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hi,im just wondering as ive yet to go back to specialist after getting my letter to say ive got dd im wondering is it a fast growing disease or is it something that happens over time,i feel like im making a fuss but i just cant get my head round it,was up at 3.30am with the trots then again at 7.30am,couple of days now with dull ache in left side,is this what is called a flare is up coz im not sure what one is,i just know everyday is different,

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  • Posted

    Nana2, it could well be a flare but may be anxiousness from being diagnosed.  All I can say for sure is what I experienced and that you are in an amazing place to find out all sorts of things about DD.  First you will find that it is generally a disease that has similar symptoms in some of us and not so much in others.  My flares were severe cramps in my lower abdomin.  All I could do was lay in the bed and roll back and forth or get on my knees and rock forward and backwards.  It seemed to help but nothing stopped it.  I couldn't go to the bathroom but I wasn't constipated.  I felt like I had the worse case of gas in the entire world but noting would pass.  When you have diarrhea just go to a liquid diet for a few days until the flare passes.  This will allow your colon to rest.  Watch your diet and see what triggers the flares.  

    This site will help you more than the docs in most cases because the docs can only guess what will help you because most of them haven't had it.  Reading these folks experiences will be a wealth of information.

    Take care and chin up.    

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    • Posted

      thankyou lucy,i do have alot of pains and pains when passing wind its awful,but i have not had what you have,the having to stay in bed side of it, maybe all yet to come but i feel bad enough as it is now,im so glad i found this forum i think it is going to help alot,thanks again
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    • Posted

      Nana2, you are very welcome.  I have walked the road from diverticulitis, to surgery, to stoma, to two major surgeries, to stoma take down, to bowel blockages, to not wanting to wake up from the anestesia.  It was a bumpy road and at times I was a very sick and miserable girl of 68 years.  But on the other side I am doing well.  I still have my bouts with the "quick step", but I have more good days than bad now.  I do find that hard boiled eggs really help with the "quick step".  I can eat almost anything I want.  I am currently trying to introduce my favorite foods back into my diet.  My system doesn't like some of them still but then a few is better than none.  It is all just trial and error.

      Keep your chin up and don't let this thing get you too far down.  (Getting down is going to happen to us all but try to think positive.)  It is a journey that this entire group is willing to help you through.  

      Keep us posted on your progress and the things that work for you.  You never know, you may just be the one to help another DD friends with their issues.  

      All the best,    

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  • Posted

    Hi there,i was diagnosed about 2 yrs ago with the advice,"add lots of fiber to your diet",I had the runs alot and terrible cramping on both sides of my tummy,I dont have really bad flares like some people like having a fever.The doctor recently told me after i had a relapse of pain and the runs to go straight back on my high fiber and fiber supplement with probiotics which i have but its taking awhile this time to get better,i have good and bad days depending what i eat.Try and keep a diary to see what triggers your problems.We are all different on what we can and cant eat,I cant tolerate red meat high fat and processed food like sausages,pies etc,ice cream,and i find wine has a bad affect.You will get better it just takes time and patience.Drinking plenty of water is a good idea aswell.

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    • Posted

      The doctor's advice on fibre is counterproductive. A diet high in insoluble fibre such as bran cereals and wholewheat bread and pasta can make dd worse by causing too bulky stools which put pressure on an already damaged colon. Constipation is to be avoided but soluble fibre as found in veggies is kinder to our damaged colons. Probiotics are a good idea and magnesium supplementation can help with constipation. During a flare a low fibre or liquid diet is better.

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  • Posted

    Hi Nana

    agree with what LucyB says wholeheartedly.

    Like you I have a dull ache left sided most of the time, with bouts of severe cramps. While not runs as such certainly very loose. Though as LucyB remarks currently not constipated but cannot go, bloated and feel full of gas. Enough wind to fly a kite. Last couple of days any food seems to be causing a problem. So a liquid diet for me for a few days

    I try not to stress about it and find humour in it where i can. I know once I had a diagnoses and knew my options, I found it easier to get on with. Now I have made my decision on how to deal with it I am ok mentally( for a Scouser)

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    • Posted

      Thanks "Scouser", so happy I could help you and anyone else who reads my posts.  I was so miserable with this disease and anything I can do to help make anyone elses journey a little easier I will tell my story over and over again.  

      Please keep in touch with me and let me know how you get along.  

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    • Posted

      For me liquid diet is clear liquids. No milk in tea or coffee ( though I cannot drink coffee now it aggravates my tum) and clear soups/broths. Weak juices, basically if the liquid is in a glass and I can seemy finger through it, then I can have it. Others may have other ideas, but this suits me for now, it's only a few days. Very boring but whatever it takes at the moment

      Chin Up, Bum Down ;o)

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    • Posted

      "Lucy" talking to you about this and your experiences have been a great help over the last few weeks.

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  • Posted

    Its easy to feel down with this disease, like getting kicked in the guts.

    ​Im on my third course of antibiotics in three weeks, and have lost 10 kg in that time.

    ​So on a positive note, I find it a great dietary exercise....

     

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  • Posted

    hi all,just a bit of an update,went to see my own gp yesterday following my letter of diagnosis,and she tells me divaticula is nothing to worry about alot of people have it,so that has really given me faith (NOT) think she was more interested in telling me that she has got to wean me off my sleeping tablets due to nhs guidelines,got to go on tues for flexi sigmoidoscopy.sorry for being so negative.
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    • Posted

      Hi Nana, sorry to hear that.

      I wonder if your GP would be so dismissive if she had to put up with the cramps, fevers, toiletry issues, etc,? Hopefully the results of your sigmoidoscopy may refocus your GP's mind. Maybe you should rent a flat in my area and register with my GP practice.

      Have seen my consultant today and have been added to the list for surgery, so now awaiting a date to have the troublesome beggar removed.

      Remember keep your chin up and your bottom down  lol

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    • Posted

      thanks for uplifting words scouse as always,hope you sorted soon as,bottom been good for few days heres hoping it stays that way,will let you know tues what they say.frown

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    • Posted

      Hey Steve

      I hate that you have to have the surgery but it will make such a difference in your life.  I kinow you are happy to finally be getting it over with.  

      As we talked before it will be difficult for a while but with perseverance and determination nothing will get you down.  

      Remember the Vick's.... :-) 

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