1. Community
  2. Genito-urinary/Kidney
  3. Urinary Tract Infection

D mannose..Not Working.... and more..

Posted , 118 users are following.

This discussion has been locked due to a period of inactivity.
nnj925
nnj925

I have been suffering for a year now with UTI's....my bladder always feels like I have a UTI even when I come up negative...I take DMannose EVERY DAY and YES my infection is always Ecoli...the only antibiotic that seems to work is Levaquin...Cipro did nothing even though the strain was sensitive to it...same thing with macrobid...I also take Fem Dolpholis every day and oil of oregano pills...and calcium and magnesium....NOTHING seems to work..I wash and my husband does before and after sex...wipe front to back...all the usual I drink 50 oz of water a day..I have NO CAFFINE, NO SODA...nothing but water or seltzer water... 

Any suggestions???

Nicole

2 likes, 298 replies

298 Replies

Prev Next
  • sarah98641
    sarah98641 nnj925

    Posted

    i know it sounds nuts, but i recommend testing for parasites. I know it sounds mental but my sister's urologist explained how the common threadworm has now been linked to a big portion of reoccurring UTI's in women. There are a few studies on the web that explains how/why. My sister had reoccuring infection which antibiotics did not touch- she got referred to a specialist who never even ran tests for parasires, she just told her to pick up a bottle of parasite meds from Boots & to see if it made a difference...IT DID! Turned out my Neice's school had a break out but my niece lost her letter 😂   After 3 weeks of £6 worming medication, her uti disappeared. Apparently, 40% of UK children under the age of 10 have/had pinworms! 

  • deanna89097
    deanna89097 nnj925

    Posted

    Nicole,

    I just read your blog about your UTI's from 8 months ago.  Hope you get this and it can be of some help.  I have suffered with bladder infections on and off all my adult life.  What worked from me for 10 years was having my Erethra enlarged.  I think that is all I need to say about that.

    Deanna

  • cherie52901
    cherie52901 nnj925

    Posted

    nnj925, I have been reading with great interest all the replies to the question you originally asked 9 months ago, having discovered this site while looking for info on D-Mannose. I was diagnosed with interstitial cystitis about 2 yrs ago, and am always looking for helpful ways to deal with it. Until I was diagnosed, I dealt with the frequent UTI's and the embarrasing e.coli lectures from my GP.  ( AS you said--"Like we don't know how to wipe..."wink My GP actually threatened to put me on a low maintenance dose of ABs for the rest of  my life if I had ONE MORE UTI !!!  That was when I asked to see a urologist, who told me I wasn't actually having UTI's at all, but had ulcers in my bladder, and that was the pain I was feeling! His nurse also explained that the e coli had nothing to do with "wiping." They explained that people with this condition have urine that is overly acidic, which can be the result of stress or diet, and can be rectified by trying to reduce the amount of stress in your life and changing to a diet that is more alkyline.(There are charts available on the iternet to help with this, but in general, think  less meat/dairy, more fruits and vegs.)  There is also medicine available, but I chose not to take it. I've managed to get it under pretty good control with diet.  

    • jensue
      jensue cherie52901

      Posted

      Not totally sure about diet - obviously an acid diet could exacerbate things but as a non meat eater who virtually lives on fruit and vegs, who leads a stress free life, and who had ecoli  showing up in the urine, it's not totally diet related.  I still think loo splash -back (or splash - up) could be partially implicated initially.  I suspect there are many causes for the continuation of the problem and one person's cure isn't necessarily another's.  I must say i was amazed to find out in the hospital I wasn't actually emptying properly.  A change of position gets out several more ml!  All fin now thanks to Uva Ursa, Echanacea and D- Mannose.

