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Looking for help - i am 46yrs female professional/ been feeling unwell/ fatigue/ headaches/ weight gain -10kg over 10yrs.bmi 30.
on treatment for hbp- 8years/ but been gen somewhat unwell/ low energy since then- but last few months been having fatigue+++sleepiness+++
my auto antibody-ana was positive 8 yrs ago-nfa.
2 months ago,- TSH 4.8, t4- 17- lab report- compensated hypothyroid.
due to the chronic fatigue symptoms- started T4-25mcg, felt slightly better, in 6 weeks repeat tsh was 2.2. but again sysmptoms was persisting so T4 increased to 50mcg.
6 wks after repeat blood test- TSH-1.2. (TPO antibody- 155)
Other test- low vit D, autoantibody positive -anti ro- ? SLE ? SJORGENS.
So, my endo consultant- doesnt think my fatigue is all due to thyroid anymore. and feels there is underlying other autoimmune connective tissue disease causing the symptoms of fatigue. maybe he is right.
but how long one can go on without answer with sev symptoms?
sev fatigue and fuzzy head is driving me mad, now got muscle ache and developed joint pain in shoulder and elbow.
not sure should i continue T4 or maybe reduce the dose from 50 to 25 ?
i cant keep up with my daily routine/ and waiting for rheumatology team appoitment- my life is come to COMPLETE stand still- no one at nhs taking ownership to diagnose..it is really sad. diagnosing lupus condition is not for beginners/ or GP 's . and i need someone to help me now not after my brain cell are packed up.
will appriciate any suggestion from anyone in same situation and any keen professional diagnostician in this forum . Goodluck.
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