Overactive Thyroid Graves Part 4

Hello everyone.

Hi Scott. I get fluttery feelings in my chest and throat too. It's usually worse in bed, but I also get them during the day .I had to wear a heart monitor for twenty four hours a long time ago and it didn't show anything.

It would be best to get them checked out. Perhaps you could try to get your endo appointment brought forward.

Marigold.

I went ahead and scheduled an appointment with my crappy PCP for tomorrow morning. We'll see what he finds out. Thanks, all!

Hello Scott

How did you get on at the doctors ?

Take care Deb xx

Hello All, and hello to Scott, how are you feeling? Can sympathise with you, as for the last two days I've also been having weird feelings in my chest. Kept me awake nearly all night and increasing anxiety not making it any better. Am wondering if on my 'block & replace', my intake of thyroxine at 75mg is too low now? Has anyone else had this effect? Will have to see my GP tomorrow.

Hi everyone, I have just been diagnosed with an auto immune related hyperthyroid condition. I have had symptoms for about a year and recently my hair started falling out. I ignored the symptoms for so long because I have been to various GPs with strange symptoms over the course of my life and was convinced by them that they were in my head, even as far as being sent to therapists. So when I was having heart palpitations I assumed I was having panic attacks and not being able to get out of bed was because I was depressed.

I've been put on beta blockers but was told I need to wait to see a specialist before any other medication could be prescribed. I have enough energy to still be able to do my job but that's it, my free time and days off I can't find energy to do much of anything. I was considering reducing my work commitments until hopefully things improve. Anyone have any helpful advice for dealing with things until I see my specialist.

Hello everyone

Hi Stefania I hope your feeling better today , did you go to the doctors? Marigold might be able to help you with the block and replace bit as I've never been on that . I know what you mean about the anxiety , it just makes things worse.

Hi Amanda

I hope the betablockers are helping , I don't understand why your doctor hasn't started you on carbimazole or something for the thyroid, I was started on them straight away .

Maybe it might help if your doctor put you on sick from work for a bit till your feeling better, I didn't work for some months when I was first ill but I work for myself so it was easy for me to take the time off.

Did they give you any idea how long it will be till you see a specialist ? Do you know what your thyroid levels were .

How's everyone else marigold ,kat,Sue,bess ?

Take care Deb xx

Hello everyone.

Hi Stefania. What dose of Carbimazole are you on?You may be on too much thyroxine if you're feeling anxious. Did you manage to see your GP?I hope you feel better soon.

Hi Amanda. Welcome to the forum.I had panic attacks too, and was told they were due to stress when I'm sure it was my thyroid playing up. My GP just started me on betablockers and I had to wait until I saw the endo before I went on Carbimazole. Fortunately I didn't

have to wait long. If you have a long wait go back to your GP and ask if he can hurry the

appointment up.

I know it's awful feeling tired all the time, but try and rest as much as you can. You'll start to feel better once you get some treatment. Take care.

Thinking of everyone.Bess, Kat, Sue if you're reading this let us know that you're ok.

Marigold xx

Thanks debs and marigold, I just received an appointment letter for January. I'm a manager, so I asked for a position with fewer responsibilities that has been advertised. Was told point blank no to part time and they are mucking me about with the other position, so may need to get signed off, which I really didn't want to do!

How long does it take usually to get to some sort of normality after the endo gets involved?

Hi Amanda.

I'm sorry to hear you're having work problems when you already have enough to cope with.

You'll often find that you don't get a lot of sympathy when you have a thyroid condition as

you usually look fine.

Once you see the endo and he starts you on carbimazole you'll start to feel a lot better.

I was told that it took about six weeks, but I felt loads better in a couple of weeks.

Did they tell you what you're thyroid levels are?

Marigoldxx

Hello gang , marigold,bess ,debs,Dave etc..

How are you all ? Sorry I've not been on in a while ,had a house move to deal so her in doors has been keeping me busy .

Hope you are all coping and feeling well for Xmas .

