Constant urge to pee
Posted , 91 users are following.
I pretty much constantly feel pressure and like I have to pee. If I hold it in a long time the urge is stronger but as soon as I go, the urge starts creeping up again. No burning. Seemingly no discoloration or smell,
I've had this problem before which lasted maybe a year and then it gradually faded? But then it came back sometime last year and it's wearing me down so bad to where I break down and lose it some days. I've been to doctors and I never really get much help. The last Urologist cost me what? $400 to $500? And I got nothing out of it and now I don't even know what to do or who to turn to. I just don't have money to keep spending and not even be helped. Most doctors I go to just do the same thing. "Oh it might be a UTI. LEt's check" again and again. One of the only doctors who offered anything outside the box was a doctor from a few years ago who thinks I might have unintentionally trained my bladder to be this way. The most recent one I went to said it might be overactive bladder or something and kinda brushed me off.
I officially had lab tests done that determined I do not have a UTI. I know it isn't an STD because I had this problem before ever partaking in anything like that.
I've tried quitting soda and drinking only water. Still doing that. I'm even trying bladder training currently and I just don't feel like it's really doing much for me? I'm forcing myself to hold it in longer now but even when I do that I'll still have to go again shortly after. I once held it for like 5 hours, emptied, felt a little better, and then I get in the car and shortly I have to go again. It's just this constant awareness I have of my bladder, this constant feeling of like a little pressure or urge. I don't really leak much. Maybe once or twice I have though? I remember one morning waking up feeling like I must have just started my perod but it wasn't that.
So I mean I am at my limit here. I just don't know what kind of doctor to go to anywmore. And like I just can't bear the thought of dropping another $400-500 like a damn fool.
6 likes, 220 replies
trudilu AkaMisery
Posted
Misery,
Boy can I relate to what you're going through and the total frustration you are feelings. You would think that a urologist would have clue or would be able to help you in some way, but so far nothing has helped. The tests I've gotten just show that it is nothing serious - but it IS serious to me~as it's disrupting my whole life and sapping my energy.
I DO the know the feeling of being brushed off when the doc doesn't know the answer. I'm beginning some for of
Percutaneous Tibial Nerve Stimulation (PTNS) this coming Wednesday for 12 weeks. I have insurance so it isn't that bad as far as expense goes, but it's taking a whole chunk of my life away.
I also have a constant urge to pee and lots of it. I only drink one small glass of ice coffee in the AM and nothing else, so how can I be eliminating a pint of urine or more per day??? Doesn't make sense, plus my bladder almost feels tired (my body definitely does). I pee when I first get up, after pee-ing 5X during the night; then within 15 minutes or so, I have to pee again and it's not just a little bit amount. The stream is heavy and it seems to last forever (I would say at least 30 seconds at a time).
I have tried the med Myrbetriq and it only seemed to make things worse. So, I stopped taking it. Like you, I have no pain, burning, no discoloration or smell. If I go out I have to make sure I know where the nearest bathroom is because I know I'll have to go. I can hold it for a long time, and there is no leakage and my sphincter muscles are fine.
Also, like you, I had a similar problem 5 years ago and it stopped as quickly as it came on. No changes - it just stopped so i figured that's what it's going to do again but it's been going on for 2 months now and I'm losing it as well. I cry and it's adding to my depression. I just want to feel healthy and have some energy.
It very much sounds like I have the same symptoms as you do. I pee, and the urge comes back within 15 minutes; if I'm lucky...an hour. But the "urge" is the problem and it is SO tiring and I also know what you mean when you feel like a fool. Drs. do not know everything, and the best they CAN do is make sure it's nothing serious but they can't help you with a seemingly simple problem that is infiltrating your life. It is NOT normal - so who is going to tell me what's going on??? If I knew, I'd be there in a heartbeat.
May I ask how old you are, approximately? I am in my late 50s and otherwise healthy. But, I can't live this way. I've turned down invitations lately because I'm so depressed because of this problem as well as other things. Google the "tens" nerve stimulation that I wrote above and see if it's something that might help you. I can't tell you yet as I have not started it.
Time to pee again.
AkaMisery trudilu
Posted
trudilu AkaMisery
Posted
I am not sure age has anything to do with it because when I was younger, I had a similar thing. So - please let me know if you come upon any solutions. I know how you feel.
AkaMisery trudilu
Posted
trudilu AkaMisery
Posted
There is one question I'd like answered about this issue, if anyone knows. And, why wouldn't a Dr. know?
I only drink 1 glass of ice coffee with my breakfast. Other than that, I don't drink additional water, even if I want to, because if I'm voiding so much water, I'm afraid it would make it worse.
So my question is, where is all this water coming from??? I'm not dehydrated (I don't think) and I do not drink anything at night or during the day. So where is it coming from? Something that worries me.
anni87150 AkaMisery
Posted
Hi,
I've started to have the symptoms too, where there's no pain, just the discomfort of the need to pee constantly, so I'm sorry to hear what you have been going through for such a long time.
