Genital Herpes: Useful info for those looking for answers like me!

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Ever since I suspected genital herpes (GH) and was recently confirmed to be going through a primary outbreak of HSV-2 (ugh, the "bad" one), I have been researching the topic like crazy! Guess that's a pretty normal thing to do, lol, and I'm sure many others here have done the same.

Anyway, I thought it would be helpful to share everything that I have learnt thus far, and I will continue to add to this thread as I come across more useful, interesting and/or relevant info.

Genital HSV symptoms https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776485

Testing for HSV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776488

Does having one HSV type protect you against the other? https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776489

Autoinnoculation (self-contagion to other areas) https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776492

When is genital HSV most contagious? https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776494

Genital HSV transmission risk https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776497

Antiviral meds for genital HSV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776501

Natural treatments for genital HSV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776503

Genital HSV and increased risk of HIV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776505

Transmission risk via inanimate objects, swimming and blood https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778698

Genital herpes and menstruation https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778703

Genital herpes and BV and yeast infections https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778708

Is there a vaccine for HSV-1/2? https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778714

Possible complications of genital herpes https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1782789

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  • Edited

    Testing for HSV

    In the presence of symptoms, a lesion swab should be taken. DNA testing is more accurate than a viral culture. First outbreak lesions and new lesions are better than recurrent lesions or those that have already started to heal (may result in a false negative).

    In the absence of symptoms, an IgG antibody blood test can be performed. This can also establish which HSV type you have, but NOT when you acquired HSV (unless you test regularly) or which part of your body is infected (the exception being HSV-2, which is nearly always genital). False negatives are possible if testing is done too soon after a new infection (should wait at least 6-12 weeks after exposure, even 12-16 weeks) or if antiviral meds are being taken.

    The IgM blood test is NOT recommended in the case of HSV due to the recurrent nature of the virus. Some providers do not understand this and falsely believe it can establish when an infection was acquired, but this is NOT the case and is a waste of time and money.

    http://www.ashasexualhealth.org/stdsstis/herpes/herpes-testing/

    https://drjengunter.wordpress.com/2013/01/19/understanding-blood-tests-for-herpes/

    https://drjengunter.wordpress.com/2013/06/17/igm-blood-test-for-herpes-just-say-no/

    • Edited

      Regarding HSV-1/2 antibody testing after possible exposure, the following should be noted:

      2-4 weeks, antibodies *possibly* detected

      6-12 weeks, antibodies most likely detected

      12-16 weeks (3-4 months), highest accuracy

    • Posted

      About false positives/negatives:

      Those with prior HSV-1 may produce a low false positive for HSV-2 by IgG testing. In such cases, an individual can re-test after 6 months from exposure, and if no significant change in results, he/she can opt to undertake the more expensive and less readily available HSV-2 Western Blot test. This has a slightly higher accuracy rate than IgG and can determine true infection in the majority of low positives with prior HSV-1.

      False negatives by IgG are usually due to testing conducted too soon after infection. Enough antibodies must be present, which is why it is important to note the above window periods for HSV (usually 3-4 months, but up to 6 months for some individuals).

      While viral cultures for HSV may produce false negatives, they do not produce false positives. DNA/PCR swabs are far more accurate and conclusive, and can even be done on older lesions, as the test looks for amplified HSV DNA.

    • Posted

      If I have HSV-1 and my partner and I have unprotected sex and I give him oral, will I get it on my mouth?
    • Posted

      Is it possible to be a carrier never had an outbreak no idea you have hsv 2 and still pass it on to someone? If a person is a carrier and never had an outbreak what tests are available to check if the person is a carrier?
    • Posted

      Yes, it is possible to be a carrier without symptoms yet still be able to pass it on. In that scenario, you need to do the IgG (not IgM) antibody test.
    • Posted

      Dr. Halford has developed a new ABVIC test that will soon be available for better testing for HSV.  It was recently published in the American Journal of Viriology
    • Posted

      If I had to meet someone and he has HSV 1 but i have Hsv 2 can i get HSV 1 if i kiss him and he won t have lesions. And what else should i be aware of. As Hsv 2 attacked me so bad that I am afraid to get anything else as i was tested and I don t have hsv 1.
    • Posted

      I had contact with an ex who I had not been with in over 3 years. Immediately after, I began with symptoms, my doctor diagnosed me with Yeast Infection and BV. After several rounds of antibiotics I still feel the same way, at 5 weeks I tested with a positive IgG for HSV 2.16. I was told this was something I've had for years, my last test was 4/2011 negative. I am almost positive I got this from my ex, I've only had one other partner in those 3 yrs in which I've never had any symptoms like this contact. I've been in contact with Virology Department- UW, just trying to get answers. Do you think that the BV could have created antibodies that effected the test? And are you aware of testing too early that will show a low positive but if I retest in 12 to 16 weeks if my level is higher than it could determine if it is new exposure?

      Thanks! 

    • Posted

      BV has no bearing on the IgG test for herpes. It is certainly possible that this is a new infection from your ex. If so, your IgG index value should be much higher by 12 weeks. If not, then perhaps it is an older infection, though that seems unlikely from what you've said.

  • Edited

    Does having one HSV type protect you against the other?

    Those with genital HSV-1, followed by those with oral HSV-1, are somewhat "protected" against genital HSV-2, but this is NOT a sure thing. It is still very possible to get HSV-2 on top of an existing HSV-1 infection, and in such cases syptoms are more likely to be greatly reduced or non-existent, resulting in asymptomatic HSV-2 carriers.

    Those with genital HSV-2, on the other hand, do not tend to contract genital HSV-1, although oral HSV-1 may still remain a possibility (not been able to find anything on the latter).