Take care baz

Hi everyone ,just to let you know why i havent been on. First i went to majorca for 2 weeks and ended up with the norovirus ,spent a week in bed there it took me a while to get over it then i went to help my son in his fish and chip shop ,aswell as doing all the washing then helping with the waiting on and washing up not to mention eye holing the potataoes i was absolutley knackered lol,lol he often caught me asleep about 2 in the afternoons,..then i went to salou with this woman and her grandson for a week ,never again she was a nightmare ,she never had a wash or shower from the tuesday untill the saturday when she decided to have a bath , then got stuck in the bath i had to call reception to get help to get her out,lol the man who came to help asked if she wanted to change rooms with a walk in shower , so we changed rooms but i warned her she had better make use of the shower .She only took one pair of trousers for the week Dirty so and so .

I have been doing well on armour untill this last month when i started to feel really cold again ,falling asleep alot and generally not feeling myself again ,my T4 was 9.5 and this month 10.5 my ref range is up to 23 ,also i think my cortisol is low as i have the most painful back (up the spine and across the top of my back ,and i feel so so sickly all the time .,i am hoping i can get an app tomorrow with my gp.

how is everyone ,marigold how are the grandchildren ,bess how are you x debs and you

,anyway heres wishing you all a happy christmas

love sue xx

Hello Gang.

Hi Barry. Good to hear from you. How are you doing? I'm fine except for migraine auras.

They come in clusters. I'm fine for a few weeks and then they start again.

We were hoping to move house, we were about to exchange when our buyers started messing us about so we've taken our house off the market, and we'll start again in the Spring.

I'm pleased her in doors is keeping you busy.

Hope you have a happy Christmas, and please keep in touch.

Marigold

Hi Sue. Lovely to hear from you, we were wondering what had happened.You sound full of busy. I don't think I could work in a fish and chip shop, I'd eat all the chips.

That sounded like a smelly holiday, you should have taken a clothes peg. I don't know how anyone can be like that, I can't stand being dirty. Did they have a crane to hoist her out of the bath?

Our grandchildren are fine and looking forward to Christmas. Our gdaughter told her daddy he'd better be good as Santa's watching. How's your grandson?

I hope you manage to see your gp, your t4 is low.Let us know how you get on, and please keep in touch.

We haven't heard from Bess for a long time. I hope she's ok.

Thinking of everyone.

Marigold

xxxx

Hi marigold glad you are doing ok .. I've been getting more and more anxious spells over the past few days and it is starting to worry me. Have you had many bad moments since you had rai ? I remember we had it around the same time.

I've not had my bloods done now for 6 months and my tsh readings were 3.9 then.

I get worried when I feel odd because I start to think it's coming back.

I'm on 50 mg of thyroxine now and also still take propanolol ( which do help).

Hope everyone else is ok and a happy welcome to the new people..

Take car baz

Re-joining after quite an absence, and still doing OK. Have (just about!) caught up with things, and see most of you who've had RAI get the same after-effects - for ages afterwards - as me!

What I will say - rightly or wrongly - is that there is a dose of thyroxine that is "right for me", irrespective of blood counts, TSH levels, doc's opinions, etc, etc! Some of us will be on quite a low dose, others higher. I 'should be' on around 75mg, but my bod and I know that nearer 90 is about what I NEED to feel like a human being and maintain a sensible weight!!!

Does anyone else feel like this? I argued this with a locum doc recently, and he let me gradually increase over a period of time until 90mg seems to be great! I wouldn't recommend doing this solo, but do please challenge your professionals if you're not feeling well or, as my Mum puts it - firing on all cylinders!

Hi Barry. It's three years since we both had the RAI. Where's the time gone?

Moving house won't have helped your anxiety. I still have anxious spells, and I tend to go over conversations, especially when I'm in bed. I'm not as jumpy as I was though.

I had my bloods checked in July. My tsh was 3.75 and my t4 18. That's about right for me.

Getting my blood checked does me no good at all.There's such a performance to get the results. It's like the Secret Service. I tend to think that if my weight is steady then my bloods are ok.I'm on 50 mcgs of thyroxine too.

I stopped the propranolol some time ago.When I started with the migraine auras my GP suggested I went on preventative treatment.However, they stopped, but now they've come back so I'm deciding what to do. One of the drugs he suggested was propranolol, so I'll ask to go on that as I was fine when I took it before. One of the other things you can have is Botox.I don't fancy that, but I wouldn't mind being airbrushed.

I hope your anxiety settles down.

Marigold.