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Dizzy for the past 8 months

Posted , 19 users are following.

kyle16160
kyle16160

Hi it all started out of the blue 8 months ago. I woke up one morning and felt dizzy out of nowhere and it never left. I have constant dizzy lightheaded feeling from the moment I wake up to the moment I lay down in bed. The only time I don't have it is when it's dark in my bedroom and I'm laying down sleeping or watching a movie on my phone in bed. I have been checked for diabetes and I have had an Mri done , eyes checked and even tried chiropractic and acupuncture. My Docter thinks it's the inner ear and I am suffering from vertigo. But his diagnoses does not sit well with me because I have no feeling of the room spinning it's hard to explain its more loke lightheaded dizzy rocky feeling. I do have an appointment to see an ENT in a couple months but I have another doctor app comming up next week and wondering if there is any other test I can request in the mean time. The doctor did prescribe me serc 16mg I tried them for one day and stopped which I don't know if it was the right decision because I don't feel like I have spinning vertigo.

0 likes, 52 replies

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  • paula59
    paula59 kyle16160

    Posted

    Hi Kyle - I have all the same symptoms as you plus some more.  Mine is Migraine Associated Vertigo but I also dont have the spinning.  I am dizzy, it was 24/7 except when I lie down and have painful eyes.  They were also jumpy and I had pins and needles on top of my head, headaches, ears feeling full, neck stiff and cracky, painful cheek, jaw, teeth.  The back of my eyes felt like they were being pulled out.  It took a year to get a diagnosis of MAV and then a further three years to find the right med to ease it.  I am o n my third round of botox (to relax the trigeminal nerve) and gabapentin.  Ive had about 9 other meds.  Most of the head stuff has gone and the dizziness is only after about 8pm at night now.  Apparently its caused by extra electricity in the brain stem and whatever it crosses, those are the weird symptoms you get.  Ive researched it big time and there are a couple of sites on facebook that can help you.  MAV SUPPORT and VESTIBULAR MIGRAINE PROFESSIONAL.  I saw endless ENTs initially and a neuro surgeon and now I have two neurologists.  One is a headache specialist.  Its other name is silent migraine.  All the migraine aura symptoms without the painful headache.  Although i do get true migraines also. 
    • bertin_54
      bertin_54 paula59

      Posted

      hi paula i am 54 male i suffer whit bad headaches for the pass 4 year and now vertigo and dizzy 24 :7 for over one year .for the headaches i start pill call 5HTP and IT WORK GOOD . but i am in no other med...

       

  • paula59
    paula59 kyle16160

    Posted

    Forgot to say Kyle, you need to take the serc.  The sooner you get this stopped the better.  The longer it goes on, the longer it goes on.  It does sound vestibular to me so you are OK to take them.  It might just stop it for you.  Did nothing for me but you never know !!
    • anne05147
      anne05147 paula59

      Posted

      Procholerperazine did nothing for me either, think it is also called serc. 
  • paula59
    paula59 kyle16160

    Posted

    You also get brain fog !  Meant to add, my eyes were jumpy and still are if I go into a shopping mall.  Things too loud also.  Lighting is a big problem as are crowds.  Its over stimulation - all part of MAV. 
  • lynniebimbom12
    lynniebimbom12 kyle16160

    Posted

    Hi Kyle. I had a vestibular disorder for about 10 months. I'd like to say I'm now full recovered but stil occasionally get symptoms 'though nowhere near as bad as they were.After loads of hospital appintments with consultants, Gp's etc etc I had vestibular rehabilitation therapy and that was the turning point for me.

    ?The reason I'm writing this today is because alarm bells rang when I read your post saying that you watch movies on your phone in bed.

    ?One ( rather peculiar!) thing Ive noticed since all of this began )in exactly the same way as you BTW) is that looking at my mobile phone or laptop for any length of time would make my symptoms 10 times worse the next day. Weirdly ( and it's happening right now!) I get ringing in my ears after being on my laptop. It seems to bring it on out of nowhere. I know we're all different but I really wouldn't advise you to spend long periods staring at you phone or your computer. Hard I know but I don't think this will be helping you with your problem.

