could it be cfs
Posted , 9 users are following.
Have just found this topic and would be interested in finding out if I could have cfs , have been diagnosed in last year with pernicious aneamia, arithritis ( dont know what type although RA Factor 30.0) all symptoms of sjogrens (dry mouth,nose skin,eyes etc )but bloods negetive also underactive thyroid for several years also had fibromyalgia mentioned also have periferal neuropathysecondary to all above according to neurologist awaiting nerve conduction test in other words a total disaster lol my worst symptoms are complete exhaustion ,depression, anxiety all made worse by fatigue which does improve a bit after b12 jabs (2 monthly) but doesn't last long I also have a bad sleep pattern and restless legs ,arms which keeps me awake most night I can have great urges to do things like housework etc nbut can end up in tears of frustration when I cant do them does this sound familiar and is it possible I could have to add something else to my never ending list any advice appreciated
0 likes, 49 replies
Kristal
Posted
James says (on another thread) that he has a special cage to fit on the fork lift to carry people which we could use
Oh Daisy I now have a real fit of giggles with the mental picture of us all :diva: :hug: :nahnah:
Dale
Posted
Tha mental images are brilliant :silly:
Please can I have cotton and black and blue stripes (team colours :football: ) for my kaftan :P
I dont need a weighted hem. I have underwear :wink:
Dale xxx
katie.k.
Posted
Had to pop out this morning and have found myself laughing to myself on several occasions thinking of our seaside kaftan discussions :lol: :lol:
If I suddenly disappear .... you will know that I have finally been carted off somewhere ..... :lol:
maurich
Posted
About the Kaftan can I have red and purple without weights as I can be on my knees with my prothesis boob so dont need anymore weight and being a Scot can pretend it's a kilt
I have been good at pacing a new word and activity for me today and even said my first NO another word not in my language when my daughter asked me to go out early WED morning as I have an early appointment on Tuesday at doctor and early at hospital on Thirsday said no to Wednesday so another pat on my back
Have also just got my hubby to read symptom sheet Alicia kindly sent me so maybe he will understand more he is very good at the practical side of helping out doing housework etc but not emotionally if anything he is too well organised and I get very angry and agitated as he can do the things I used to take for granted but reading your stories I understand this can be normal thanks a lot folks hope everyone is ok love Mo
katie.k.
Posted
We have all circulated the article Alicia sent us amongst work colleagues, family and friends in the hope that they read and digest ..... to most it is a real eye-opener ...... even if they do have to be reminded again every now and then :roll:
They say laughter is the best medicine ..... and in our case I think it is absolutely vital. You really have been through a rough time Mo so I'm so pleased that you have found a place like this where you can have a bit of light-hearted fun .. oh, and occasionally some sensible information :D
My sister in law's hair has just grown back following chemo .... she used to have long, straight blonde hair ...... and it has grown back grey and [b:6323c48dca]very[/b:6323c48dca] curly. Her little grandaughter said 'Oh, Granny, you look just like the Grandma's in the books now!) :lol:
Daisy_B.
Posted
maurich
Posted
Blotted my copy book after tea decided I could go for a walk with our best friend Bobby our 10 year old yorkie, well it was absolutely freezing so returned chilled to the bone and knackered and it was only round the block oh well that'll teach me
katie.k.
Posted
Do hope poor Bobby had a little coat on ..... I :love: yorkies :D
Call me old fashioned, but how can hair be sexy :roll:
Hey girls, don't forget it's Valentine's Day tomorrow :love: :love: :love:
I bought a card ages ago and have now lost the darn thing .... :erm:
Kristal
Posted
To make me feel even more guilty, I have just accidently found a card and pressie from him to me
katie.k.
Posted
I suppose we are just sooo darn tired and our emotions have gone completely caput :shock: :yikes:
And we now have ads for polyester suits (your fault Kristal :roll: ) plus women's fashion in sizes l2-32 :shock: OMG .... is this what we have ahead of us :wah:
Downhill all the way :roll:
maurich
Posted
Kristal
Posted
If he won't keep his little coat on then perhaps he would like a kaftan to match yours :wink:
katie.k.
Posted
Wonder if he would get on with Max Dog :D
alicia
Posted
Perhaps Bobby would like to come to MDs birthday party next month? :D
maurich
Posted