Copd

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Hi I just been told I have Copd, I am 62and yes a smoker. But my point is why am I so breathless at nearly everything I do. I read that after diagnose Copd patients don't live long 

 

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  • Posted

    Hi Carol, I have had copd for at least 10 yrs now, I'm on oxygen 24/7 and I get very breathless. I still feel as tho I have a lot more years yet. Mind you if you carry on smoking you will deteriorate a lot faster. I didn't stop till 5 yrs ago that's why I'm where I am today. I tried many times without success, I found it very hard to give up I enjoyed my cigs too much. I'm 65 now and unable to do very much at all without being breathless. Stay strong and help yourself as much as you can. 
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  • Posted

    Life expectancy obviously depends on when it's diagnosed:  lots of smokers keep fooling themselves they just have "smoker's cough" and may not be diagnosed with COPD until their symptoms are really severe.

    You're breathless because you have COPD!   Do some googling and check out the damage smoking does to the lungs - I'm an ex smoker by the way, stopped a couple of years before I was diagnosed with emphysema.

    Get yourself into rehab and take advantage of the excellent medications which are available:  it's not curable but it is possible to slow its advance and manage the symptoms.     What % of lung function do you have left?  I had 70% when diagnosed over 3 years ago and it's still the same.

    And of course  you know the other thing you can do to prolong your life and slow down its advance, don't you?

    Best of luck, it's a shock I know, but now you know why you're breathless you can start doing something about it:  doctors & ancillary medical  people can do a lot but so can you - go for it if you want to live as long as p;ossible

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  • Posted

    I have was diagnosed with copd with emphysema 2 yrs ago. I'm on 12ltr oxygen 24/7 and I still get very breathless doing very little. I still feel as tho I have a lot more years yet. Mind you if you carry on smoking you will deteriorate a lot faster.  I'm 67 now and unable to do very much at all without being breathless. Stay strong and help yourself as much as you can. I have coughing jags so bad sometimes I almost past out. Give up the cigs

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    Hi Carol that is rubbish!  Please don't google indiscrimantly as you will read a lot of rubbish in some sites.  Stick to recognised ones.  

    It largely depends on what stage you are at.   Do you know your lung function or stage you are?   If you are mild or even moderate then taking care of yourself can stop the disease progressing or not much anyway.   Even if you are severe there are things you can do to hold it stable.  

    I was diagnosed at 55 with mild copd and the doctor told me not to worry about it as something else will get me first!   Who wants to live to be 100?

    I will admit I am also still smoking and I know I must give it up as nothing makes the disease progress faster that this.   Are you on any meds and what are they?

    Bev x   

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    • Posted

      hyoercat, To read or not to read (info about copd on the internet). I confess that I have read so much that it is now my official national past time.  I was diagnosed a few weeks ago with mild copd. 87% fev1 and 67% fvc. Like you, my pulmonologist said not to worry that other things will get me first. I dont trust that statment as there seems to be so much information that contradicts that. what to you think?  Thank you injj advance.  LT
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    • Posted

      Hi Larry well that depends on whether you trust your doctor and us,  who live with copd, more than you trust dodgy websites.  If you must google for goodness sake use recognised sites such as NHS or this one.  

      With an 87% lung function you are nearly not in the copd range as anything over 90% is just considered a variation of the norm.  Generally unless you are very unlucky it will not progress fast but smoking and not looking after yourself will speed the progression.   To put it into perspective the lowest lung function to survive at is 6%.  You would not be in serious trouble unless you went down to less than 50% and even with that many people live for a many years with a relatively good quality of life. 

