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Constant hip, leg and bum pain with no outbreak

Posted , 11 users are following.

Confused55330
Confused55330

Hi guys,

I have had HSV2 for 6 years. I have used suppressive medication (acyclovir) on and off during that time and up until now it has controlled my outbreaks well. I have also been able to go long periods without medication and no outbreak.

However, I have recently moved country to the USA and have found I am expriencing completely new symptoms.

For the past couple of months, I have been getting leg and bum pains, which have in the past happened the day before an outbreak. (My outbreaks are unusual - I get one bump/cut which doesn't usually hurt too much) Now though, I have been experiencing pain for about 4 weeks with no outbreak. Every morning the pain is in a different place - one hip, the other leg or sometimes throbbing in my labia. It seems to be worse when I sit down a lot - like driving for a long time.

Today I have very achy hips on the front, where the crease is. I have never had this type of deep muscle ache before and I'm trying to figure out if it is the HSV2 or unrelated. I am taking acyclovir 800mg p/d at the moment, having vitamins and eating and sleeping better than ever before, which is why it seems so strange to me! I feel completely fine in every other way.

Does anyone have any experience like this? Or any ideas what's going on?? I just don't get how my reaction to the HSV could change so much without any obvious triggers. Nothing I'm trying to help the aches and pains is working sad

0 likes, 21 replies

21 Replies

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  • bri0437
    bri0437 Confused55330

    Posted

    I'm sorry I just got herpes in April so I've never experienced pain in weird places. Have you talked to a doctor about it? I do have a question for you though, how have you controlled your outbreaks & then are you sexually active & you go about that.

    • Confused55330
      Confused55330 bri0437

      Posted

      Hey - well I have had 2 long term relationships during that 6 years and it's been fine. I have and haven't used condoms with my boyfriends as the acyclovir was working well and I didn't have any symptoms. The annoying thing is I've just started seeing someone new - I've told him about it but I'm really nervous because of these unusual pains. I don't know if this means I am shedding or not and its making me super paranoid and down. I haven't usually worried about the shedding stage, but now I am a lot more.

      I have a doctors appointment booked to get more acyclovir and to ask them about the pain I'm feeling. I really just hope I won't keep having the pain long term because it's a constant reminder and I worry about being intimate, which is horrible.

      I wish you all the best - I haven't found that it has (up until now) really impacted my sex life. Hopefully your body will build up immunity and you won't have many outbreaks.

    • bri0437
      bri0437 Confused55330

      Posted

      Thanks a lot. I hope you find what's going on with the pains because I never heard of it. I get migraines that last for a whole day with no break in between. Just pain

  • ashley71071
    ashley71071 Confused55330

    Posted

    Confused i was just diagnosed 3 weeks ago and one of my symptoms was leg pain. I had one bump/pimple but the leg pain hurt worse. It went from right to left but mainly in left leg/foot. Leg pain started before i got bump down below. Dr kept saying it was nerve because i go to gym everyday but now it all makes sense and nerve pain is one of the signs
    • Confused55330
      Confused55330 ashley71071

      Posted

      Hey - are you still getting pains now 3 weeks in? And are you getting them ever without an outbreak?

      Also, how long was it before the pain moved from one leg to another? After a few days? Mine seems to move literally every day - and each place it's quite bad, and then it goes somewhere else! So weird

    • ashley71071
      ashley71071 Confused55330

      Posted

      Yes im still getting the nerve pain in my legs. They are not as bad now. I would go to sleep with pain in one leg and wake up other leg hurting but majority of the time its in my right leg and my outbreak was on right side of my labia. It is weird. I have read that u can have nerve pain months after yoyr outbreak has cleared up but that it gets better and for me it has. Some data now i feel no pain at all.
  • FelizCastus
    FelizCastus Confused55330

    Posted

    Perhaps it's unrelated. Either way, you should get it looked at. Also, shedding can and does occur without any signs or symptoms, so you should take care when having sex. Just because you feel fine doesn't mean you are not shedding.

