Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

Posted , 640 users are following.

The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

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  • Posted

    I know this is an old post, but i thought i would reply.  I had the exact same symptoms and went to many doctors/specialists, had mri's, ct scans, and blood tests.  After 8 years I was finally diagnosed with Celiac Disease.  Additionally, my vitamin D levels were extremely low (8ng/ml).  I had doctors wanting to diagnosed me with depression mainly due to the fatigue), but they were overlooking the most important criteria, a depressed mood.  I did start having panic attacks many years after living with brain fog, memory loss, fatigue, but it was mainly due to my brain fog.  It was hard to interact with others.  On really bad days i could barely comprehend what people were talking about. I was much better after my vitamin D levels leveled out, but i still experience extreme brain fog (sometimes for months) if i eat something with gluten.
    • Posted

      I only recently discovered this post and I am thankful that you have offered your experience. I have been living with fatigue, memory loss, perceived learning difficulties, difficulty paying attention etc. I don't have the money to go spending on various tests. I'm not sure where even to start. How did you discover you were low in Vitamin D? Is there a general blood test for various deficiencies? How long did it take you being gluten free to notice an improvement? And I'm curious about how you keep yourself fed. I'm a thin and fit guy who is often hungry.
  • Posted

    I am in the dilemma. I'm 45 and afraid I will lose job. I started cholesterol meds and thought it was causing it so I quit taking then but I'm still really bad. I'm gonna have dr test me for Lyme disease. I've had a stress test cause of chest pains and I go for results tomorrow. I've thought about mold in house. Or even lead or mercury poisoning. I'm gonna double check thyroid. Went to a neurologist last week and they don't think that it's anything neurological. Some nights are better than others but every morning starts off really bad. I'm on Lexapro already if anxiety and I really don't think it's that.

    It's hard to even write this. I keep stopping and dreaming about what I want to say but I can't get it out. I just have a feeling of wanting to stare into space and just float away.

    I hope someone find something to help. I'll keep you posted

  • Posted

    To everyone currently facing this "fog":

    What do EEG tests reveal?

    • Posted

      I tried to get an EEG for two years now, but the neurologists I went to didn't think it to be relevant... I think it's relevant, especially in combination with an immune system profile. But what I think doesn't seem to relevant either.
  • Posted

    So any of you who suffer similar problems as Taylor has experienced a gradual worseneing of their condition.

    Over the last 18 month my daytime tiredness became a lot worse, with it my cognitive functions declined too. At times I do things and then right afterwards I can`t recall what I just did. Bright lights are a big problem too. A year ago I had moments where I had brief spells where I felt fairly normal. They could last for a few minutes, few hours or if I was lucky I had a couple of days where I felt almost normal. Those periods don`t happen at all anylonger. 

  • Posted

    Omg!!!!!!! I thought I was the only one in the entire world

    With this problem. I have been experiencing this for years

    And have been trying to fight it so much. Just like you I have changed my diet, I have tried running on the treadmill

    So my brain could produce more serotonin and I even take Prozac because it helps your brain produce serotonin as well and still I am foggy, lost and and can't retain info. Now this is a phase cause it comes and goes and right now I have it at a very bad time cause I just got a job with usaa and I'm in training and noting sticking to my brain and I've been a banker for 10 yrs. it's like the switch just went off. J hope it comes back on pretty quick but it's pretty sad doctors don't have a diagnosis for it.

    • Posted

      Hey Tony,

      Thanks for sharing. The coming and going seems to mimic my symptoms. Question #1 how do you know its s serotonin problem?. #2 out of curiosity, did you do drugs in your past? Ecstasy etc?. #3. Does the intensity chance? # Do you feel like the prozac helps?

      Thanks again for sharing.

    • Posted

      Thank you Pajjah for replying to my post. Yes, I use to do cocaine about 10 yrs. ago and did it for about 10 yrs. also but I have been experiencing this since my high school years in the late 80's and early 90's. That's when it started. I didn't start using cocaine till I was 23yrs. Old in 1996. As I mentioned I no longer use drugs but that's not to say it didn't had to the problem. Also, the left side of the back of my head hurts sometimes. Right in the dead center of my back of the head on the left side. I have to get my wife to rub it and man does it put me in another world when she rubs it. It's a pain like a tingle sensation, cold sensation and then she runs it and it's like I feel it flowing or something. I've had it checked and nothing so I don't know what it could be along with damn fogginess.