      What will affect you most is your attitude towards it.  You need to recognise that you have a chronic incurable illness,  stop smoking (I admit I am still struggling with this),  lead as healthy a life as you can,  then get on with your life.  You have many good years of living left yet.  Ok?  x

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    • Posted

      Hypercat, I am 59, I quite smoking 21/2 - 3 years ago. BMI of 29 though pretty fit for my age. I smoked 7-9 pack years. I eat well, work full time @ 55 hours weekly and am raising my 13 year old daughter by myself. Of course, I am burying myself in the pursuit of knowledge - probably like most do when they discover they have copd. I get rather depressed at times and other times, i get along fine. The knowledge of having copd casts what feels like a big, copd umbrella over me and I am living in the shadows of this "new life" with the fear of depreciating lung function and struggling the last years of my life.  I will begin inhalers soon. I am embarrased to go get my prescription as I have never had to take any long term meds in my life.  Larry
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    • Posted

      Hi Larry yes I do understand as when I was diagnosed 5/6 years ago I wanted to find out all I could.  I joined a couple of copd sites and got sent l   That's where I got most of my information and from recognised sites.  I certainly didn't google anything and everything from the net - this is a mugs game and as you have found out only makes you worry all the more. 

      I think you are very lucky at your age never to have had to take long term meds and I think for you this is more than just very mild copd,  this is recognition of your own mortality for the first time.  .  This comes to all of us in time you know but you have to come to terms with it.  After all it is much better than the alternative....It is everyones dream to live to be 100 with nothing wrong with them and just to drop dead one day.  Unfortunately this isn't the reality for most of us and we do tend to accumulate illnesses as we age.   I am just grateful that I don't have anything which might kill me soon ie cancer or heart problems, or anything which interfers too much with my normal life.  

      With your lung function the most you will get is slight breathlessness on climbing hills and steps,  you might get more chest infectons,  and you might feel a bit worse with them.  That's if folks.   Don't forget we all naturally lose a bit of  lung function as we age anyway.

      I will pm you with the email address of another copd site I am on,  x

        

       

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  • Posted

    Dear carol

    COPD isn't curable but quitting smoking will help you more than you know. I am 75 and ggot pneumonia last year and ended up in hospital. Shortness of breath is so bad. I have two caregivers who do my cleaning laundry and dishes. If I do nothing I feel fine. I smoked for 37 years and got breast cancer and quit November 1991. My lungs are not good. I am on Spiriva and symbicort. I live in BC Canada. Had to leave Alberta due to the cold weather.

    Please quit smoking. The doctor is not going to have a lot of respect for you if u don't. Mary ann

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    • Posted

      Having noted all posts on this thread, I choose to react to your comment. I see you are domiciled in BC. I reside in Kent, England, which probably has similar winter temperature ranges to Vancouver/Victoria. I am also very familiar with parts of the Rockies, Alberta and northern BC.

      The point at issue, for me anyway, is to determine over time what bearing winter temperatures have on mild to moderate COPD. Also, can the effects be arrested and in some cases reversed?

      As indicated on another thread I persist with 3 - 4 miles walking each day. In addition, at age 73, I continue with physical outdoor work on 24 -26 days each month. Performance on some days is better than others.

      My only observation at this stage is that I feel better than in December 2014. It remains to be seen if matters improve over the next few months. I confirm, however, it is something of a battle getting started each day.

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    I was diagnosed with Emphysema in 2000 the year I gave up smoking for good (cold turkey is really the only was for me). I was mild to moderate at that stage. I am now Stage 4 Very Severe. I walk every day - not far - about a kilometre on the flat and periodically ride an exercise bike - 5 kms. We all get breathless some more than others. I'm not on oxygen. Please check out the Lung Foundation website - Google Heathunlocked - lots of information. Try also COPD International. Best regards
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    • Posted

      So in 15 years Martin you went from mild/mod to very severe despite giving up smoking and exercising?   That is a very fast progression and I didn't know it could happen so quickly - you must have been very unlucky!  I admire you for still exercising every day.  I hope you have many more years yet.  

      Bev x

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    • Posted

      It obviously depends on what stage he'd reached when he was diagnosed and apart from that it's a very variable condition
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