Could I still have Pmr with low esr results?
Posted , 8 users are following.
I have recently had blood tests again and have a low esr. I have symptoms of pmr and discussed these with my gp. I begged her for prednisolone and she reluctantly agreed but only one week. I felt great! I was walking normally, getting out of bed for the whole day where I was bed bound a lot before, just felt so wonderful having so little pain in my hips and shoulders. My blood tests came back normal and she said she cant give me any more and is referring me to rheumatology again. The pain has come back, my hips are crippling me my shoulders are so so painful again and nothing else has worked, just the prednisolone. My orthopaedic specialist may give me one more injection in ten days, vpbut that will be the third and he said 3 is the max so I should have relief for 3 weeks, if previous injections are to go by but after that........i dont know how I can cope any more with this dreadful pain!
1 like, 42 replies
shawn99 Xxxxxtttttttttt
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Based on what you said, I would look for a new doctor. It seems that you are not being listened to regarding your pain.
Nobody wants to be reliant on Prednisone and have all the potential side effects, but a quality of life is important.
I could not function without Prednisone, but still willing to put up with the side effects.
Good luck,
Shawn
Xxxxxtttttttttt shawn99
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christine26681 Xxxxxtttttttttt
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I am so sorry you are in such unnecessary bpain. Please ask to see another doctor at your GP surgery and/or another rheumatologist; someone who knows more about atypical PMR.
What is your age by the way?
Xxxxxtttttttttt christine26681
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christine26681 Xxxxxtttttttttt
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A rheumatologist should run a whole gamut of blood tests to rule out other autoimmune diseases that can similarly cause muscle aches and pains.
Yes, pred does have side effects but not everyone gets all of them and the benefit of bring rid of the awful pain outweighs the side effects in my view.
Xxxxxtttttttttt christine26681
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ElaineA Xxxxxtttttttttt
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Xxxxxtttttttttt ElaineA
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ElaineA Xxxxxtttttttttt
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christine26681 Xxxxxtttttttttt
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Xxxxxtttttttttt ElaineA
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Xxxxxtttttttttt christine26681
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karen1961 Xxxxxtttttttttt
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Xxxxxtttttttttt karen1961
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EileenH Xxxxxtttttttttt
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Look for doctors who take your pain seriously: one lady wrote a letter to her GP with a diary of how it affected her day to day living. That seemed to sink in. If it is male doctors - take your partner. It's disgusting but having a man to support you seems to concentrate their minds and they will treat at least one of you as a sensible adult.
Icing may help trochanteric bursitis - they used to suggest physio: it doesn't work well.
Xxxxxtttttttttt EileenH
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