Congenital dislocation of the hip leading to THR

Sorry havent got a story like that but you have been through a lot in your life havent you

20 years of good life is great after being born like that

Her's hoping the revision works just as well and you can go and kick up your heels again soon 

What a life you've had with ups and downs.  I learn so many different things on these forums.

I hurt my hip, tore my labrum 10 yrs before my hip was bone on bone at 47.

You my dear are brave and amazing!

I hope your hip works out wonderfully! !

Hugs,

JiLL

I also have 4 children who I managed to deliver naturally. I'm 36 now and had a left total hip replacement exactly 3 months ago today. I can't tell you what a difference this has made already, I'm able to be so much more active again.

It's so encouraging to hear your story, as I had some concerns about having the op so young, but was finding the pain so debilitating. I'm so pleased to hear that you had so many years pain free after your initial replacements. 

I hope you make a good recovery from your recent revision and have lots more active years ahead of you.  😊😉

I have Ddh (or CDH) too, on both sides with the left hip being worse. I was born in 1962and mine wasn't discovered until I refused to walk any more when I was 6, our family Dr said I was attention seeking! It had always really hurt to walk but I was ignored by my Dr. My left leg had dislocated and slid 3" up the side of my pelvis.

I had one of the first osteotomies in the UK (if not the first as I was led to believe) when I was 7 and have only just had that hip replaced nearly 10 weeks ago, my first surgery lasted 20 years longer than expected. It actually lasted 45 years.

However my right hip which wasn't so bad and was left alone just failed catastrophically one day to my utter surprise as I didn't ever expect it to. I had an osteotomy on that one  in 1994 which was ok but I didn't ever recover as well as my other hip and was disabled for many years as I stupidly resisted a replacement for several years. I gave in and had it replaced 6 years ago and wow, my life changed so much that I had no worry about having the other one done, except that maybe it was too soon, which it turns out it wasn't as the joint was shot when he removed it in July.

Im so grateful that I will have my mobility back when my convalescence is over, it will be even better than the one hip, I can't wait.

best wishes with your new hips Stella and yours too Lucyloo

I hope your recovery is going well.

I was also born with CDH - in both hips - which wasn't diagnosed until I was about 18 months old and not walking properly (it was my aunt who persuaded my mum that something was wrong). I had years of A-frame plasters and a calliper on my left leg, which I can still remember having to take off at nursery school in order to have a mid-day nap in the camp beds! When I was 8 I had what was called a shelf operation to build me a socket for my right hip.  It obviously did the trick because I was very sporty as a child and at university, and continued to play hockey until I was 38.

i have just turned 50 and in the last 15 months things have really gone downhill.  I have always had very limited mobility in both hips but the pain has started to get quite bad on the left side - I struggle to walk round the house and don't even walk to the shop over the road anymore. I get on my bike or take the car. I don't sleep well because I can't get comfortable. Having struggled through my summer holiday I finally plucked up the courage to see a consultant at the end of August. The x-rays weren't good, but he said he'd seen worse.  He suggested I use a stick, which I hate but use when things are really bad, and physio.  Not sure the physio is doing any good as I know my left hip has got worse in the last 2 months. I'm now on prescription strength codeine and ibuprofen just to get through the day (and night).  I was really adamant that I wasn't going to have surgery when I first saw the consultant, but now I'm not so sure.  One of the last things he said was "Is it bad enough to risks making it worse?", and at the time the answer was no.  I'm due to see him again at the end of November and he said he wanted to inject each hip with anaesthetic, and if that got rid of the pain then the hips were shot. I think he's just given me a bit of breathing time to think about it.

What really worries me is how my family will copy if the outcome is worse, and also the recovery - I'm a 'can't sit still' type of person.  My physio keeps telling me to do less, but there are certain things that need to be done, especially when hubby works away a lot!

Sue

Hi Stella

i was very interested to read your story. Was your CDH the hereditary type?

My mother has always claimed that mine was due to being a breech birth and was dragged out with difficulty, by the leg. I will never know.

I was born in 1959 and my dislocated hip wasn't identified until 2 months before my 3rd birthday, I refused to walk, dragged my leg around etc. I was operated on in Manchester by the pioneering hip surgeon John Charnley. He used an advanced surgery ar the time but I was still in plaster and splints etc for a long time afterwards.

i was never sporty at school but how much is due to my hip problem, I will never know. I hated PE lessons. 

At the age of 11, I took part in a sponsored walk. I only did about 16 miles but after this, my hip used to ache particulary at night and my already apparent limp became much worse. 

Just recently I came across some of my late father's old cine camera footage which had a few shots of me in it aged about 15. I was shocked to see how badly I limped. 

At the age of 21, I was told I would need a total hip replacement. I was advised to wait as long as possible as they only lasted 10-15 years back then.

I struggled to the age of 40 when I was in so much agony, I had to give in. I was out shopping in Leeds and suddenly just couldn't bear to take another step . That is the moment I made and stuck to my decision. Whenever I felt close to bottling out of the surgery, I recalled this moment.

i had a total replacement at Wrightington in Wigan in Feb 1999. This is a specialist hip and knee replacement hospital. I was absolutely terrified and cried when my husband said 'Goodbye' and drove off leaving me there ready for surgery the next day. I

'm pleased to say the surgery was a success. At last I'm free of pain and can walk and walk! The surgery really transformed my life.

So far my replacement has held up well. I've looked after it in the sense that I don't go running or do step aerobics etc!

Recent x-rays have shown osteolysis. It is being monitored but so far, so good. Now that I'm 58, I'm thinking I should get away with just one revision op. Fingers crossed!

 Hope you recovered well Stella......and good luck to anyone else having surgery.

Velda Rhodes ??