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cystoscopy outcome advice

Posted , 10 users are following.

scraggs
scraggs

Hi all

I am looking for some advice.

The story is I have have urinary problems since I was 28, I had a cystoscopy (which I got an infection from) and various urodynamics test and it was decided I had an enlarged prostate, I was offered finasteride but was told I would be a bit of a giniea pig as they had just been released, after a year I came of of them as they did'nt really do much help and I just put up with the symptoms, which were a bad urge to urinate and feeling as if I needed to go straight after I had already been and poor flow, never getting up at night.

Fast forward 28 years and just over a year ago I felt things were getting worse, so went to see a consultant, I refused a cystoscopy and from flow tests he deduced I needed a turp which I refused, so I done some investigation into PAE and discovered my local hospital were involved in the trials, I arranged to see the radiologist involved who said I would need to go see another consultant, which I did, again I refused a cystoscopy but agreed to a ascending urethragram, the result of this was that he thought I had a bulbar stricture so sent me to see a consultant urethroplasty surgeon, he took one look at the images and said that's what he would expect to see in a healthy person, and the urethragram was not done fully.

So back to the second consultant, and I have now agreed to have a cystoscopy under a general, however he is talking about if there is a stricture dilating it and if necesarry putting slits in the urethra whilst doing the cystoscopy, and if I have an enlarged prostate doing a turp, I have said no way to the turp, but if it's a stricture I have been told it only has a 50/50 chance of being succesful and I will always have to dialate, to be honest the idea of that for the rest of my life terrifies me and I would rather consider urethroplasty.

I am really confused as to what to do, I currently feel really good and although I have up to 350ml retention sometimes and I generaly pee 200-300ml but sometimes can pee 400ml. I take a afuzosin only when I feel I am having a problem peeing or get a feeling of not emptying, I have never had a uro infection except for the one they gave me 28 years ago with the cystoscopy, my kidney function is normal.

Surely if I had an enlarged prostate 28 years ago my prostate should now be larger than the 28ml it was measured at in my last scan.

I was also told by the urethroplasty surgeon that I could just live with it, which goes against everything every other consultant has said.

I have stoped drinking coffee, coke and eating chocolate and my syptoms improved hugely when I did.

If I had the cystoscopy being awake and they came across a stricture can it be dilated to complete the cystoscopy without the slitting,

If I was under a general and I had a stricture and it needed slitting can I still have a urethroplasty when/if it fails ?

My first cystoscopy was so painful I would dread being awake.

One thing for sure is I will only go for a PAE and under no circumstances will I be having a turp if it does turn out to be an enlarged prostate.

Sorry this is a bit long winded and mixed up but tbh so am I at the moment.

0 likes, 18 replies

18 Replies

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  • geoff90305
    geoff90305 scraggs

    Posted

    Hi Scraggs, I recently had a cystoscopy with a general, and had a mild dilation while there for a known stricture in the bulbar region. 30 and 40 years ago I had had two DVIU procedures.(scalpal slits) They made the stricture a lot better for 1-2 years, then it simply returned as scar tissue built up. On my last cystoscopy the uro said the urethra was restricted, but any surgery would be massive for a minor improvement and to live with it.

    Regarding the infection after you having the cystoscopy. A nurse mentioned all the gunk in my groin area after the cystoscopy procedure was the antiseptic this uro insists on flooding the urethra and bladder to reduce infections. So, maybe your first uro was not too good at his antiseptic procedures.  

  • scraggs
    scraggs

    Posted

    Dragging this old thread up.

    the radiologist who done the ultrasound must have got the size rather wrong.

    I finally had the cystoscopy today, a night and day difference, everyone involved was fantastic and the whole thing was explained as it was done.

    I certainly wouldn't be overly bothered if I had to have another.

    Anyway the outcome was that I have a very enlarged prostate, the urologist was very honest to say he wasn't sure how well PAE worked on prostates as large, as all the ones done in the trials were not as large, but he will try to find out more about it's success rate on larger prostates, meanwhile I will see what I can find out on here about it.

    In the interim I am going to be taught CIC to give me time to decide how I want to go with it if.

     

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