Debilitating symptoms. Brain fog...extreme memory loss...spacey 24/7!

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The last year of my life has been a brutal one. At the age of 22, I am in the lowest of lows and I desperately need some help!

Here’s my tale:

About a year ago, a couple months after an extremely strenuous relationship, I began noticing that I was tired all the time…and all around, I wasn’t really satisfied. Don’t get me wrong, I still enjoyed my friends, and activities…but life just wasn’t as bright and vibrant anymore after a month of noticing this ever-present fatigue, it got a bit stronger. I would wake up each morning completely zombie-mode…and that feeling would remain throughout the entirety of my day, until my head hit my pillow that evening.

Initially, I suspected some form of sleeping disorder. I set up a sleep study, got my thyroid checked, ferritin levels, all the basics. Sleep study revealed I sleep just fine and all my other blood tests came back negative.

The fatigue and the weight of the world slowly got worse over the next handful of months, UNTIL I woke up one morning and everything escalated greatly. I felt completely stoned. I couldn’t think right. I couldn’t concentrate. I felt inebriated. I felt totally disconnected and spacey. I felt as though I had no control over myself. I lost drive and motivation. I lost a lot of confidence.  I always had an incredibly sharp memory. It was actually something well known about me to those in my family and friend circles. Yet, on this morning, almost all new information could not be retained. Things that happened earlier in the day, by evening, I felt they happened a day or two before. I could no longer recount the activities I took part in. This is possibly the worst of all the symptoms. The extreme short term memory. I have no context for time and I sort of feel like I’m just floating through life suffering.

For months I visited doctors getting tested by specialists. I visited a neurologist, infectious disease, I had an MRI, & I had about 20 different blood tests. NOTHING. My doctor literally said “I have no idea what this could be. I am beside myself” TOTES reassuring! I tried altering my diet entirely to organic and all natural. I continued my workouts and ran 15 miles a week. I tried sleeping even earlier. I tried all I could think of .

I have scoured the message boards and found a few people suffering from the same, but without answers.

I’m not sure if depression is the culprit, but depression sure has found its nasty venom-coated fangs into my veins. Tired, depressed, failed memory, no drive, scared…it’s no way to live. I want my life back.

PLEASE OFFER INSIGHT! I will be so grateful J

Sincerely,

Taylorsaurus Rex

54 likes, 1428 replies

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  • Posted

    any other issues, sharp pains in the back of the skull mainly around the left side base of the skull? just cuirous. SPECT scan or fMRI may been more what you need, they are possibly looking for cysts in mris, i have a nurology apointment in nov myself for very simler reasons and my symptoms have been percistant for a VERY long time, since my early teens, i'm now 35.

    I want to know what's wrong as much as you all do. i can't even remeber not having brain fog which for me is normal i was told i'm dyslexic/stupid cos i don't remeber things well short term. (ADD AUtism) i'm starting to think i'm a victim of something more sinister as are a lot of people here. 

  • Posted

    you're not gonna be healthy as times goes by. Your mentality will break down and your attitude can't be controlled anymore in the worst case also, your speech gets weirder as times goes by. This abnormal disease have no cure yet as they don't believe on Oriental doctor.. but sadly only a single digit of oriental doctor knows the truth. I have the same symtoms with you and I'm currently getting cure and steadly getting back. I'm also having a case where a single drawing will get me a fatigue and a physical work will follow a week of fatigue. as for being spacy gets better and my mentality goes stable.. I got this since I was 13 and having it for a long time made me sick and crazy. I'm getting better for about 10% ..

    • Posted

      Hi Nightdash, your post would be more helpful if you would add some details on your treatment, for instance how the illness is labeled by your doctor and what kind of treatment you are receiving.
  • Posted

    Hi taylor

    ?I know its been a year since you posted but I thought I would throw my 2 cents in on your issue.