    • Posted

      You're a lucky man to have the option of a back rub down from a wife wink. My marriage couldn't get through this foggyness and is sadley ending now. Thanks for the feedback. Let me know if you come up with anything and I'll do the same.

      Thanks Tony

  • Posted

    well i have been tested for lyme, HIV, syphilis, lupus, lead, vit. B & D and other things i can't think of.  nothing to show.  I am waiting on a sleep apena testing results now.  7 weeks and counting.  praying for sleep apena right about now.

  • Posted

    Hi,

    My name is Andrew, and I'm really hoping that someone reading this will be able to offer some help, advice or share your stories further, Did you find diagnoses, treatment and did you return to normal?

    Here is my story, Please get in touch if you think you can help me as I can't continue for much longer. On Wednesday 25th May, I returned home early from work having been unwell for the previous three weeks with what was initially diagnosed as a Quinsy abscess/severe Tonsillitis, During this time I was extremely unwell and prescribed three different types of Antibiotics, I'm not sure if this initial illness is in some way linked to what I'm going to share, But it gives a full picture of what's been happening. During this period of time, alongside being extremely physically unwell, I was experiencing overwhelming feelings of stress, anxiety and worry having recently started a new job and being in my probationary period, having to take time off sick which was unpaid and worrying about a number of financial implications and a few on going personal issues.

    I returned home on Wednesday 25th May and at this point in time my cognitive functioning and thought process was clear. I felt physically exhausted and decided to have a nap at around 6pm, I woke up around 8pm with a very faint pain in my head, and feeling in what I can only describe as a state of shock about my current situation of being unwell, worried about my new job, money, being able to pay the rent if I didn't pass my probation due to sickness etc. I felt in a state of shock, and suddenly I was unable to think, unable to process thoughts, I closed my eyes to try and get to sleep and suddenly there was nothing? I've always had a very sharp mind, clear loud thoughts and a photographic memory but suddenly there was nothing? I immediately panicked and contacted my mother to try and explain what was happening, I suddenly had a blank mind. Like someone had turned the switch to off? I couldn't visualise anything, couldn't process thoughts, It's like I closed my eyes and there was nothing there - If you asked me to imagine a tropical island or an animal I couldn't. My vision was blurred, I felt spaced out, anything that happened I suddenly couldn't remember, or something that happened five minutes ago felt/feels like it was months ago, I can't remember anything visually since this happened. I can remember things factually (Who I am, where I live etc but that's it), I immediately went to my GP to explain what had happened and the fact I suddenly was unable to sleep, was experiencing memory loss, blurred vision, spaced out and felt extremely distant and depersonalised, I was told it seemed like an after effect of my throat infection and things would improve and was given sleeping tablets, I returned home unsatisfied with the result but positive and hopeful things would return to normal. They didn't and I returned multiple times to little success, or further prescriptions of sleeping tables etc but I didn't feel like they were taking it seriously, The GP consulted a Neurologist and I was told there was nothing to worry about. My symptoms continued and in a state of desperate panic I went to A&E to seek further help, I was given a CT Scan which came back negative which was a huge relief and again was told it seemed like a hangover effect from being unwell but again I didn't feel this was giving me any answers, I returned home and continued to feel exactly the same. After two weeks of not sleeping, I slowly managed to fall asleep naturally again on and off which was a huge relief however since May 25th, I have constant memory loss, I can't remember anything that happened five minutes ago or I feel like it was months ago, I feel constantly spaced out, dazed, blurred and like I have constant brain fog, I'm exhausted, I can't process thoughts, Or the thoughts in my head are suddenly non existent - The only way I can describe it. I have a constant light pain around the front of my head, I can't sleep, I can't function. I'm on the verge of losing my job and being unable to pay the rent and bills which is causing further stress and worry and I'm on the verge of killing myself because I can't continue like this.

    If anyone can help, Please get in touch.

