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Constant migraine

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kate89317
kate89317

I've had a constant migraine for 6 months now although the pain level varies day to day I'm only 19 and this affects my life a lot, I've tried every triptan and non have worked nor have migraleve or propanolol, or basic pain relief such as ibuprofen codrydamol ect, I am currentally on topiramate which I seem to be fine on seeing as I have read a lot of people are not with the side effects it causes, my neurologist ruled out any brain problems or tumours ect. I am now waiting to be referred to a migraine specialist in Stoke on Trent which will be another 6 weeks just seems like I'm waiting forever and not getting much answers or help from anyone, anyone suggest anything because at the moment I'm willing to try anything in the mean time just to have a little bit of my life back....

1 like, 34 replies

34 Replies

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  • Guest
    Guest kate89317

    Posted

    Sorry Kate......I think I'm in the same boat. I have also the same otcome as u. Last night AGIAN I tried the Amytripyline, I have some easing off this morning, but it cant be it as it says it take awhile before it starts to work, so its prob just a good day. SOmone was telling me to try Alak Seltzer 2 in a glass of warm water, along with Milka magnesia, I tried the Alka ........nothing..........no fun, stop this ride I want off !! feel better please
    • kate89317
      kate89317 Guest

      Posted

      I remember seeing something that said it could help with migraines when having an attack you put your feet and hands in Luke warm water and a bag of frozen peas or something on your neck not sure if it works or not but it may be a try it's meant to block the pain chemicals or something like that but right now I will try anything haha
    • Guest
      Guest kate89317

      Posted

      Ya....I also created a FB group for migraines, its a new group so there arent many people in it yet , search it up Migraine and sinus related its called. SOmeone also said, she uses 2 tylenol and Coke for emergency if she has no meds, like a back up
  • wildjflippin
    wildjflippin kate89317

    Posted

    you need to break the cycle somehow...I know my neurologist has given me shots in my head to block the pain.  It kinda numbs your head and stops the pain.  Torodal shots seem to help me, too, it is a pain shot but not a narcotic.  Its a shame you have to wait 6 more weeks to see someone. Thats awful.  Do you think a massage or acupunture might help..sometimes the massage therapists can really use pressure points to help. I am so sorry for you.  I suffer just about every day with a migraine but Imitrex gets rid of it and I can go about my day.  I am sending positive thoughts and prayers  your way for some relief

     

    • kate89317
      kate89317 wildjflippin

      Posted

      I am booked for a massage in the next couple of weeks just to see if it will release some pain, my neurologist didn't seem very interested to be honest he said they're not trained much in migraine more in the other areas hence why they're sending me to a migraine specialist but thanks for your views and thoughts
  • bear11
    bear11 kate89317

    Posted

    Hi. I see the migraine specialist in Stoke. Been seeing since jan. Saw twice privately once nhs. Had to wait 2 hours for the nhs opa so if your local ring and check waiting times before you go. He is really nice I was abit sceptical at first. My symptoms weren't straightforward and he wasn't sure what was going on to begin with but his first guess was right. I had a lumbar puncture mri etc. I have constant aura symptoms which is incredibly debilitating. Your spot time will only be 15 mins but he spent 30 with me at nhs appt. at Cornwall house you get an hour but it's £200 first appt then £155 after that. Having said that it depends how badly your affected. I can't drive read look after my children off work feel really I'll etc. so it was worth the money. I'm on topiramate which has helped but it killed me getting up to the dose. Now I increasing again it's killing me again but I'm increasing much more slowly this time. I think he is your best bet locally anyway. Good luck. Xx
  • Rexington
    Rexington kate89317

    Posted

    Mine started daily at your age. You should make sure before you see a specialist that you are not having medication overuse headaches(rebounds). Its like caffeine. Your body starts to crave paracetamol, codeine. Not so much with ibuprofen or asprin. I know its hard but take a few days. Ice packs and sleep it off. If triptans arent working maybe they aren't migraines. Try not to become obsessed like me. Its terrible, if its starting to wear you maybe an antidepressant. Amitriptyline is a antideppressent of choice to treat chronic migraine. Im not saying you need one. Make yourself a list of everything your have tried, anything that works, when are you headaches most intense. In the morning/midday/night? What you have eaten, foods with high levels of amines cause headaches. Your periods. Are you in the pill? If you are stop. Do you clench your teeth? What does the pain actually feel like? Tension. Stabbing? Are you dizzy? Do you get nausea? Get a second opinion from another neurologist not just the migraine specialist. See if you can get a mri to check your cerebral spinal fluid. Good luck
    • kate89317
      kate89317 Rexington