    ?I had and sometimes still have  the same thing going on and it was my thyroid and iron that was doing it.  All my tests for my thyroid came back normal and everything.  I thought I was going to lose my mind but I tried as I might but all the doctors said everything was normal.  Yeah right.  But  my doctor who is female knew something was up. She knew I wasnt making this up or that I was not crazy as the (I have to say it-sorry guys) that the male doctors thought I was.  She gave me some levothyroxin (which is a thyroid med) and I started coming out of the fog,  But I also found that my iron level (which wont be tested for unless you specifically ask for it to be tested in your blood test) which I did and it came up that I had low iron which is also another factor. I had extreme brain fog, wooziness, lack of focus, I would get lightheaded here and there for a few seconds and need to sit down, I was so exhausted by 1pm that I needed to just lay on the couch or in bed and once I laid down I felt getting up was going to be a chore because laying there in the zone was all I wanted to do.   My head felt fuzzy/foggy, my eyesight even seemed to get weaker and I finally got reading glasses.   I started taking my meds daily with the iron and i started feeling so much better.   Every so often I forget to take my iron for a few days (which is stupid of me) and the tiredness and brain fog comes back. then I start up again and all is good.    I hope you found your fix.  Sometimes your body just knows when something isnt right and it takes trial and error to find the fix.  Good luck to you.

    • Posted

      Hey, melw;

      Glad to know that you're feeling better. Out of curiosity, what was the official diagnosis?

      I asked about this brain fog on Quora a couple months ago thinking I had MS. One of the replies specifically mentioned to have my thyroid checked and to request anti-thyroid antibodies.

       

  • Posted

    exactly same my symptom i been suuferng fro a years with differnt doctors , i gave up my life is horrible . please let me know if any update happen to you, thanks

  • Posted

    I feel the same way and I'm also 22 years old it started after my last daughter and it's getting worse.....

  • Posted

    I am also afflicted with exactly what you have said!! I'm wondering, and have you thought that this has anything to do with using your mobile/tablet/laptop too much as I have had this problem after using mine for last 3 years on regular basis? Just a thought??

  • Posted

    I know this post has been awhile but did you ever figure out what's causing this? I'm suffering as well.

  • Posted

    Hi smile.

    I have absolutely no idea how open people on here are to this kind of response. I just saw your post, while I was starting to research about this spacing out/Brainfogginess I am dealing with for the past four years now. It doesn't seem to be as intense as you experienced it, but I had my lows and they got very very close to what you're describing.

    Now just to warn anyone who's allergic to spiritual talk: do not read xD.

    Sometimes my intuition speaks clearly, and in your case it is telling me: there is an emotional cause to your condition. More precisely, major grief that you haven't allowed yourself to feel yet... And a voice whispers that this might be a common cause. Also for me.

    This "grief" might be so deep you have never had access to. This "grief" might have been triggered by that break up you mentioned.

    For me personally, I've started journeying into my emotions more and more and as I uncovered emotions and memories, the brainfog and spacingout diminished slowly but gradually. It still IS present. I also know the root cause hasn't found resolution yet.

    To give you a better idea of what I am talking about: I realised that I never actually made up my mind whether "I wanted to live or not." Some part of me was not committed to life and thus it kept escaping reality through those symptoms, making it impossible or very VERY painful for me to be active.

    Then I had in my childhood repeatedly situations where I felt I had no way out.

    Around the age of 12, I for some reason wanted to runaway from home, taste freedom, taste my own individual sense of self, but at the age of 12 living where I lived, knowing what I knew, I felt I had nowhere to go. All there was left is to stay stuck where I did not want to be.

    The brainfog and pressure in my head, the spacing out, and even how it reflects in my everyday life makes me feel very stuck. Stuck in life. Stuck in something...

    As I said, I believe there are more emotions and memory for me to uncover, express and free. Also no sense of self, no idea "what I want", no direction, unable to decide or make plans are things I relate to this.

    For some reason, this particular feeling only comes up around midday and afternoon. In the morning I sometimes am very clear, and at night usually as well. It just seems to reoccur every day around eleven/noonish until 4-5 pm.

    I don't know if this will possibly help anybody. And by all means, I did not read all the comments, and physical issues are just as probable. But I just felt called to write this right here.

    You might not even see this message, others might, and maybe it'll inspire the smile.

    Much Love.

