Constant migraine for almost a week

I've not heard of depakote before. I have been keeping a food diary for the past 6 months as I am under a gastroenterologist anyway. I have to be careful with extra vitamins as I have vitamin injections every 3 months as I am deficient and my gastro meds can sometimes react to certain meds.

Interesting Margaret, I get chest pain but its put down to HB and stress which also bring on migraine. X

Hi. I am under gastroenterologist for investigations. They thought crohns but we are still not sure. They are saying IBS-c for now. I have pains in my legs especially if I walk far distances. I am on propanolol for my heart rate/pulse as it was hitting 130. I am not too sure what the pressure was as it was so long ago but it wasn't significantly high just a tad but up. I am b12 difficent. A walking disaster as some people like to say as they don't understand

Chest pain is all part of HM, I have noticed I get this ever time I have an attack.  Its not stress

I have had three heart attacks but my heart is supposedly healthy. How is auto immune checked and what is the treatment?

The only chest pain I get goes towards my armpit and my GP always says it's stress or part of an anxiety attack

Well they are all symptoms of auto immune disease. And I think HM is quite often diagnosed incorrectly when you have underlying auto immune disorder. It took me a long time to be correctly diagnosed. I have a form of vasculitis and it caused this. Did you have your red eye checked out? Is it still red and painful?

Its definitely not stress its to due with this type of migraine

Babs I get chest pain all the time. I think that way too often these things are being explained as HM but they aren't. Do you have other health conditions?

The dr didn't check me out just looked at me but looked inside my ears for infection as they are really sore. My eyes more itchy than anything. It it's called down a bit now. Especially with the light off. They mentioned to me a long time ago about auto immune as I have raised LFTs when I don't drink, all my bloods keep coming back high then low then high. It no cause is ever found for why my blood count keeps going crazy. No one follows it up. I have been under gastro for 16 months and still waiting for treatment and a diagnoses. I get admitted at least once a month and no one helps me.

I dont know about auto immune checks, Margeret mentioned that.  All I know is I have been diagnosed with hemiplegic migraine but my neurologist in London

Yes it is always explained as stress! I had this for years.

Anyone with these symptoms need to adk for their inflammatory markers to be checked to see if they are raised. I went around the houses.....gastro neurologist this that the other. Finally someone tied all the symptoms together. I have vasculitis and that causes migraine, fatigue, sinus problems, chest pain for several reasons, breathlessness, muscle pain. With treatment I currently have zero symptoms.

You need to get an understanding GP who will fight for you to get somewhere

 

I've been diagnosed with Chronic Migraine with Aura. I have acquired Long Qt syndrome triggered by migraine meds hence the reason I cant have meds. Also have had three heart attacks. High blood pressure Anxiety and Depression.

Amy have a look at pericarditis and see if that explains your chest pain. 

yes Babs I had that too but minus heart attacks. 

yes I got sore ears and eyes were sensitive to light. Do you ever get tinnitus I got that too but not everyone gets that 

Amy you say you have itchy eyes ...are they dry? And do you have dry mouth?

Yes ringing in the ears? High pitches sound? All the time with a migraine but right now I can't hear much from it. And pericarditis sounds about right it's always on the left never on the right only last about 10 seconds and goe. Could that be linked in to possible gallstones maybe? Another one to add to the list of things they think I have. I said it was 3 weeks of heart burn the nurse disagreed said it can't be heart burn if it is going into my back

Not sure about gallstones but think maybe pericarditis is about right. It is horrible. Had it too. It is all part of the auto immune baggage I'm afraid. 

Babs I also had the most dreadful aura. It's intense and really distressing. 

Just Googled Auto Immune and Vascuitis if I was diagnosed I couldn't get meds as they prescribe steroids.

Would that show up on a chest X-ray? I though it was just down to that time of the month and having breast stabbing pains or something like that or part of an anxiety attack I have ignored it for months or thinking every morning it was a pulled muscle

yes I get the liver function thing. My main specialist is in Addenbrookes in Cambridge in the renal unit there by a specialist in vasculitis. Although I am London based I travel there for care because, like you, I took so long to get diagnosed and even when I did I got awful treatment at a London hospital so I changed and went there. Best thing I ever did. The problem with this is it is hard to diagnose. My bloods were unremarkable and inflammation does not show up on scans or mri's. A lot of us are diagnosed on history and evidence in bloods. There is no definite blood tests only clues in the bloods. Youre bloods are classic auto immune results. 

steroids are not the only treatment available. I have never used steroids. 

No Amy, interestingly most of this doesn't. The problem is that inflammation does not show up on scans. I am not 100 pc sure about pericarditis but it is also tricky to diagnose. I had a heart murmur with it....or what sounded like heart murmur. But that doesn't always happen either. 

Because of the Long Qt a lot of meds are no go as have the potential of stopping my heart. Everything has to be checked by cardiologist to see if worth the risk.

Nightmare isn't it. I was going to change hospitals too as my one are well...shocking but Liverpool could be worse too. Don't know about where you are but up here they are all under 'pressure' and it's all going down hill and fast compared to the treatment we use to receive. I was going to be stubborn and sit in the hospital all day today until I get answers but I probably wouldn't do I never bothered but now I wish I did I feel rubbish

also can I ask about your gastro issues....do you have swollen tummy, a lot of gas and pain in your lower abdomen?

hi yes I see what you mean but I take an immunosuppressant and interferon for treatment. I have never taken steroids. There are so many treatments for auto immune disease now. Steroids are only one. I wouldn't use them personally because long term use scares me. 

I get lower right pain all the time they always think it's my appendix I've seen surgeons 4 times this year with suspected appendicitis and it never has been it's always been because I am constipated and I have trouble opening my bowels on my own as part of my bowel is too slow. As for gas no I'm not very gassy lately. Tummy is sore but not very swollen just tender

yes it's a bit tricky to get good treatment but once diagnosed it's easier. 

I will see what they say. It's gone on long enough not only is it having s large effect on me but I am pretty sure I am about to get the sack for my absence

I know what you mean. I had to leave my previous job because of it. It's horrific. But there can be an answer. Have a look at the vasculitis specialist at the Royal Liverpool. They may be able to give you some answers. x

yes I get the lower abdo pain. Can be excruciating at times. But you know what Amy, all of this I am talking about is in the past for me now. I currently have great treatment and been free of everything....no migraine no gastro no joint pain no chest pain....for 3 years. It took til my 40s to be diagnosed but once I was it was great. My current treatment is so good. 

That's amazing. At least you finally found the treatment. Hopefully I will find some answered and the right course of treatment that will help and not be passed from pillar to post for much longer