      Posted

      Hi thanks for your advice I am not on the pill I'm on the injection and have done a pain chart and everything for the migraine specialist the pain is just unbearable when it gets bad I can't lift my head I'm sick and dizzy and I'll sleep it off and usually that will calm it down but it's never gone fully the trip tans were useless bar one the naratriptan it worked once and calmed it down but then the next night I was screaming and crying in my mums arms it was that bad, I was originally on propranolol which not only treats migraines as a preventative but also helps with anxiety and stuff but I will be sure to ask them about the antidepressants, it's just taken over my life so much I can barely do anything and because it's constant I feel I'm not myself but thank you for your advice I will be discussing some of the things you said with my gp as I can't go on like this x
    • Guest
      Guest kate89317

      Posted

      Kate........I was also reading that massage 4-6 days a week may help, I know thats lots, but geeeez and have they tried Botox, I am going to try both as soon as I can squeeze it in my shedule
    • Rexington
      Rexington Guest

      Posted

      Its 37 injections for botox for migraine. It doesnt always work and its a last line. Im only saying this because ive had 4 treatments. Injections every 3 months and im no better, its really expensive unless you get cleared by a neurologist and get it on nhs/medicare and toy have to have tried everything else first and ruled out primary causes.
    • wildjflippin
      wildjflippin Rexington

      Posted

      I have been doing botox for 2 yrs and while it reduces the severity of the headaches I still have them almost every day.  I'd say try it tho -it may help you
    • Rexington
      Rexington kate89317

      Posted

      Propranolol is a beta blocker. Its primary use is for high blood pressure. It works based on a component of migraine where by there is a vascular change. It is used as a first line preventative. Pain causes everyones blood pressure to rise. Its in no way a anti anxiety drug. There is a drug called diamox. It treats benign intercranial hypertension it is worth discussing with your doctor. Sandomigran is used when toprimate, propranolol or endep doesnt work. It may be worth a try. If you get migraines you shouldnt be on the pill or depo injection.
    • Rexington
      Rexington

      Posted

      One more thing. Magnesium chelate and B2 (riboflavin). Good luck. You'll be ok.
    • kate89317
      kate89317 Guest

      Posted

      I have a massage booked next month hoping it will relieve some pain not sure about Botox were do they inject it?
    • kate89317
      kate89317 Rexington

      Posted

      I have magnesium and some others mixed in as I read it could help thanks for all your advice x
    • Guest
      Guest Rexington

      Posted

      Rexington actaully is is used for anxiety also, just FYI
    • Guest
      Guest kate89317

      Posted

      Hey Kate I have no idea I was wondering how it works myself. 
    • Rexington
      Rexington Guest

      Posted

      Ok mate. It can be used to treat symptoms of aniexty based on that it reduces the symptoms relating to blood pressure like flushing. Sweating. Vascular headache. Racing heart. But it isnt an anti depressant or anti aniexty drug as such. It doesnt treat anxiety directly.If it works for people great.
    • Tobamory
      Tobamory Rexington

      Posted

      Im with you Rex on the botox, im now on my errm 6th lot, i have it in leeds and to be honest apart from making my forehead look young i dont actually think its doing much.... Im at a loss really i have chronic daily headache, which can turn into a Migrtaine, ive tried most stuff only thing that ever worked was methysurgide but they stopped making itsad, ive now actually come off everything bar Imigran and im ok...

      last year ive been back on Pizotiphen ( made me angry and i got fatter )

      Gabapentin, this was ok but made me feel dizzy and spaced out...

      I even tried the wife Citolpram but i didnt feel no diff at all so i sacked that after a month....

      Im not taking paracetomol which dont work, but im keeping them going 2 or 3 every 4 hrs and it seems to be helping slightly....

      kate the Botox is fine they do a small cluster at the front of your forehead, then down the back of both ears. a triangle at the base of your kneck and some down the shoulder, its a small insolin needle so not very painful... its done in about 2 mins. 2 full bottles of botox and 4 needles full

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