Constant migraine for almost a week

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Long story short. 24 yr old female. I am under a neurologist. I had a lumber puncture 4 years ago to release some pressure. In February at a review I was prescribed topiramate 25mg. So far so good. Probably mid August book them came back with revenge but not my normal kind of migraine pain. It eases after a week. I have had this one for for 5 days. I have lost the hearing in one ear. One eye is Larry than the other and is all red and blood shot. The pain in on the top on my head ( crown on my head) and behind my eyes and all down the right side of my face. I get weird tingling in my right arm and I get a weird sensation in my hand. All i am doing is sleeping and I'm waking up with a worse migraine. I am not taking pain relief due to other Health conditions. My GP won't do anything. Can anyone please suggest something I can do or has anyone experienced these kind of migraines?

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  • Posted

    I get similar but not for as long usually 3-4 days and doesn't affect my hearing. I cant get pain meds either, neurologist says just give into them! Sorry this wont help you. X

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    • Posted

      Awful aren't they. I can't eat. All I want to do is sleep. I feel so nauseas good job I have anti sickness tablets in the house. I just can't lift my head off the pillow. Pharmacists are saying go the walk in, some people are saying ride it out. I'm stuck on what to do it's so painful I just want to sleep it off but I know it will wake me back up later on x

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  • Posted

    Hi Amy,

    It could be Hemiplegic migraine when you feel tingly or numb down one side of your body,  I get this.

    Ask your Neuro if you can have Botox and see if GP or Neuro can prescribe flunarizine,  These are both treatments for Migraine anyway so whatever type you have they are good.

    You sometimes have to nag and nag your GP to get anywhere.  They dont always take people seriously.

    Good luck Amy and take care.

    Keep in touch, we respond to people.

    Best wishes

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    • Posted

      Thanks for responding. Tell me about it I rang everyday at one point and all they prescribed was sumatriptan or rizatriptan and they didn't work. It's awful the pain but I am not due to see neurology until February and they can't see me sooner I called up today. All they can do is change my tablets. They sent a fax to my Drs so my dr will pick out a new medication for me. I wasn't sure if the pain was from a head injury I head a month ago as I've not been right since but my dr isn't convinced it is

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    • Posted

      Hi Babs,

      Yes I have Botox and for me it has been great, I can recommend it.

      Do you have Botox?

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    • Posted

      I had them a while back but they didn't help. I then tried acupuncture and and after about 6 sessions we give up on that too. We did consider hypnotherapy but I haven't gone that far yet x

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    • Posted

      Hi Amy,

      Now you mentioned head injury, this could be contributing to your issues.  What my GP always says to me is if I have an attack to call an ambulance and explain all your symptoms, not just you have a headache as they will not listen to you.  Have you had MRI or CT scan?

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    • Posted

      I've not tried Botox yet as not approved where I live yet but hopefully will be within the next few months. Does it help with Aura too or just pain?

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    • Posted

      My last brain MRI was 4 years ago they've never done a brain CT scan. All my obs have always been fine

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    • Posted

      It is designed to help prevent all the symptoms, so you should think about trying it when it becomes available, or get a transfer to London and see my Dr at the nationa neuro hosp.  You have to be assessed first, but normally no problems
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    • Posted

      It sounds like you need another MRI to check things out again.  But if you get these symptoms that come on all of a sudden like numbness or tingling in face and one side of body, ear problems too, call an ambulance as you dont know if its a stroke or not.  When they have been to me, the paramedic doenst know either
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    • Posted

      I've begged and begged for 2 years but the registrar this time just fobbed me off and says see you in 12 months when normally it's every 6. The pain doesn't feel as bad in the dark it's when it's light I cannot tolerate it at all. But doctors don't get that and my own GP is now saying she was to refer to me to complex care team because I always ring them!!! Isn't that what they are there for. Sorry. It if they sorted this out and my other health issue I wouldn't need them. If it gets any worse i will call for help

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    • Posted

      What about a getting a transfer to my specialist in London?  But I strongly suggest that if you get an attack where you are numb on your face and arm and leg, then call an ambulance. I only get chest pain when I get HM not at any other time
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    • Posted

      Would they see me in London if I live near Liverpool though? It's a bit far to travel for a consultation but so worth it if they would. We are suppose to have one of the best neurologist centres at Walton but we wait months to see them I've seen my consultant once in 4 years since then just registrars. I'm getting ready now to go up I want answers and hopefully I will get them

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    • Posted

      he sees people from all over the country as he is the national neuro and a specialist in headache.

      Just get your GP to do a referal to Dr Matharu at the national neuro hospital queens square london

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    • Posted

      Amy I would be wary of seeing a neurologist as they were completely unable to diagnose me. They even admitted that they couldn't. These kind of disorders aren't neurological in nature but auto immune and auto inflammatory. I saw a neurologist after I had been diagnosed with vasculitis just to rule out any neurological damage and she told me she wouldn't have been able to diagnose me. 

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    • Posted

      I have a neurologist already and have done for 5 years. Likebyou they haven't really diagnosed me just saidbi jad the pressure and just said migraines syndrome

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    • Posted

      thats because most neuros arent headache specialist, this is what I was saying about my dr in london, he sees people from all over the country.  I dont live in london either
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    • Posted

      yes....try to get to see a different kind of doctor there is one at the Royal Liverpool called Janice Harper. The number is listed there for a clinical nurse specialist called Sarah Hardy. Why not give her a ring and have a chat with her. I did that before I got an appointment in London with an immunologist. Spoke to her secretary and she was great. 
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    • Posted

      I will do thanks. The royal isn't too far from me I just don't use Liverpool hospitals because I'm not in their region so o use different ones but I will give them a try

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