    • Confused55330
      Confused55330 FelizCastus

      Posted

      Hi - I definitely am very cautious about shedding. It's a nightmare that you never know if you are shedding or not 😑

  • TS073016
    TS073016 Confused55330

    Posted

    Maybe that explains why I get bad headaches. My thighs ache here and there so maybe that mean I'm shedding. I don't like the medicine bc I lost my appetite I didn't eat for days, so I been taking vitamin C, lysine, St john's worts daily. I need to do more research on shedding.

    • ashley71071
      ashley71071 TS073016

      Posted

      How are u doing with just taking herbal meds? Do u think they are working?
    • TS073016
      TS073016 ashley71071

      Posted

      Hey, this may sound weird but I was thinking about you. How are you doing and is your first OB over? I feel great as of now with just taking the herbals and vitamins. I'm just taking it for what it is and try not to stress about it. I refuse to take those pills bc I lost my appetite I didn't eat for like 4 days and lost 5lbs I was more worried at my appetite then the herpes. I'm also taking espom salt baths once a month just bc. I'm trying my hardest to avoid another OB.

      I know I'm early with this but I think with the vitamins and a good diet we will be fine.

  • wtf86why86
    wtf86why86 Confused55330

    Posted

    Are you still having the pain issue? Did you find out why our a resolution? I have the same issue with my hip. It gets so painful that I cannot move at times. Sometimes an outbreak follows, and sometimes it doesn't. I start the Acyclovir when i start to feel the actual outbreak.

    • de91687
      de91687 wtf86why86

      Posted

      I take pain pills edcedrin pm to sleep off pain in the beginning and Epsom salt baths. Olive leaf pills and coconut oil pills from health food store. I went to the neurologist and the lady said I was crazy from the symptoms I told her well she don’t have so she don’t get it. I’m looking for another Neurologist to help me with the nerve damage. I know that is what it is, but need someone to listen. 
  • nicole00958
    nicole00958 Confused55330

    Posted

    I was infected last month with HSV2. The blisters cleared up quite quick but the aftermath has been nerve pain in the back of my upper leg, my buttocks and down my legs. I’ve never had this before in my life so it’s 100% from HSV2. I think the virus lives in nerves? I’m trying to boost my immune system! I read that long term use of aciclovir weakens your immunity so I think you may be better off letting your body fight it itself and just keep taking your supplements.
  • raindrops777
    raindrops777 Confused55330

    Posted

    Hi there,

    I came off Aciclovir and started feeling burning in my anus and tingling all over, do you think they are related ? 

    • nicole00958
      nicole00958 raindrops777

      Posted

      Yeah probably but you should do your research on long term use of aciclovir. I imagine once you build your immune system up that sensation will go away.
    • de91687
      de91687 raindrops777

      Posted

      Yes, it is related. My first outbreak was two years ago a rash on my hunny only and never any sores. I have Sacral herpes still hsv 2 and my symptoms are burning on the back of my legs, sometimes other areas and my hunny, it  feels like a hot iron of someone putting it on me then taking it off, crawling in my skin at first, but no longer happens and pain in my knees and pain in my left arm in my deltoid. I take olive leaf pills and coconut pills from health store. 
    • de91687
      de91687 raindrops777

      Posted

      Yes, it’s related. Acyclovir should in my opinion be taken only when you have an outbreak. If that med is taken on a daily it will started to kill your immune system. Let your body work it out and build up antibodies. coconut oil can be put on the body and digest to heal internally. I do both to try to calm the burning on my body. I been living with this for two years. Also, Epsom salt baths work. 
    • nicole00958
      nicole00958 de91687

      Posted

      Hi deb I agree only take aciclovir on the onset of your first outbreak! I too take olive leaf along with omegas, and multivitamins! I’ve noticed an improvement in the burning pains and weird twinges I used to get in my legs and my bum!x
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