Continuous genital herpes outbreaks dispite surpressive therapy
Posted , 53 users are following.
I contracted genital herpes from an assault 7 years ago. I've always battled with the the occasional mild outbreak, usually around my period time. However, about two years agoI had a huge outbreak, bigger than my first. Since then Ive taken daily alciclovir, as perscribed by my doctors. However, the outbreaks have gotten more frequent. Around October time, I started getting them every two weeks, but since around Christmas, i have lesion, then that heals, then another appears, then that heals etc etc. I'm really at my wits end. Can anyone offer advice?
2 likes, 104 replies
christy14815 r26013
Posted
It tastes bitter, but is a great viral suppressant. There are warnings out there about bht, but there are studies that dispute the purported harm it is said to cause. I am guessing the negative press comes from the reality that bht is cheap,and over the counter, so no drug company is making money from it.
joanna49787 r26013
Posted
After about 15 years of having this with very few and very mild outbreaks, from just before Christmas this year I have been struggling to shake off symptoms with only one actual lesion, but as soon as it healed it came back along with terrible itching, burning and leg pain. I have been at my wit's end and aciclvor which I got for the first time, did nothing.
After much googling and research I came across a herb with great anti-viral properties and after taking it three times yesterday, I woke up this morning with a much calmer feeling and hardly any itching at all and absolutely no burning.
I don't think it can be coincidence as I have been trying every combination of supplements and vitamins,
So to cut a long story short, I wanted to share with you all that my regime now is
Vitamin C x 2 of 1000 mg
Zinc x 2 30 mg
Kyolic Acid, which is just garlic and during an outbreak you can take up to 10-12 per day
2 probiotic 4 million bacteria
Magnesium - up to 4 per day
And the deal breaker for me has definitely been
PRUNELLA VULGARIS, taken four times a day in water. You can also get it in tea form.
I am, for the first time feeling so hopefull that I am finally getting this under control.
I would love to hear back from any of you if you try it.
Please do, I really think it is worth a shot.
Stay positive and keep with the deep breathing.
x
lisa53847 joanna49787
Posted
joanna49787 lisa53847
Posted
Hi Lisa
That is the way I was before I started the Prunella - thought I was going out of my mind! Yes, it is still helping. The symptoms are becoming less and less. I am nearly 51 and mine to date have been hardly nothing at all but was getting nerve pain down the front of my left leg too. I think it is hormone imbalance as I am in the perimenopause now. I was so worried I can't even tell you. I think a lot of it is learning to accept it and relax, but this is definitely helping.
Stay strong
lisa53847 joanna49787
Posted
My burning is in my lady parts and my butt. Feels like sunburn. I'm afraid it will never go away. I have been so depressed 😂
joanna49787 lisa53847
Posted
I know that feeling, it is awful. Tell me what you have tried. I was on aciclovir for the first time, for 5 days and I don't think it did one damn thing apart from make me feel sick. It will go away. I know it is difficult but try to minimise it in your mind because I am sure anxiety fed mine. Tell me what you have tried and what you are taking now.
x
lisa53847 joanna49787
Posted
I am and have been on famvir. This started while on famvir. I was having monthly outbreaks. 3 months ago was my last outbreak. Ever since then been burning. I have taken. B12, zinc, lactoferin, vit d, beta glucan. Just to name a few. Now I am taking famvir but reduced from 500 mg to 250 since it's not helping anyway. B12, vit d, just stared probiotics. Some little pills from my naturopathic dr. For burning. I am hoping to see the Chinese medicine doctor where I go to the naturopathic doctor. I think she might b able to help me better.
joanna49787 lisa53847
Posted
I think that is probably a good idea as I don't think these drugs do a damn thing! It really is horrible. Do you think yours is hormone related?
Maybe you'd be best off not taking the Famvir at all?