I recently had a kidney stone attack and just before it started I had this strong tingling feeling in my urethra similar to the tingling I get now and the urgency to pee, so I'm wondering if anyone else had had any connections with kidney stones, as I wondering whether it could be related to perhaps small fragments of the stones stimulating the urethra in the bladder, or even just having them in the kidney making the nerves in the urethra stimulated? Has anyone else had kidneys checked with the other test going on?
I never have UTI's, and otherwise quite healthy 43yr old.
Curious to see if anyone else has it.
trudilu anni87150
Posted
Hi,
I certainly hope there is no relation through what I'm feeling now to kidney stones as I hear they can be very painful. Did you tell your Dr. about this new feeling you're having?
The discomfort is maddening, plus I never get a good night's sleep because I'm up every hour and have to sleep in when I can.
A urologist is supposed to be a specialist; yet doesn't really know what's going on either. So, if he doesn't know, who does? and I don't think once can be asked to live this way and feel comfortable when they have to be near a bathroom all the time.
lauren71596 trudilu
Posted
I have been having the same thing. I am in 9th grade. I didn't really notice that it started getting worse until about eighth-grade. I realized that it's just been getting worse and worse over the years. I am trying to figure out the situation to and have been so frustrated I can't sleep either. I just started getting up every hour about when January started. The last few days I have been getting up about two hours after I go to sleep and I have a really bad urge. I never really got urges when I was asleep. I have been to the doctor, and the urologist and they all think I'm normal. It is just so frustrating. In the middle of January I went to a special Doctor Who did muscle testing for anything I was allergic to, it hasn't done anything yet when I cut everything out but it might make a change because I need time. I suggest going there next. I can't even really last an hour at school. And when I come home I have to go more often than that. It keeps getting worse but I don't know how much worse it can get before I start missing school. I'll keep you updated on if anything else helps because I know the pain and frustration. I know when I get a bad urge, I take a hot shower because it helps relax my muscles. You can use this as a temporary relaxer.
AkaMisery
Posted
Been a while since I posted. I'm still in constant misery. Nothing helps. Plenty of urine comes out when I go. So I dunno anymore. There's honestly no hope at all. I don't know what to do. I can't diagnose this so I don't even know what strategy to use to combat it. I really wonder if I have uhh sensory OCD (I recommend everyone check that out granted to take it with a grain of salk because I doubt we all have the same problem and or cause of said problem)
I wish I could inject my baldder/urethra/muscles in that general area with some anesthetic to numb it or something. Just so I can get an idea on what I SHOULD feel like
trudilu AkaMisery
Posted
As I was reading all of this, I thought - (trying to have a sense of humor at least) that IF we had a support group where we all got together in person to talk about how uncomfortable this 'thing' is that Drs. seem to brush away cause they don't know what it is - the room would be empty - BUT there would be a very long line to the bathroom, LOL.
AkaMisery
Edited
Kclifford01 AkaMisery
Edited
Hey girl!
So I'm not gunna be one of those people that doesn't come back to share success! I am not 100% but I am MUCH better than I was! I was in such a BAD place!
I found a female urologist and pelvic floor specialist. She throughly looked through all my charts and assured me that she could help! She basically told me that my pelvic floor muscles are inflamed and tense and I needed to relax because the tension is what's causing me to feel like I have to urinate. So I started by soaking my pelvic floor muscles twice a day in an epsom salt soak! This was supposed to relax and loosen the muscles and nerves from the magnesium in the salt (this has been a saving grace!). Next she told me to take miralax once a day. Because if you are constipated then you are straining and it's all connected. So consitpation is just going to upset the pelvic floor muscles even More. I also cut out coffee and almost all alchol! She said I didn't need to but I think it helps. Maybe like one cup of coffee a week and drinks maybe one night every two weeks. But I cut it out completely at the beginning. Also she prescribed me a suppository called Bella Donna opium. It relaxes the pelvic floor muscles and prevents urinary spasms. I only used this like the first week when I was at my worst!
I also have been drinking dandelion tea which is a natural antiflammtory, and seeing a acupuncturist! Overall I have noticed that with lots of rest, heat, and everything else I've been doing I am slowly feeling better! I hope this helps!
It's tedious but a step in the right direction!
AkaMisery
Posted
Kclifford01 AkaMisery
Posted
There is a great Facebook suppprt group for persistent genital disorder! It's a private group so you won't be able to find it but find me on Facebook and I'll get you connected.
- Kayla Clifford
trudilu Kclifford01
Posted
I'll look for you on FB, but to be honest, i just want answers and relief and not just talking which is what a support group is, right? I feel badly for anyone who has this and a Dr. cannot help them!