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I am looking for some advice.
The story is I have have urinary problems since I was 28, I had a cystoscopy (which I got an infection from) and various urodynamics test and it was decided I had an enlarged prostate, I was offered finasteride but was told I would be a bit of a giniea pig as they had just been released, after a year I came of of them as they did'nt really do much help and I just put up with the symptoms, which were a bad urge to urinate and feeling as if I needed to go straight after I had already been and poor flow, never getting up at night.
Fast forward 28 years and just over a year ago I felt things were getting worse, so went to see a consultant, I refused a cystoscopy and from flow tests he deduced I needed a turp which I refused, so I done some investigation into PAE and discovered my local hospital were involved in the trials, I arranged to see the radiologist involved who said I would need to go see another consultant, which I did, again I refused a cystoscopy but agreed to a ascending urethragram, the result of this was that he thought I had a bulbar stricture so sent me to see a consultant urethroplasty surgeon, he took one look at the images and said that's what he would expect to see in a healthy person, and the urethragram was not done fully.
So back to the second consultant, and I have now agreed to have a cystoscopy under a general, however he is talking about if there is a stricture dilating it and if necesarry putting slits in the urethra whilst doing the cystoscopy, and if I have an enlarged prostate doing a turp, I have said no way to the turp, but if it's a stricture I have been told it only has a 50/50 chance of being succesful and I will always have to dialate, to be honest the idea of that for the rest of my life terrifies me and I would rather consider urethroplasty.
I am really confused as to what to do, I currently feel really good and although I have up to 350ml retention sometimes and I generaly pee 200-300ml but sometimes can pee 400ml. I take a afuzosin only when I feel I am having a problem peeing or get a feeling of not emptying, I have never had a uro infection except for the one they gave me 28 years ago with the cystoscopy, my kidney function is normal.
Surely if I had an enlarged prostate 28 years ago my prostate should now be larger than the 28ml it was measured at in my last scan.
I was also told by the urethroplasty surgeon that I could just live with it, which goes against everything every other consultant has said.
I have stoped drinking coffee, coke and eating chocolate and my syptoms improved hugely when I did.
If I had the cystoscopy being awake and they came across a stricture can it be dilated to complete the cystoscopy without the slitting,
If I was under a general and I had a stricture and it needed slitting can I still have a urethroplasty when/if it fails ?
My first cystoscopy was so painful I would dread being awake.
One thing for sure is I will only go for a PAE and under no circumstances will I be having a turp if it does turn out to be an enlarged prostate.
Sorry this is a bit long winded and mixed up but tbh so am I at the moment.
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