Do you ever get soreness where your lymph nodes are? That is what I have mainly at the minute.
aj84108 joanna49787
Posted
Hi. To you & everyone. PLEASE READ. I was "lucky" enough to be given this LIFETIME "thing" at just 14 YO. On purpose. It was the 1980's. There are a few things I want to tell you & everyone. I feel since I have lived with this for so many years, I should say something! (38 years now & I have NEVER spoken about it)
First of all, I DO NOT BELIEVE IN "V******" at all! The one time I had to take it for some cosmetic surgery, it changed the ob's Forever! Had a bff with the same story too. Back in the 80's, at my own diagnosis anyway, there was no treatment other than a Topical cream & that was only for first time symptoms. Yes. 1 year later there were more options available, but I never used them. Thank goodness! Until my early 20's, I just endured the monthly misery. It was nothing like that first time, which was pure Hell! I do believe that stress is an enormous factor, firstly. I always had felt this way but then got proof of it when I met my ex husband. You see, I was young. This was a monthly & accepted issue (what else could I have possibly done but accept it?) & I learned to live with it. Then I met my ex. I had immediate stability.And apparent love. And security. All those things that were causing me horrible stress in my life literally disappeared! I no longer had to even work. I remember feeling that certain sensation coming on after we first met. But was completely shocked to realize it had somehow simply stopped before a full Ob. It was then I realized the correlation between certain stresses (I am sure these stresses are highly individualistic) & ob's. This is the Gods honest truth! The minute, after 5 years together, he left me, my monthly ob's were resurrected! I swear to the good lord above! Immediately following his leaving me, everything was right back to once a month. After 5 years! I still never chose to go on any therapy, although it was readily available. Always the same spot. Always a 2 week duration. Always. I also must say that I did see someone's post about not disclosing for months/years on end to prove the point of knowledge of oneself & could not agree more! Some may find that to be irresponsible at the least. I am not one of them. The rare occasion I have told anyone before sex, I have absolutely regretted it. Scared people away. Needlessly. My opinion ? Do not take any prescription medicine. Obviously this is just my opinion.i am Not a doctor. Just lived this most of my life. I have never once given it to anyone else. Not even during an Ob! Only have had serious relationships. No one night stands. I have always & still believe that it's not as contagious as we are led to believe. I also believe in never telling anyone before & maybe even after sex. pointless. I definitely do not believe in drugs for this. None that are available at this time anyway, by prescription. My ex husband has been long gone from me. He never contracted it. Nor did any of the 3-4 others I have been with. All were made aware. Mostly, none really cared much. A good thing. And all did not care even during the occasional Ob. Still had sex, even during ob's. To those of you who believe prescription medicine is your way, great for you. I mean that. As I said, I was one time prescribed medicine for a cosmetic surgery for prevention. doctor was completely unaware of that part of my history. What happened was that after consuming that very medicine, V****** , I did, fairly soon after the procedure, get an Ob, it changed the place it had always occurred. Different side of body and all. This is not usual in my opinion. I am still very upset I ever even took that medicine. The longer one has it, the less usual the Ob's should be. There are many different strains. My once bff got it 1 year after I did. At 15. Unfortunately my then bff chose to tell everyone my personal business. I imagine that's exactly why I was not told until 15 to 20 years later that it'd also happened to my then bff. And only one year later than myself! I could have really benefited from any support! But that person chose to deny that support at the time. That person also chose to use the medicine that was (even tho just a year later) available as well as another later approved medicine, years later. That person has never stopped with the ob's. And our stories (and very likely strains!) are (probably) identical as far as original symptoms etcetera go! The very same thing happened. Ob arose in a completely different spot. Opposite side of the body. I personally believe that shows it's failure. HSV should never present on the opposite side of the body. this is my own opinion, based on & after thorough research.
As far as what vitamins, minerals, etcetera one should look into? I believe it's (look into! Not take necessarily) colloidal silver. Just look into it. I personally have never used it. Just read about successes with it. These days, an Ob is extremely rare for me. It's been 6 years or so. And I'm definitely under stress. Among many other things that cause stress & that have been mentioned here. I have never discussed this before (except with former bff) NEVER online! I just need people to realize that just because a new drug, an old drug, seems worthy, it just may not be! Not in my personal experience. I am in no way attempting to give any type of medical advice.i have nothing to gain or lose by saying any of this. I am just sharing my own life experience on this subject. I am extremely lucky that I have been Ob free for several years again. I attribute that to my own lack of a certain type of stress. Luckily & very thankfully to my one & only. My own version of awful & life altering stress. I believe that each of us has our own certain type of stress (therefore cause and effect) & I personally believe that is the key. Minimize whatever is your own stress. Or eliminate it, if possible. Thank you for reading. All the best to everyone.
becky17866 r26013
Posted
I went through the same thing. I am menopausal and started having continuous outbreaks. I tried everything including oregano oil, olive extract, lemon juice, BHT, probiotics, and more. They helped fight the virus, but not very well. This went on for about two months. I hadn't had an outbreak in years.
