Constant urge to pee

Hi AkaMisery, I hope you're holding up okay.

Thank you so much for reaching out. I have been searching for years for other people who have felt like me.

When I was 22 I smoked a joint round a friend's house which set off this whole condition for me. I'm now 27. I feel so sad my 20s have been lost to this horrible condition.

I used to, sorry about the too much info, get extremely sexually charged if I smoked weed. So I think maybe my head confused the two? I can still occasionally have sex but I feel like the damp of, uhh fluids? And discharge can make the sensation very confusing for me, I don't know if something has emerged or if its just normal body stuff. I also have hyperhydrosis which can make sweat feel like I've had an accident.

I have constant need to pee at all times, sometimes worse than others. Extremely sporadic sex life. I'll go and feel like I have urinary retention, straining on the toilet for a long time. Being woken up in the night when there's nothing there often. Struggling to sleep at all. I would have occasional bladder cramping. I also can't feel my bladder being full so I think I over-depend on my pelvic floor, which I think in turn causes leaks because it's just so strained. Winter is much worse for me.

I've searched and searched for links between cannabis / marijuana / weed use and bladder problems, found nothing but tried the remedies for IC and OAB. I cut down on smoking and really reduced my diet (I followed a diet for IC) and felt much better. Getting sober was a real struggle for me. I also had a few accidents which I still feel in denial about. I definitely feel a large amount of shame and anxiety about bladder accidents, which obviously makes everything worse.

Nothing makes it better except for queefing. Again, never found anyone ever talking about this. Queefing helping my bladder condition was very weird. I wonder if it's because it puts pressure on the urethra? Or the pushing out of pressure is relieving something?

It can be so bad I can't even walk or sit up, lying down doesn't cure it but it helps.

So I've tried loads of medications, had the ol' camera-up-the-whazz, an ultrasound, nothing. When I had the camera though, they filled my bladder with liquid. I didn't even notice I needed the toilet until I stopped for a routine wee. The Kraken was released. I don't think I have ever peed that much. But, I didn't even notice it! My bladder didn't feel full at all, it's so weird.

I've felt my bladder feel empty twice in the 5 years I've suffered. So I know I'm capable of normality, but it doesn't stop me from straining. It just never feels empty.

Last year I was diagnosed with ADHD. I have also been diagnosed prior with depression and anxiety. I have lost jobs because of this condition. Enough is enough.

The Sensorimotor OCD sounds extremely plausible in my case, especially as I feel like it was triggered initially by anxiety. However, I'm going to throw all of your suggestions at it and keep hunting for the resolve.

I am so, so sorry that you all struggle with this too. I can't sit in cars for more than half an hour without immense panic. It has ruined relationships and opportunities for me. I would not wish this on my worst enemies. In many ways it ruined my life, in others it forced me to sober up and look after myself better.

However I am also so extremely grateful you have all shared your knowledge here with each other. Its amazing to find a group of us suffering the same. A wonderful source of support for sure.

My only advice is to buy yourselves some period panties until you find your resolve. I got so sick of wearing pads all the time. I personally use Modibodi underwear but I'm sure there's many other alternatives . I feel so much more attractive in them without feeling like I'm wearing an adult diaper.

I wish you all much, much love and the best of health for the future.

• J

I know exactly what you're going through. I'm having the same exact issues except my pee is clear and I cannot hold my urine for longer than an hour or I'll pee myself. I've been to several doctors but haven't been able to get into a urologist yet. I've also been checked for stds and a uti but they can't seem to find anything. I also tried diet changes and medication for overactive bladder but they ruled me out for having that.

hi have you tried cystoprotek?

2 years ago after frequent trips to and from a Urologist who had very little empathy towards my situation, I was diagnosed with Chronic Cystitis. It was concluded my bladder was working fine and after a Cystoscopy, I was told my Urethra was very narrow and that during this procedure, they had dilated it. I had no initial decrease in symptoms and after a few months with no relief I paid to have a consultation with another private Urologist who said, through years of UTI's and taking antibiotics without diagnosis of the specific bacteria, I'd essentially ruined any good bacteria I had and that my symptoms were unexplainable and something I would have to live with and perhaps they would get better. It was not what I'd hoped to hear but made it easier to get on with life and normalise my symptoms. I often have flare ups but have been able to manage my symptoms by taking Amitriptyline at night time which gets me through the night (most of the time) without frequent trips to the bathroom. And I think I have simply got used to the feeling rather than it getting any better.

However, the last two months have been extremely difficult. My symptoms have been constant most days.

I don't experience a lot of pain other than slight stinging-like sensation comes after I have urinated, if having a bad flare up. And can feel when a flare-up is coming as I get a strong sensation in my Urethra.