    • jen6dawters
      jen6dawters jensue

      Posted

      There was a big E. coli problem with spinach across America in 2006. 3 died and at least 200 sickened. More people get sick from meat but more die from leafy greens. I got sick in the 70's and it's still a problem. If the doctors keep me on Xifaxan I stay better all around. Xifaxan is expensive, over $1000 without insurance. Not all insurance will pay if your only symptom is off label.  UTI is off label. If you have other symptoms, like intestinal problems, you can try to get from gastroenterologist.

      Xifaxan is the only drug I have ever used without side effects. Including herbal drugs. It takes a load off your kidneys and liver by reducing toxic byproduct of bacterial overgrowth in intestines. It has actually helped me stay free of eye infections which I started getting in 1981 after another round of E. coli. 

      As you stated in your response...one cure won't necessarily help another.

      my daughter had to give up all fruit not just junk food. Can never have alcohol. My friend's daughter was helped by powdered vitamin c in water throughout the day.

      My husband got it from drinking black mold by accident and uses cystex and aloe daily to keep it under control. 

      We can research online and discuss options with our doctors. But we have to be our own detective too. The patient forum helps by giving real life cases which can be informative. 

  • cherie52901
    cherie52901 nnj925

    Posted

    So nnj925, I was finishing up another message to you and I guess I sent it accidently-- I mentioned the D-mannose----that I was interested in learning more about it. I read what some of the others had to say about it, but what I gathered from reading between the lines is that maybe it works for people who have a lot of regular bladder infections, but perhaps not for those with interstitial cystitis? You posted several times over the last few months and you said once you were tested for IC. Did that last nurse practioner test you again?  I hope so! I saw several different doctors, including my gynecologist, searching for the source of my incessant pain and burning that, no doubt many thought was in my head!

    I also hope others will jump in here with their two cents on whether D-mannose is helpful for IC.  

    • wendy62425
      wendy62425 cherie52901

      Posted

      Hello cherie

      i see you posted 6 months ago.  I hope this finds you well.  I have another UTI and after reading this blog I am really nervous to take the CIPRO.  I have had many UTI's the past years and when Macrobid does not work if ecoli I had had a lot of CIPRO.  I am hoping to learn more about D-Mannose.  Have you tried it......I would love to treat these UTI with something natural!

      Please advise.

      thank uou

      wendy

    • Alicia9999
      Alicia9999 wendy62425

      Posted

      Hi Wendy

      I have been successfully treating my kidney infections with D-Mannose (1000mg) for 4 years now.  All my infections start off as UTI's but eventually end up as kidney infection as l don't get the normal UTI symptoms.  I used to get infections almost every 2nd month but now the infections can be up to 9 months apart.  As a preventative l take 2 capsules in the morning and 2 capsules in the evening.  I always try to drink plenty of water and empty my bladder regularly.  When l have an infection, it takes 3 days to get rid of infection.  On first 2 days, l take one tablet every 1/2 hour and drink lots of water.  I may wake up several times during the night to go to bathroom and then l try to take 2 more tablets each time.  Very laborious but urine test results come back clear on most occasions.  On the 3rd day l take 1 capsule every hour.  I can literally feel the burning pain in my kidney stop after about 4-5 hours on 1st day.  My GP was skeptical at first but after numerous clear urine tests she now believes what l am doing works.  I do feel bloated when doing the treatment but apart from that l have no other symptoms.  I am a keen cyclist and have been able to do 100km rides on day 2 of treatment as by then the treatment has kicked in.  I did my own dosage calculation and got it right the first time.  So l tend to stick to same dosage each time.  During 3 days of treatment when l first wake l may take an extra tablet or two and drink a bit more water to start flushing out my system given that l have been asleep most of the night.  

      I hope you find this information useful.

      Regards

      Alicia

  • silvia94175
    silvia94175 nnj925

    Posted

    You may have interstitial cystitis. Insist on getting tested for it
    • Tia1994
      Tia1994 silvia94175

      Posted

      And also I've never had his problem before? Why do you think it's just started? I've been tested for STD an stuff so it can't be anything like that

Back to top
Prev Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.