I finally went to a doctor that specialized in hormone replacement therapy. She did a blood test and determined that I was low in estrogen and progesterone. She wrote me a prescription for biodentical hormones. I take it orally putting it between my cheek and gum twice a day. Very slowly, the virus subsided. It took six weeks, but I eventually got my body back. I have to emphasize how slow the recovery was. There were days when I thought the virus was winning, but I stayed the course. I also used zinc, lysine and oil of oregano capsules to help fight the virus while I was taking the hormones. I also used special lemon balm oitment just for blisters to fight those off too.
I am now about 99% back to normal. Every once in a while I feel a little twing in my hip, but I'm confident now that it will slowing subside too. I will also mention that I tried to just use hormone creams to fix the problem, but that didn't work. I really needed expert support to figure out how low I was and how to get my hormones back to normal.
I hope this post helps someone. I waited to post on purpose to make sure the solution for me was real. I feel better in general. My hair is growing back and I am much less emotional. I had tinnitus, and that is subsiding too. I also want to say that our mental and physcial health go hand in hand. There were times when I was very depressed about my situation and I wasn't sure how I was supposed to continue with things the way they were. It was bad. Really bad. But I'm glad I found this solution and I really hope it ends the suffering of others.
One more thing. There are websites out there for singles that have the virus. I found my boyfriend there. You don't have to live the rest of your life alone. : )
Take care ladies!
kate36148 becky17866
Posted
Hi- thanks for the info Becky. I too am going thru menapause and had the same situation as you. I tried all the things that you did but I still broke out even taking the Valtrex! I looked up online and found an artclie about Oriental women who dont' have any symptons as western women going thru the change, like hot flashes, night sweats, mood swings etc. I thought it very interesting that they claimed that it was the diet. Most oriental women eat alot of soy based products that have phytoestrogens( they have natural hormone balances like tofu, soy beans, alfalpha or bean spouts). Most women on here want that quick fix like I did but it's important to get your body back in balance first. I tried tried eating rich soy based foods and starting taking Bioidentical Progesterone Cream. My herpes has calmed down consideraby, ONly 1 break out in 4 months- and it was caused by stress and it was very mild. Good luck- hope this helped!
aj84108 becky17866
Posted
Thank YOU BECKY! Honestly! My issue is not exactly the same except I WANT BHRT & was SCARED! Till I read your post! TY!
aj84108 becky17866
Posted
stella99138 r26013
Posted
It's horrible to have. I've had it for years and despite the meds it seems to come back in cycles... sometimes really bad.. huge great blisters. Although I'm over the menopause, I find if I get stressed out... emotional it seems to flare up.
L-lysine is a supplement which helps and lysine rich foods, but be aware l-arginine promotes it so check which foods contain both as you could be consuming too much l-arginine at times unknowingly.
. So far the most effective is monolaurin, although I still get the odd breakout even though I take the recommended daily dose. but it doesn't seem to last so long. The strange thigs is it's actually moved to another part of my body!! which is preferrrable to where it was . I didn't feel too good at first with the monolaurin but I now take it before bed which seems to be better.
Hope that helps
frenchie03305 r26013
Posted
I had a mild outbreak that began last week, normally I just take the suppression treatment and they go or I just ignore it, anyway my OB have become more frequent and I decided to look into how to make them stop as since I was diognosied in 2010 it’s really got me down each time I get it. I hate having it I really do.
Anyway, so off I went and brought Natures Aid L LYsine 1000mg and oh my god my OB literally tripled, it’s just got worse and worse and I worse. I’m at a loss, and then I read somewhere that you need to make sure your LlYsine doesn’t contain: Di Calcium Phosphate, Dextrine or Magnesium Stearate.
Natures Aid contains all 3. Have I just completely screwed myself? How can I combat this, it’s actually insane how bad it is, after 10 years why’s it just getting worse. I don’t know what to do
any advise would be greatfully recieved.
Ta