    Also, oral HSV-1 largely protects against genital HSV-1, but again this is NOT a sure thing (exceptions exist), while HSV-2 rarely ever results in an oral infection in anyone (nearly *all* HSV-2 infections are genital).

    http://www.medscape.com/viewarticle/820140_5

    http://www.herpes.com/hsv1-2.html

    • Posted

      I have always had herpes simplex 1 on the mouth I was born with it. I had more cold sores as a kid constantly I haven't have much since as an adult. I think since 20 to 34 I have had 5 break outs. So I am hoping since I already had the herpes virus the gentile herpes won't be that bad on me
    • Posted

      I have since confirmed that HSV-2 (after enough antibodies have been established, so in 3-4 months up to 6) does protect against both genital and oral HSV-1. Small consolation!
    • Posted

      From what I've read, if you already have hsv1 in the trigeminal ganglion (behind the eye) it is harder for hsv2 to also affect the same ganglion, especially since type 2 likes the sacral ganglion. If you have hsv1 in the sacral ganglion, then it would be harder for type 2 to find a home there. This would benefit the patient as type one obs happen less frequently, and generally are gentler
    • Edited

      Type 1 offers limited immunity due to similarities shared with Type 2, but not enough immunity to prevent Type 2 infection, only to help keep it under control, hence the reduced (or masked) symptoms with secondary HSV-2.
    • Posted

      Yes, it's possible, but luckily not very common and causes next to no issues if contracted orally. Also protects against subsequent genital infection.
    • Posted

      Does that means that I cant do oral anymore since I have hvs2 ? Im afraid I will pass it to my boyfriend mouth or somewhere else
    • Posted

      Oral should not be high risk, but you still need to avoid outbreaks and prodromes. Meds can help further reduce transmission, but if he already has it or is your giver, then this is all irrelevant, hence why you should talk to your ex, and talk to your bf and have him get tested, etc.
    • Posted

      My ex gave me the virus through oral he didn't have any symptoms but was clearly in his system. And me being one of the 1% didn't have the cold sore virus in me in which 98% people carry. I was very unlucky. All for 10 minutes of fun we had I am now scarred for life. It just devastated me.
    • Posted

      Actually, I think it's more like 70-80% who carry HSV-1, so you are not quite such an unlucky rarity! Type 1 genitally really isn't that bad for most people, and it recurs and sheds less than oral Type 1. Easier to explain to future partners and for them to accept, too, since you can just say that you carry the cold sore virus. smile
    • Posted

      I was in that percent I never had any hsv1 or 2 in my system so unlucky
    • Posted

      Do you mean you get herpes on your eyes? I recently contracted genital herpes from my husband's oral herpes. I used to be a CNA with extra medical knowledge. But I've never heard of getting this in your eyes. How does that happen, the blister juices and rubbing your eyes? Anyone have any help on how to dry out a popped blister? I'm on my 7th breakout in 9months and this one is like the first one with a lot of blisters (large) in a big grouping. I could feel a huge bump 2 days before they came to the surface. Thanks in advance for any help.

    • Posted

      Yes, herpes (in particular HSV1) can be transmitted to other body parts, including the eyes (you can Google it). Once you have had herpes at a location for 4+ months, however, you should be immune from getting it elsewhere, but I would still avoid touching a lesion then immediately rubbing your eyes without washing your hands first. No need to tempt fate, right?

      That is a lot of recurrences for genital HSV1. Did you ever have the type confirmed by swab? In any case, you may wish to consider daily suppressive therapy if it's that often and depending on how bothersome you find them. If you're not on the oral meds, whether for suppressive or episodic therapy, you can try acyclovir cream to help hasten healing. Zinc oxide helps with drying, as can soaking in an Epsom salt sitz bath (provides relief, too).

    • Posted

      TThank you for your response. I haven't been tested yet. My husband used abreva for his cold sores and it helped me a little. Now he switched to oral B min that has numbing in it, that seems to help my dry out quickly. I will definitely give the others a try. Also I will get tested immediately. Can they tell by a blood test or by swabbing only? Maybe I haven't had that many outbreaks, it just seems like it's been that many since it sometimes coinsides with my hubby getting cold sores. Thank you Feliz. It really means a lot to be able to get this much info. Sometimes the Internet is as confusing as life, with as many posts that may be true or not. Like webmd, put in a few symptoms the other day trying to find why I an do fatigued, sleeping all day and can go back to bed to sleep another 18 hrs. Says I may have diabetes. Thanks again and thankful you're still here to give help from a 2yo post. Have a great weekend

    • Posted

      I'm surprised it didn't say you have cancer! Isn't that the running joke with those online symptom checker sites, lol? I always get more freaked out when I start googling symptoms online, and those symptom checkers are no different, imo. So many things can cause fatigue, incidentally, even stress, peri/menopause, etc.

      But back to herpes, more than happy to help. smile You can test without lesions, although a swab test on a lesion is the most accurate test if done on a fairly new lesion that hasn't begun to heal (risk of false negative increases). If testing by blood, avoid the IgM test for herpes, as it is notoriously inaccurate and unreliable.

      Even the better IgG test is not without its flaws, especially if using the HerpeSelect kit (risk of false positives for HSV2 is a possibility in some cases, for example). Regarding the IgG test, you must also clear the test window period for 'conclusive' results, so 3+ months post known or suspected exposure/infection.

      Herpes doesn't pass back and forth or get triggered like that, so that's odd if your outbreaks seem to occur at the same time as your husband's. Do they typically occur before a period? Now, that is a known trigger for some women. Also the friction of sex.

      Have a great weekend yourself!

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