    • rocksolid
      rocksolid Monkey16

      Posted

      Nope, My new nuero thinks it Vestibular migraines and I had 1 round of Botox injections. Still waiting to see if it will help, but I don't have an answer as to why I am spaced out and it never stops for the past 6 yrs 24/7.

    • Monkey16
      Monkey16 rocksolid

      Posted

      I started 6 weeks ago - I felt 'dizzy' and not with it. My eyes were weird and would ache when I did anything.

      To cut a long story short I'm still constantly spaced out as if I'm dreaming - does this sound familiar ? I have notice me it seems to go worse at night or if my anxiety levels rise. Mornings when I wake seems to be best but it's still there.

    • rocksolid
      rocksolid Monkey16

      Posted

      Yes, It seems to get worse as the day goes. Yes, feels like a dream            ( nightmare) there are meds you can take for a vestibular migraine, go to a neurologist for that. Mine is trying Botox injections first to see if it helps. No luck yet.
    • Monkey16
      Monkey16 rocksolid

      Posted

      I can't decide whether it's anxiety that's causing my issues of if there is something going on vestibular related. I feel like I've completely lost my mind!

    • rocksolid
      rocksolid Monkey16

      Posted

      Felt that way for a long time. Try not to let it rule your life. like I said I have been doing this for 6 yrs everyday. You find a way to deal with it. Even though you don't want to feel this way, you have to find a way to just deal with it until you find an answer.

    • lynniebimbom12
      lynniebimbom12 Monkey16

      Posted

      Hi Laurie. yes, I felt totally spaced out to a frightening degree. So much so that I felt as if I was in a dream ( or maybe nightmare?). Almost like I was on the wrong planet!! Can laugh about it now but it frightened the living daylights out of me! I also had hard time believing that a vestibular problem could make me feel so weird. I was given several, possible diagnoses. First of all, labrynthitis, then " maybe Menieres" then " possibly migraine related". Finally I was told that my symptoms couldn't be put into any one category and maybe it was a combination of a few problems. I ended up with 30 percent reduction in hearing in my left ear so at least I couldn't be accused of imagining it all!

    • Monkey16
      Monkey16 lynniebimbom12

      Posted

      Because I've not had ear pain. Hearing loss or any true 'spinning episodes' I'm having trouble accepting the diagnosis. Just a constant spaced out feeling.

      How did you get better in the end??

    • bertin_54
      bertin_54 lynniebimbom12

      Posted

      Lynniebimbom12 , 2 months ago i said to my self that it and start agressive vestibular rehabillitation  and it start to be a turning point to me too.1 hour a day i do all those exercise my phisio toll me to do and more lot more for one hour a day come back home dizzy but when a drive my car in city i see some deference now.
    • jay94750
      jay94750 lynniebimbom12

      Posted

      Have you tried an opthalmologist and have your eyes checked? Right now I'm thinking of making an appointment with the FF:

      OPTHALMOLOGIST

      ENT

      NEUROLOGIST

      My dizziness feel bit more worst whenever I play fast phase video games.

    • jay94750
      jay94750 Monkey16

      Posted

      rocksolid is right

      Just avoid getting stressed, because the more stressed and anxious you are the more the dizziness triggers at least based on my experience. Also avoid reading stuff that will make you feel nervous, it can also trigger the dizziness.

    • Monkey16
      Monkey16 jay94750

      Posted

      The last two days I have improved a little.

      I'm trying to stay positive. I've cut caffine I have been excersing as much as I can (yoga is helping me) trying to have a plan/list for the day to keep my mind occupied.

      I also have noticed video games don't help so I have kept away for several weeks.

      I have improved my diet added mutibionta and eating mega healthy with a much super foods as possible. Got my blood pressure down considerably (think this is with the anxiety) and have book to see a private ENT specialist on Monday.

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