I constantly have the urgency to urinate- usually every 1-2 hours but when having flare up, it's constant urgency, immediately after I've urinated, there is no relief. On a bad day/flare-up, I can manage 30/40 mins before having to go again. I'm confident this has nothing to do with my bladder but I do get a slight pressure-like feeling in my lower abdomen but the main feeling is actually in my Urethra. My period, certain sex positions and Cervical smears etc seem to aggravate it. I had to go and have a swab of my Cervix yesterday and the clamps used have caused an extreme amount to discomfort today and I fear this will now have 'damaged' or knocked my Urethra somehow and it will take even longer to ease. It also makes me scarce to thin this is all in my head as I feel a physically difference after the swab yesterday.

I follow a plant based diet, drink little to no alcohol, do not smoke and am drink plenty of water daily. I do have one shot of coffee a day but have it milky with oat milk. I have been drinking celery juice on an empty stomach every morning the last month as I heard this helped. I'm desperate to not have to live like this. I'm female and in the UK. Any help or advice from anyone would be so appreciated.

Hi,

I'm a 19 years old girl who has been having the same problem as you for about a year now. The constant urge to pee is very irritating and it severely disrupts my daily life. I can't sleep at night because of how bad it feels and I can't exercise without constantly feeling like I have to go to the bathroom. I was first diagnosed with an overactive bladder and was prescribed with some medications for it but after around 2 months of taking the medicines and not getting any better, I went back to the doctor. My urine test was normal, so I did an ultrasound and it also came back normal. I eventually had a cystoscopy and they didn't find anything. So now, I'm left with not knowing what's wrong with me. It's very burdensome and I'm also afraid that it could be other serious illness like endometriosis or ovarian cancer. This illness has made me very sad and tired. If anyone has any tips, I'd really appreciate it.

Hi,

I am male, suffering with the same issue since years. I have gone through the all tests and came as negative. Urologists concluded that this is a nerve issue that causing the bladder reacting very highly. an you please provide me any suggestions and treatment process in order to ease the symptoms.

side effect of certain weight reducing medication

can lead to such condition

i have taken ultrasim plus and i dont know what so bad in it that caused me this issue since 5 years before and there is not yet any improvement since then...every medication prescribed to me dosnt helped me instead start causing side effect and just temporarily reduced pain sensation like from 10 to 8..

and urologist usually makes fun instead and start wasting my money bcz if prostate is not enlarged and there is no infection.. in urine test...

all useless med i took with no avail

1:mibega(mirabegon)

2:solifen

3:oxybutinin(urobitin)

4:tolterodin(detrositol)

5:hyascin

6:amitryptallin

7:nortiptyline

8:vibramycin 20 days

9:norfloxacin 30 days course

10:danzen 15 days

11:tab amorph 10 dsys

12:dicloran 15 days

13"pregabilin

13:prostate massenger devise

Thanks everyone for all the information you've posted. i started having these same symptoms a couple of weeks ago and when i finally got in to see a urologist and was told it was OAB and all he could do was prescribe medication which "could" start helping in a few weeks I was truly terrified at the prospect of living like this long term. With all the stories of little of what doctors have done working for most people I started looking for additional options which led me to a few articles on acupuncture and OAB that looked promising. I went ahead and scheduled an appointment with a licenced acupuncturist and was amazed at the results. When I got there I had been at the point of going to the restroom every 5 to 30 minutes. As the initial session went on I actually started getting relief going from a strong panic inducing urge to go to an annoying pressure in the bladder. After that session i was able to go 4 hours before having to go. I'm not out of the woods yet and the acupuncturist told me that it would likely be a couple of months going about once a week to get where i want to be but I at least have hope now and have enough relief not to be completely miserable.

This may not be effective for everyone but as helpful as this thread has been i wanted to tell my experience in case it can help anyone else.

I have the same problem for 4 years and im running out of options im losing sleep and its been very tough. The urge just dosnt go away. if anyone has any answsers please i need help. im male in my 20s. tried a bunch of tests coming up negative and im just so tired. all my doctor says is to eat better.

Hello everyone. It's been a long time. But I come to bring good and bad news that may be the answer to what a lot of you may be dealing with. Because I am convinced it is what I have. I honestly can't remember if I ever posted about my discovery before dissappearing.

But the likely answer is: A type of OCD. Specifically Hyperawareness Obsession. how you experience it varies from person to person. Googling this will give you some information. The problem is that due to this being a mental thing, normal doctors are not going to typically figure it out. That's why physical tests never give you results.

Certain therapy practises are supposed to help. I dunno if there's treatment for general OCD but I'll look into trying. If anything I hope this possible diagnosis gives some relief to some of you. To have a name for the curse haha.

for me personally it was very easy to believe this applies to me as i have other signs about myself that point to OCD