I have been to hell and may have finally made my way back. It was only the forums and other peoples experiences that helped to understand what was going on, the leaflet is useless!

    The first 3 days were the worst, I had drenching night sweats, horrid dreams, severe vertigo which caused vomiting, tremors, the brain zaps (which i had never heard of but they do exist) and if I didn't take the diazepam I didn't sleep at all, but because I was effectively 'high' taking the diazepam and sleeping meant I dreamt at lke 100 mph it was soooo disorientating so after day 3 I stopped the diazepam. I was in a terrible state and crying all the time but then I get distresed when I am physically very unwell anyway. By day 4 the sweats weren't so bad, the vomiting was bad (but I hate vomiting), I figured this vomiting was due to vertigo and found that travel sickness tablets helped a lot (I tried kwells first with good effect then got sea-legs (meclozine) so I only needed to take them once a day). By day 6 the night sweats were gone but I was still really dizzy and feeling sick. The dizziness started to subside and my sleep improved. Now it is day 15, I have more energy and have spent the last two days out of bed all day. I'm still having problems with my stomach, severe nausea and some vomiting but with the help of some domperidone that is definitely getting better other than that I feel pretty good. I am planning to go back to work next week (I will have been off sick for 3 weeks)

    I can honestly say it was a horrendous experience and I seriously considered not starting the new medication but I know that without medication at all I was suicidal so it isn't really an option for me. I am not sure how much the lofepramine may have helped with the withdrawal or whether the switch complicated things more. Also I always suffer really badly with my stomach whenever I start new tablets of increase doses so the extended duration of my stomach problems may not be normal.

    I wanted to post this because while going through this all I wanted was an idea of how long things would/or could possibly could last? I have no support network at home so have had to go through this on my own (possibly a good thing in some ways considering the violent mood swings) and sometimes for me knowing how long and whether other people have experienced the same things gives me some comfort.

    Tulabelle: If i'd have had the choice I obviously would have withdrawn the ven slower and planned it better but it wasn't an option for me. My GP seems to think that being on immediate release tablets may have made it a bit easier so swapping from XL to immediate release in the first instance may be helpful and makes it easier to cut down gradually, and I think they also do a syrup so you can do it really slow if you want.

    The main thing I would change if I could though was to not have to keep getting up and heading down to the pharmacy or GP for help when all you really want to do is stay in bed. So if you plan it and your GP is willing to help, you could have some diazepam, tablets for vertigo and sickness all at hand to make these symptoms more bearable. I know some doctors refuse or don't want to recognise that these symptoms occur but we know they do and and there are other medications out there that can make it a bit easier. I understand though that some people won't want to take any other tablets, I just don't think I could have coped without.

    Anyway thanks guys and good luck and be strong because the withdrawal doesn't last forever x

    • Posted

      Hi, thanks for your post.  I am feeling exactly the same right now.  I am going through the same thing.  How long did it take to get through this and what other symptoms did you have?   Did the motion sickness tablets help because I can barely walk without what to fall over and vomit.
    • Posted

      Thank you for sharing your story here, I'm bawling my eyes out as I type this. Am on day 6 of NO Ven, after being on 185.5mgs for 5 years, and weaning down to 37.5mg over three months - the doctor said I should wean off over six weeks - yeah right!!! I was on 37.5 for a month, until my body stabilised, was feeling quite good at the time, but now I feel like I'm dying!! Anyway, your story has given me hope beyond Venlafaxine, and I know that one day all will be good within me and with the world. Coming off this drug has been the most awful experience of my life, the side effects are totally debilitating and, as I lay here on the couch feeling sorry for myself, I take great comfort in knowing that I am not alone!! Thanks again to you AlwaysHoping, and everyone on here - you all ROCK. (ps I'm in New Zealand).
    • Posted

      Thank you, thank you, thank you AlwaysHoping. After searching and searching for someone to tell me how long their side effects last for, I found you! I however had not quit cold turkey like you. I get so disgusted how DR. can suggest that to people. Worse, put people on this drug without the warnings of getting off of it.

      I went from 225 mg as of last month to zero as of today. I kept taking 4 beads out eachday. Let me tell you, cold turkey or not, the side effects are just as bad. I know everyone is different with how long the side effects will last, but at least I can get a ball park idea. So thank you! And so happy for you that you beat this! I will definitely do more research on a drug the next time I take anything. I have been also thinking about doing some kind of movement to prevent Dr.From doing this to people.

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