    • Posted

      You're not alone. Do you have a family member to live with while some serious diagnosing is done. Hang in there. Negative thinking will snowball everything. I can personally relate. I'm just going through a separation basically because I can't get my clear head back. Im about to lose my sales Management position too I think. It's unthinkable for me but better days are ahead. Have you attempted meds?. Trying exercise?.

      Keep your head up my friend, you're not alone.

      Scott

    • Posted

      Hi Scott,

      Unfortunately not, I don't really have any family and had quite a difficult childhood and early life so sadly there isn't really anyone I can fall back on, I'm not sure if what I'm experiencing is a combination of long term stress and worry or if there's something underlying.

      I'm sorry to hear you are experiencing similar symptoms, and hope you are able to get through this too! I feel too spaced out to exersize at the moment, I wish I could!

      Andrew

  • Posted

    Hi,

    My name is Andrew, and I'm really hoping that someone reading this will be able to offer some help, advice or share your stories further, Did you find diagnoses, treatment and did you return to normal?

    Here is my story, Please get in touch if you think you can help me as I can't continue for much longer. On Wednesday 25th May, I returned home early from work having been unwell for the previous three weeks with what was initially diagnosed as a Quinsy abscess/severe Tonsillitis, During this time I was extremely unwell and prescribed three different types of Antibiotics, I'm not sure if this initial illness is in some way linked to what I'm going to share, But it gives a full picture of what's been happening. During this period of time, alongside being extremely physically unwell, I was experiencing overwhelming feelings of stress, anxiety and worry having recently started a new job and being in my probationary period, having to take time off sick which was unpaid and worrying about a number of financial implications and a few on going personal issues.

    I returned home on Wednesday 25th May and at this point in time my cognitive functioning and thought process was clear. I felt physically exhausted and decided to have a nap at around 6pm, I woke up around 8pm with a very faint pain in my head, and feeling in what I can only describe as a state of shock about my current situation of being unwell, worried about my new job, money, being able to pay the rent if I didn't pass my probation due to sickness etc. I felt in a state of shock, and suddenly I was unable to think, unable to process thoughts, I closed my eyes to try and get to sleep and suddenly there was nothing? I've always had a very sharp mind, clear loud thoughts and a photographic memory but suddenly there was nothing? I immediately panicked and contacted my mother to try and explain what was happening, I suddenly had a blank mind. Like someone had turned the switch to off? I couldn't visualise anything, couldn't process thoughts, It's like I closed my eyes and there was nothing there - If you asked me to imagine a tropical island or an animal I couldn't. My vision was blurred, I felt spaced out, anything that happened I suddenly couldn't remember, or something that happened five minutes ago felt/feels like it was months ago, I can't remember anything visually since this happened. I can remember things factually (Who I am, where I live etc but that's it), I immediately went to my GP to explain what had happened and the fact I suddenly was unable to sleep, was experiencing memory loss, blurred vision, spaced out and felt extremely distant and depersonalised, I was told it seemed like an after effect of my throat infection and things would improve and was given sleeping tablets, I returned home unsatisfied with the result but positive and hopeful things would return to normal. They didn't and I returned multiple times to little success, or further prescriptions of sleeping tables etc but I didn't feel like they were taking it seriously, The GP consulted a Neurologist and I was told there was nothing to worry about. My symptoms continued and in a state of desperate panic I went to A&E to seek further help, I was given a CT Scan which came back negative which was a huge relief and again was told it seemed like a hangover effect from being unwell but again I didn't feel this was giving me any answers, I returned home and continued to feel exactly the same. After two weeks of not sleeping, I slowly managed to fall asleep naturally again on and off which was a huge relief however since May 25th, I have constant memory loss, I can't remember anything that happened five minutes ago or I feel like it was months ago, I feel constantly spaced out, dazed, blurred and like I have constant brain fog, I'm exhausted, I can't process thoughts, Or the thoughts in my head are suddenly non existent - The only way I can describe it. I have a constant light pain around the front of my head, I can't sleep, I can't function. I'm on the verge of losing my job and being unable to pay the rent and bills which is causing further stress and worry and I'm on the verge of killing myself because I can't continue like this.

    If anyone can help, Please get in touch.

    • Posted

      I know exactly how tou feel ...i also started losing my mind after being on antibiotics ..pls let me know how you are doing and if you found anything that helps ....😯

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