    • Posted

      i already replied to this with very similar symptoms as creator of this thread stated but i feel mine is more severe i think i might need to balance the consumption of information ( being on the internet, articles, instagram etc) but i just always feel in auto pilot mode.
  • Posted

    Hi Taylor. I have had the same thing for almost one year now. Debilitating brain fog, extreme fatigue, no memory, and dizziness. I've seen every dr I can think of. I had surgery to fix one of my sinuses, I've been misdiagnosed with a few things, on and off of meds, and now I'm trying antidepressants. I've changed my diet to an extremely healthy diet. No real diagnosis. I have 3 children and I feel like my life is passing me by. I used to be sick active and now o can barely go to the store on my own. The Drs have no idea. They don't seem to care. I'm really hopeful that the antidepressants will help. Have you found any answers?

  • Posted

    i have just about the same exact symptoms, its as if im in pilot mode and it was been like this since junior year in highschool in 2013 i am now 2 years out of highschool and it is still going on ive used drugs and alchol, attepmting to bring life back into me but i feel like my worrying was so strong that even while heavily intoxicated i couldnt enjoy it, my doctor said i have symptoms of bipolar depression, so as of 8 months now i have stopped all drugs. that includes alchohol, weed, pills etc.. but the problem still persist but its a little better i feel that i am slowly easing my way back into normailty im mostly foggy all day but will get maybe 5 minute moments were i will feel like my self and will be in sync mentally and physically in the same place but that would only happen on a good day
  • Posted

    Taylor mason i can tell you what it is but unlikely youll take my word for it so look up DPDR and vertigo i was suffering the same stuff and my ears felt fine except pressure lightly in my head around tge back of my ears. Almost none existant. I went to the er after aguing with my doctores and proved it i requested a ear nose and throat doctor that told me i had a blocked sinic and it was causing me what was called dream child effects the differance between a physical reason for this and a phycalogical is the intensity of the feelings i felt almost nothing at all taste was all but gone pleasure exctra the world looked like it lacked contrast. But i was proscribed a very high amount of antibiotics for about a week and came back to almost normal. I still feel the side effects from having it for so long from time to time like electrical pain in my head but just twinges not that bad and foggy in my right front temporal lobe. Research this ind youll be able to see if it was what i had or if your going crasy. Mine came on simular to yours high stress. And i also have ptsd. Wonder if you might too.
  • Posted

    I hate to tell you this, but I have lived with bipolar disorder for over 20 years, and now work in the mental health field, and this is quite exactly my experience of depression. You may need a medication for a while.  Studies show that the most effective treatments are medication COMBINED with therapy and lifestyle changes.  After a time, you can wean off meds; my experience has been that the medications helped to clear the fog so that I could do some serious work, processing things that had created deep stressors.  I also made some very healthy lifestyle changes- which you have already tried without success.  I think at this point, you have little choice but to try therapy and/or meds.

      I hate to recommend meds, because I know they can be difficult to accept, especially with all the bad press they get, but is what you are living with any worse than potential side effects?  None that I've heard of are worse than that.  Just make sure they don't give you Effexor.  It's one fo the most effective ones on the market, but you will NEVER get off of it; it's like withdrawing from heroine.  Just awful.  And don't give up if a med isn't effective immediately.  They typically take 6-8 weeks for full effect, and it can take several tries to find the right med.  

      Weirdly, Effexor was the ONLY antidepressant that ever worked properly for me. Weirdly, AND unfortunately, because it's expensive.  I've been able to wean off of most of my meds over the years, as I have done a lot of work creating coping skills, learning to manage emotions, and doing neuropsychological training.  But I still have to maintain a VERY strict routine for stability, involving avoiding ALL substances (alcohol, nicotine, artificial sweeteners, even caffeine), regulating my sleep, exercising regularly, meditating/mindfulness, and being very devoted to my faith, which has been an essential part of maintaining remission.

      Your journey might not be so difficult.  Bipolar is notoriously difficult to manage.  Perhaps you will find an antidepressant, the fog wil clear up, and all will be well.  I certainly hope this is the case.  But don't stay in denial so long that you lose half of your youth to this illness.  The stigma against mental illness is so strong, but it doesn't need to be.  Many successful people suffer from these things at one time or another; just accept it, deal with it, and start working towards healing. It's very possible in this day and age.  You do NOT have to live like this.

    • Posted

      Thank you so much for sharing! I just started Zoloft after suffering for almost one year. I've had every test and seen every specialist. I'm hopeful that the Zoloft is the answer. It's been the toughest time of my life. I have 3 kids and I need to be the mother they deserve. Thank you for sharing your knowledge and experience.

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